Engaging a Community for Rare Genetic Disease: Best Practices and Education From Individual Crowdfunding Campaigns
Engaging a Community for Rare Genetic Disease: Best Practices and Education From Individual Crowdfunding Campaigns
Romina Alicia Ortiz
1
, MHS
;
Steven Witte
1
, MD, PhD
;
Arvin Gouw
1
, PhD
;
Ana Sanfilippo
1
, MBA
;
Richard Tsai
1
, MSc
;
Danielle Fumagalli
1
, MA
;
Christine Yu
1
, MPH
;
Karla Lant
1
, BA
;
Nicole Lipintz
1
, BA
;
Jennifer Shepphird
1
, PhD
;
Fidelia B Alvina
1
, BA
;
Jimmy Cheng-Ho Lin
1
, MPH, MD, PhD
1
Rare Genomics Institute
,
Downey
,
CA
,
US