This paper is in the following e-collection/theme issue:

Public Health (163)

Published on in Vol 3, No 2 (2014): Apr-Jun

A European Network of Email and Telephone Help Lines Providing Information and Support on Rare Diseases: Results From a 1-Month Activity Survey

A European Network of Email and Telephone Help Lines Providing Information and Support on Rare Diseases: Results From a 1-Month Activity Survey

A European Network of Email and Telephone Help Lines Providing Information and Support on Rare Diseases: Results From a 1-Month Activity Survey

Authors of this article:

Francois Houyez1 ;   Rosa Sanchez de Vega2 ;   Tuy Nga Brignol3 ;   Monica Mazzucato4 ;   Agata Polizzi5
Article Authors Cited by (7) Tweetations (5) Metrics

Francois Houyez   1 ;   Rosa Sanchez de Vega   2 ;   Tuy Nga Brignol   3 , MD ;   Monica Mazzucato   4 , MD, PhD ;   Agata Polizzi   5 , MD, PhD

1 European Organisation for Rare Diseases (Eurordis), Paris, France

2 Federacion Espanola de Enfermedades Raras, Help Line SIO, Madrid, Spain

3 Assocation Française contre les Myopathies AFM- Téléthon, Help Line MyoInfo, Evry, France

4 Rare Diseases Coordinating Centre, Rare Diseases Registry, Veneto Region, Padova, Italy

5 National Centre for Rare Diseases, Istituto Superiore di Sanità, Roma, Italy

Corresponding Author: