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This paper is in the following e-collection/theme issue:

Information Quality in Digital Media (424)

Published on in Vol 5, No 3 (2016): Jul-Sept

JMIR Publications logo: Advancing Digital Health & Open Science

Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

Authors of this article:

Frédéric Pauer1 Author Orcid Image ;   Jens Göbel2 Author Orcid Image ;   Holger Storf2 Author Orcid Image ;   Svenja Litzkendorf1 Author Orcid Image ;   Ana Babac1 Author Orcid Image ;   Martin Frank3 Author Orcid Image ;   Verena Lührs3 Author Orcid Image ;   Franziska Schauer4 Author Orcid Image ;   Jörg Schmidtke5 Author Orcid Image ;   Lisa Biehl6 Author Orcid Image ;   Thomas OF Wagner7 Author Orcid Image ;   Frank Ückert8 Author Orcid Image ;   Johann-Matthias Graf von der Schulenburg1 Author Orcid Image ;   Tobias Hartz3 Author Orcid Image
Article Authors Cited by (15) Tweetations (3) Metrics

Frédéric Pauer   1 , MSc ;   Jens Göbel   2 , BSc ;   Holger Storf   2 , PhD ;   Svenja Litzkendorf   1 , MA ;   Ana Babac   1 , MSc ;   Martin Frank   3 , PhD ;   Verena Lührs   3 , MA ;   Franziska Schauer   4 , Dr med ;   Jörg Schmidtke   5 , Dr med ;   Lisa Biehl   6 ;   Thomas OF Wagner   7 , Dr med ;   Frank Ückert   8 , PhD ;   Johann-Matthias Graf von der Schulenburg   1 , PhD ;   Tobias Hartz   3 , Dipl-Math

1 Center for Health Economics Research Hannover (CHERH), Leibniz University Hannover, Hannover, Germany

2 Medical Informatics Group (MIG), University Hospital Frankfurt, Frankfurt am Main, Germany

3 Centre for Quality and Management in Healthcare, Medical Association of Lower Saxony, Hannover, Germany

4 Department of Dermatology, Medical Center University of Freiburg, Freiburg im Breisgau, Germany

5 Orphanet Deutschland, Center for Rare Diseases, Hannover Medical School (MHH), Hannover, Germany

6 German Alliance of Chronic Rare Diseases (ACHSE) e.V, Berlin, Germany

7 Frankfurt Center for Rare Diseases (FRZSE), University Hospital Frankfurt, Frankfurt am Main, Germany

8 Department of Medical Informatics for Translational Oncology, German Cancer Research Center (DKFZ), Heidelberg, Germany

Corresponding Author:

  • Frédéric Pauer, MSc
  • Center for Health Economics Research Hannover (CHERH)
  • Leibniz University Hannover
  • Otto-Brenner-Str 1
  • Hannover 30159
  • Germany
  • Phone: 49 511-762-14244
  • Fax: 49 511-762-5081
  • Email: frp@cherh.de