Published on in Vol 1, No 2 (2012): Jul-Dec

Standardization of Questions in Rare Disease Registries: The PRISM Library Project

Standardization of Questions in Rare Disease Registries: The PRISM Library Project

Standardization of Questions in Rare Disease Registries: The PRISM Library Project

Rachel Lynn Richesson 1, PhD, MPH;  Denise Shereff 2, MLIS;  James Everett Andrews 3, PhD

1 Duke University School of Nursing , Durham, NC, US

2 University of South Florida (USF) College of Medicine, Division of Bioinformatics and Biostatistics , Tampa, FL, US

3 School of Information , University of South Florida, Tampa, FL, US

Corresponding Author: