This paper is in the following e-collection/theme issue:

Digital Health, Telehealth and e-Innovation in Clinical Settings (352)

Published on in Vol 3, No 1 (2014): Jan-Mar

Use of Patient-Reported Outcome (PRO) Measures at Group and Patient Levels: Experiences From the Generic Integrated PRO System, WestChronic

Use of Patient-Reported Outcome (PRO) Measures at Group and Patient Levels: Experiences From the Generic Integrated PRO System, WestChronic

Use of Patient-Reported Outcome (PRO) Measures at Group and Patient Levels: Experiences From the Generic Integrated PRO System, WestChronic

Authors of this article:

Niels Henrik Ingvar Hjollund1, 2 Author Orcid Image ;   Louise Pape Larsen1 ;   Karin Biering1, 3 ;   Soren Paaske Johnsen2 ;   Erik Riiskjær4 ;   Liv Marit Schougaard1
Article Authors Cited by (70) Tweetations (6) Metrics

Journals

  1. Anderson N, Calvert M, Cockwell P, Dutton M, Kyte D. The Use of Patient-Reported Outcomes in Patients Treated With Maintenance Hemodialysis: A Perspective. American Journal of Kidney Diseases 2019;74(3):399 View
  2. Jensen R, Snyder C. PRO-cision Medicine: Personalizing Patient Care Using Patient-Reported Outcomes. Journal of Clinical Oncology 2016;34(6):527 View
  3. Nguyen-Nielsen M, Møller H, Tjønneland A, Borre M. Patient-reported outcome measures after treatment for prostate cancer: Results from the Danish Prostate Cancer Registry (DAPROCAdata). Cancer Epidemiology 2020;64:101623 View
  4. Friis R, Hjollund N, Mejdahl C, Pappot H, Skuladottir H. Electronic symptom monitoring in patients with metastatic lung cancer: a feasibility study. BMJ Open 2020;10(6):e035673 View
  5. Schougaard L, Larsen L, Jessen A, Sidenius P, Dorflinger L, de Thurah A, Hjollund N. AmbuFlex: tele-patient-reported outcomes (telePRO) as the basis for follow-up in chronic and malignant diseases. Quality of Life Research 2016;25(3):525 View
  6. Grove B, Ivarsen P, de Thurah A, Schougaard L, Kyte D, Hjøllund N. Remote follow-up using patient-reported outcome measures in patients with chronic kidney disease: the PROKID study – study protocol for a non-inferiority pragmatic randomised controlled trial. BMC Health Services Research 2019;19(1) View
  7. Prodinger B, Stamm T, Peterson D, Stucki G, Tennant A. Toward a Standardized Reporting of Outcomes in Hand Osteoarthritis: Developing a Common Metric of Outcome Measures Commonly Used to Assess Functioning. Arthritis Care & Research 2016;68(8):1115 View
  8. Pappot H, Baeksted C, Knoop A, Mitchell S, Nissen A, Johansen C. Routine surveillance for symptomatic toxicities with real-time clinician reporting in Danish breast cancer patients-Organization and design of the first national, cluster randomized trial using the Patient-Reported Outcomes version of Common Terminology C. The Breast Journal 2019;25(2):269 View
  9. Stefanovic S, Wallwiener M, Karic U, Domschke C, Katic L, Taran F, Pesic A, Hartkopf A, Hadji P, Teufel M, Schuetz F, Sohn C, Fasching P, Schneeweiss A, Brucker S. Patient-reported outcomes (PRO) focused on adverse events (PRO-AEs) in adjuvant and metastatic breast cancer: clinical and translational implications. Supportive Care in Cancer 2017;25(2):549 View
  10. Aiyegbusi O, Kyte D, Cockwell P, Marshall T, Dutton M, Walmsley-Allen N, Slade A, McMullan C, Calvert M. Patient and Clinician Perspectives on Electronic Patient-Reported Outcome Measures in the Management of Advanced CKD: A Qualitative Study. American Journal of Kidney Diseases 2019;74(2):167 View
  11. Sharma P, Dunn R, Wei J, Montie J, Gilbert S. Evaluation of point-of-care PRO assessment in clinic settings: integration, parallel-forms reliability, and patient acceptability of electronic QOL measures during clinic visits. Quality of Life Research 2016;25(3):575 View
  12. Schougaard L, de Thurah A, Bech P, Hjollund N, Christiansen D. Test-retest reliability and measurement error of the Danish WHO-5 Well-being Index in outpatients with epilepsy. Health and Quality of Life Outcomes 2018;16(1) View
  13. Baeksted C, Pappot H, Nissen A, Hjollund N, Mitchell S, Basch E, Bidstrup P, Dalton S, Johansen C. Feasibility and acceptability of electronic symptom surveillance with clinician feedback using the Patient-Reported Outcomes version of Common Terminology Criteria for Adverse Events (PRO-CTCAE) in Danish prostate cancer patients. Journal of Patient-Reported Outcomes 2017;1(1) View
  14. Schick-Makaroff K, Molzahn A. Evaluation of real-time use of electronic patient-reported outcome data by nurses with patients in home dialysis clinics. BMC Health Services Research 2017;17(1) View
  15. Leviton A, Oppenheimer J, Chiujdea M, Antonetty A, Ojo O, Garcia S, Weas S, Fleegler E, Chan E, Loddenkemper T. Characteristics of Future Models of Integrated Outpatient Care. Healthcare 2019;7(2):65 View
  16. Schougaard L, de Thurah A, Christiansen D, Sidenius P, Hjollund N. Patient-reported outcome (PRO) measure-based algorithm for clinical decision support in epilepsy outpatient follow-up: a test–retest reliability study. BMJ Open 2018;8(7):e021337 View
  17. Mejdahl C, Schougaard L, Hjollund N, Riiskjær E, Lomborg K. Patient-reported outcome measures in the interaction between patient and clinician – a multi-perspective qualitative study. Journal of Patient-Reported Outcomes 2020;4(1) View
  18. de Thurah A, Stengaard‐Pedersen K, Axelsen M, Fredberg U, Schougaard L, Hjollund N, Pfeiffer‐Jensen M, Laurberg T, Tarp U, Lomborg K, Maribo T. Tele‐Health Followup Strategy for Tight Control of Disease Activity in Rheumatoid Arthritis: Results of a Randomized Controlled Trial. Arthritis Care & Research 2018;70(3):353 View
  19. Kyte D, Bishop J, Brettell E, Calvert M, Cockwell P, Dutton M, Eddington H, Hadley G, Ives N, Jackson L, Stringer S, Valente M. Use of an electronic patient-reported outcome measure in the management of patients with advanced chronic kidney disease: the RePROM pilot trial protocol. BMJ Open 2018;8(10):e026080 View
  20. Aiyegbusi O, Kyte D, Cockwell P, Marshall T, Dutton M, Slade A, Marklew N, Price G, Verdi R, Waters J, Sharpe K, Calvert M. Using Patient-Reported Outcome Measures (PROMs) to promote quality of care and safety in the management of patients with Advanced Chronic Kidney disease (PRO-trACK project): a mixed-methods project protocol. BMJ Open 2017;7(6):e016687 View
  21. Kjær A, Rasmussen T, Hjollund N, Rodkjaer L, Storgaard M. Patient-reported outcomes in daily clinical practise in HIV outpatient care. International Journal of Infectious Diseases 2018;69:108 View
  22. Mejdahl C, Schougaard L, Hjollund N, Riiskjær E, Lomborg K. Exploring organisational mechanisms in PRO-based follow-up in routine outpatient care - an interpretive description of the clinician perspective. BMC Health Services Research 2018;18(1) View
  23. McMullan C, Retzer A, Slade A, Kyte D, Jones L, Belli A, Calvert M, Turner G. Care providers’ and patients’ attitudes toward using electronic-patient reported outcomes to support patients with traumatic brain injury: a qualitative study (PRiORiTy). Brain Injury 2020;34(6):723 View
  24. Anderson N, Calvert M, Cockwell P, Dutton M, Aiyegbusi O, Kyte D. Using patient-reported outcome measures (PROMs) to promote quality of care in the management of patients with established kidney disease requiring treatment with haemodialysis in the UK (PROM-HD): a qualitative study protocol. BMJ Open 2018;8(10):e021532 View
  25. Schougaard L, Mejdahl C, Christensen J, Lomborg K, Maindal H, de Thurah A, Hjollund N. Patient-initiated versus fixed-interval patient-reported outcome-based follow-up in outpatients with epilepsy: a pragmatic randomized controlled trial. Journal of Patient-Reported Outcomes 2019;3(1) View
  26. Hjollund N. Fifteen Years’ Use of Patient-Reported Outcome Measures at the Group and Patient Levels: Trend Analysis. Journal of Medical Internet Research 2019;21(9):e15856 View
  27. Slade A, Isa F, Kyte D, Pankhurst T, Kerecuk L, Ferguson J, Lipkin G, Calvert M. Patient reported outcome measures in rare diseases: a narrative review. Orphanet Journal of Rare Diseases 2018;13(1) View
  28. Calvert M, Kyte D, Price G, Valderas J, Hjollund N. Maximising the impact of patient reported outcome assessment for patients and society. BMJ 2019:k5267 View
  29. Mejdahl C, Schougaard L, Hjollund N, Riiskjær E, Thorne S, Lomborg K. PRO-based follow-up as a means of self-management support – an interpretive description of the patient perspective. Journal of Patient-Reported Outcomes 2018;2(1) View
  30. Mohamed N, Gilbert F, Lee C, Sfakianos J, Knauer C, Mehrazin R, Badr H, Wittmann D, Downs T, Berry D, Given B, Wiklund P, Steineck G. Pursuing Quality in the Application of Bladder Cancer Quality of Life Research. Bladder Cancer 2016;2(2):139 View
  31. Hjollund N. Individual Prognosis of Symptom Burden and Functioning in Chronic Diseases: A Generic Method Based on Patient-Reported Outcome (PRO) Measures. Journal of Medical Internet Research 2017;19(8):e278 View
  32. Skovlund P, Ravn S, Seibaek L, Thaysen H, Lomborg K, Nielsen B. The development of PROmunication: a training-tool for clinicians using patient-reported outcomes to promote patient-centred communication in clinical cancer settings. Journal of Patient-Reported Outcomes 2020;4(1) View
  33. Hunter C, Fitzpatrick R, Jenkinson C, Darlington A, Coulter A, Forder J, Peters M. Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative study. BMJ Open 2015;5(5):e006986 View
  34. Hjollund N, Valderas J, Kyte D, Calvert M. Health Data Processes: A Framework for Analyzing and Discussing Efficient Use and Reuse of Health Data With a Focus on Patient-Reported Outcome Measures. Journal of Medical Internet Research 2019;21(5):e12412 View
  35. Schougaard L, de Thurah A, Christensen J, Lomborg K, Maindal H, Mejdahl C, Vestergaard J, Winding T, Biering K, Hjollund N. Sociodemographic, personal, and disease-related determinants of referral to patient-reported outcome-based follow-up of remote outpatients: a prospective cohort study. Quality of Life Research 2020;29(5):1335 View
  36. Aiyegbusi O, Kyte D, Cockwell P, Marshall T, Gheorghe A, Keeley T, Slade A, Calvert M, Eller K. Measurement properties of patient-reported outcome measures (PROMs) used in adult patients with chronic kidney disease: A systematic review. PLOS ONE 2017;12(6):e0179733 View
  37. Fasola G, Macerelli M, Follador A, Rihawi K, Aprile G, Mea V. Health Information Technology in Oncology Practice: A Literature Review. Cancer Informatics 2014;13:CIN.S12417 View
  38. Holden R, McDougald Scott A, Hoonakker P, Hundt A, Carayon P. Data collection challenges in community settings: insights from two field studies of patients with chronic disease. Quality of Life Research 2015;24(5):1043 View
  39. Holländer-Mieritz C, Johansen J, Taarnhøj G, Johansen C, Vogelius I, Kristensen C, Pappot H. Systematic use of patient reported outcome during radiotherapy for head and neck cancer: study protocol for the national DAHANCA 38 trial. Acta Oncologica 2020;59(5):603 View
  40. Rasmussen A, Johnsen S, Berg S, Rasmussen T, Borregaard B, Thrysoee L, Thorup C, Mols R, Wiggers H, Larsen S. Predictors of patient-reported outcomes at discharge in patients with heart failure. European Journal of Cardiovascular Nursing 2020;19(8):748 View
  41. Aiyegbusi O, Kyte D, Cockwell P, Marshall T, Dutton M, Walmsley-Allen N, Auti R, Calvert M. Development and usability testing of an electronic patient-reported outcome measure (ePROM) system for patients with advanced chronic kidney disease. Computers in Biology and Medicine 2018;101:120 View
  42. Ciani O, Federici C. Value Lies in the Eye of the Patients: The Why, What, and How of Patient-reported Outcomes Measures. Clinical Therapeutics 2020;42(1):25 View
  43. Pappot H, Baeksted C, Nissen A, Knoop A, Mitchell S, Christensen J, Hjollund N, Johansen C. Clinical effects of assessing electronic patient-reported outcomes monitoring symptomatic toxicities during breast cancer therapy: a nationwide and population-based study. Breast Cancer 2021;28(5):1096 View
  44. Kalluri M, Luppi F, Vancheri A, Vancheri C, Balestro E, Varone F, Mogulkoc N, Cacopardo G, Bargagli E, Renzoni E, Torrisi S, Calvello M, Libra A, Pavone M, Bonella F, Cottin V, Valenzuela C, Wijsenbeek M, Bendstrup E. Patient-reported outcomes and patient-reported outcome measures in interstitial lung disease: where to go from here?. European Respiratory Review 2021;30(160):210026 View
  45. Aiyegbusi O, Nair D, Peipert J, Schick-Makaroff K, Mucsi I. A narrative review of current evidence supporting the implementation of electronic patient-reported outcome measures in the management of chronic diseases. Therapeutic Advances in Chronic Disease 2021;12:204062232110159 View
  46. Slade A, O’Hara M, Quinn D, Marley L, Griffith S, Calvert M, Haque M, Lim H, Doherty P, Lane D, Deo S. Living with a left ventricular assist device: Capturing recipients experiences using group concept mapping software. PLOS ONE 2022;17(9):e0273108 View
  47. Astradsson A, Sørensen N, Graversen A, Nemeiko I, Bilgin-Freiert A, Stephansen L, Einarsson H, Schougaard L, Juhler M, Hansen T. Hydroflex: Use of Patient Reported Outcomes in a Clinical Setting Among Patients with Hydrocephalus. World Neurosurgery 2023;169:e67 View
  48. Hjollund N, Larsen L, de Thurah A, Grove B, Skuladottir H, Linnet H, Friis R, Johnsen S, May O, Jensen A, Hansen T, Taarnhøj G, Tolstrup L, Pappot H, Ivarsen P, Dørflinger L, Jessen A, Sørensen N, Schougaard L, team T. Patient-reported outcome (PRO) measurements in chronic and malignant diseases: ten years’ experience with PRO-algorithm-based patient-clinician interaction (telePRO) in AmbuFlex. Quality of Life Research 2023;32(4):1053 View
  49. Riiskjær E, Schougaard L, Larsen L, Hjøllund N. Hvordan kan patientrapporterede oplysninger (PRO) bruges i klinisk praksis? – belyst med udgangspunkt i fire forskellige konsultationsmodeller. Nordisk sygeplejeforskning 2014;4(3):189 View
  50. Poulsen N, Schougaard L, Søvsø M, Leutscher P, Pedersen M. Patient-reported outcome measures in the emergency department: a scoping review protocol. JBI Evidence Synthesis 2021;19(11):3102 View
  51. Grove B, Schougaard L, Ivarsen P, Kyte D, Hjollund N, de Thurah A. Patient-reported outcome measures for clinical decision-making in outpatient follow-up: validity and reliability of a renal disease questionnaire. Journal of Patient-Reported Outcomes 2021;5(1) View
  52. Appel C, Pedersen S, Nielsen A, Larsen B. Telemedicine based on patient-reported outcomes in management of patients with inflammatory bowel disease in a real-life setting – a before and after cohort study. Scandinavian Journal of Gastroenterology 2022;57(7):825 View
  53. Aiyegbusi O, Hughes S, Peipert J, Schougaard L, Wilson R, Calvert M. Reducing the pressures of outpatient care: the potential role of patient-reported outcomes. Journal of the Royal Society of Medicine 2023;116(2):44 View
  54. Laurberg T, Schougaard L, Hjollund N, Lomborg K, Hansen T, Jensen A. Randomized controlled study to evaluate the impact of flexible patient‐controlled visits in people with type 1 diabetes: The DiabetesFlex Trial. Diabetic Medicine 2022;39(5) View
  55. Quijano-Campos J, Sekhri N, Thillai M, Sanders J, Bäck M. Health-related quality of life in cardiac sarcoidosis: a systematic review. European Heart Journal Open 2023;3(2) View
  56. Vanderhout S, Potter B, Smith M, Butcher N, Vaters J, Chakraborty P, Adams J, Inbar-Feigenberg M, Offringa M, Speechley K, Trakadis Y, Binik A. Ethical and practical considerations related to data sharing when collecting patient-reported outcomes in care-based child health research. Quality of Life Research 2023;32(8):2319 View
  57. Schougaard L, Knudsen L, Grove B, Vestergaard J, Hjollund N, Hauge E, de Thurah A. Socioeconomic, Disease‐Related, and Personal Factors Associated With Participation in Remote Follow‐Up in Rheumatoid Arthritis: A Cross‐Sectional Study. Arthritis Care & Research 2023;75(10):2044 View
  58. Hassanein M, Huri H, Baig K, Abduelkarem A, Al‐Momani M. Development and validation of the genitourinary syndrome of menopause symptoms and vaginal treatments acceptability questionnaire (GSM‐SVTAQ): An electronic patient‐reported outcomes measure. International Journal of Gynecology & Obstetrics 2024;164(2):613 View
  59. Rasmussen S, Schougaard L, Hjøllund N, Christiansen D. Patient-reported outcome measures as determinants for the utilization of health care among outpatients with epilepsy: a prognostic cohort study. Journal of Patient-Reported Outcomes 2023;7(1) View
  60. Matini L, Chapman T, Kantschuster R, Wilson J, Tarafdar A, Hussain M, Song K, Simadibrata D, Seeva P, White L, Slater J, Kormilitzin A, Collins G, Travis S, Walsh A. Development of the Escalation of Therapy or Intervention (ETI) Calculator for Patients with Ulcerative Colitis Using ePROMs. Journal of Crohn's and Colitis 2023;17(11):1744 View
  61. Huemer M, Bösch F. Measuring what matters: Why and how to include patient reported outcomes in clinical care and research on inborn errors of metabolism. Journal of Inherited Metabolic Disease 2023;46(5):796 View
  62. Grove B, de Thurah A, Ivarsen P, Kvisgaard A, Hjollund N, Grytnes R, Schougaard L. Remote Symptom Monitoring Using Patient-Reported Outcomes in Patients With Chronic Kidney Disease: Process Evaluation of a Randomized Controlled Trial. JMIR Formative Research 2024;8:e48173 View
  63. Mercadal-Orfila G, Herrera-Pérez S, Piqué N, Mateu-Amengual F, Ventayol-Bosch P, Maestre-Fullana M, Serrano-López de las Hazas J, Fernández-Cortés F, Barceló-Sansó F, Rios S. Implementing Systematic Patient-Reported Measures for Chronic Conditions Through the Naveta Value-Based Telemedicine Initiative: Observational Retrospective Multicenter Study. JMIR mHealth and uHealth 2024;12:e56196 View
  64. Warren J, Link R, Cheng A, Sinclair M, Sorensen A. Carpal tunnel syndrome and sleep, a systematic review and meta-analysis. Hand Surgery and Rehabilitation 2024;43(3):101698 View
  65. Mitchell J, Sossi F, Miller I, Jaber P, Das‐Gupta Z, Fialho L, Amos A, Austin J, Badzik S, Baker G, Zeev B, Bolton J, Chaplin J, Cross J, Chan D, Gericke C, Husain A, Lally L, Mbugua S, Megan C, Mesa T, Nuñez L, von Oertzen T, Perucca E, Pullen A, Ronen G, Sajatovic M, Singh M, Wilmshurst J, Wollscheid L, Berg A. Development of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Adults with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus Recommendations. Epilepsia 2024;65(7):1916 View
  66. Slade A, McMullan C, Haque M, Griffith S, Marley L, Quinn D, O'Hara M, Horton M, Calvert M, Lim H, Lane D. Development of a quality of life measure for left ventricular assist device recipients using a mixed methods approach. ESC Heart Failure 2024 View
  67. Maitland H, Lambert C, Ghanima W. Patient-centric care in primary immune thrombocytopenia (ITP): shared decision-making and assessment of health-related quality of life. Hematology 2024;29(1) View
  68. Grove B, Schougaard L, Mose F, Randers E, Hjollund N, Ivarsen P, De Thurah A. Remote symptom monitoring with patient-reported outcome measures in outpatients with chronic kidney disease (PROKID): a multicentre randomised controlled non-inferiority study. Clinical Kidney Journal 2024;17(7) View

Books/Policy Documents

  1. Aiyegbusi O, Hughes S, Calvert M. Handbook of Quality of Life in Cancer. View
  2. Castro M, Wang M. Chronic Illness Care. View