Published on in Vol 1 , No 2 (2012) :Jul-Dec

Standardization of Questions in Rare Disease Registries: The PRISM Library Project

Standardization of Questions in Rare Disease Registries: The PRISM Library Project

Standardization of Questions in Rare Disease Registries: The PRISM Library Project

Journals

  1. Cavero-Carbonell C, Gras-Colomer E, Guaita-Calatrava R, López-Briones C, Amorós R, Abaitua I, Posada M, Zurriaga O. Consensus on the criteria needed for creating a rare-disease patient registry. A Delphi study. Journal of Public Health 2016;38(2):e178 View