Published on in Vol 7 , No 1 (2018) :Jan-Jun

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/7176, first published .
Engaging a Community for Rare Genetic Disease: Best Practices and Education From Individual Crowdfunding Campaigns

Engaging a Community for Rare Genetic Disease: Best Practices and Education From Individual Crowdfunding Campaigns

Engaging a Community for Rare Genetic Disease: Best Practices and Education From Individual Crowdfunding Campaigns

Journals

  1. Dijkstra S, Kok G, Ledford J, Sandalova E, Stevelink R. Possibilities and Pitfalls of Social Media for Translational Medicine. Frontiers in Medicine 2018;5 View
  2. De Castro M, Turner C, Kirmse B, Ferreira C. Practical recommendations for the transition to adulthood for the adolescent with a genetic diagnosis. Special emphasis on inborn errors of metabolism. Translational Science of Rare Diseases 2020;4(3-4):159 View
  3. Kenworthy N, Dong Z, Montgomery A, Fuller E, Berliner L, Zhao J. A cross-sectional study of social inequities in medical crowdfunding campaigns in the United States. PLOS ONE 2020;15(3):e0229760 View
  4. Lublóy Á. Medical crowdfunding in a healthcare system with universal coverage: an exploratory study. BMC Public Health 2020;20(1) View