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Accepted for/Published in: JMIR Cancer

Date Submitted: Oct 31, 2018
Open Peer Review Period: Nov 3, 2018 - Dec 29, 2018
Date Accepted: May 1, 2019
(closed for review but you can still tweet)

The final, peer-reviewed published version of this preprint can be found here:

Oncofertility Decision Support Resources for Women of Reproductive Age: Systematic Review

Speller B, Micic S, Daly C, Pi L, Little T, Baxter NN

Oncofertility Decision Support Resources for Women of Reproductive Age: Systematic Review

JMIR Cancer 2019;5(1):e12593

DOI: 10.2196/12593

PMID: 31199289

PMCID: 6592478

Oncofertility Decision Support Resources for Women of Reproductive Age: Systematic Review

  • Brittany Speller; 
  • Selena Micic; 
  • Corinne Daly; 
  • Lebei Pi; 
  • Tari Little; 
  • Nancy N Baxter

Background:

Cancer treatments have the potential to cause infertility among women of reproductive age. Many cancer patients do not receive sufficient oncofertility information or referrals to reproductive specialists prior to starting cancer treatment. While health care providers cite lack of awareness on the available oncofertility resources, the majority of cancer patients use the internet as a resource to find additional information to supplement discussions with their providers.

Objective:

Our aim was to identify and characterize Web-based oncofertility decision aids and health education materials accessible for women of reproductive age with a diagnosis of any cancer.

Methods:

We searched five databases and the gray literature for the years 1994-2018. The developer and content information for identified resources was extracted. Each resource underwent a quality assessment.

Results:

We identified 31 open access resources including 4 decision aids and 27 health educational materials. The most common fertility preservation options listed in the resources included embryo (31/31, 100%), egg (31, 100%), and ovarian tissue freezing (30, 97%). Notably, approximately one-third (11, 35%) contained references and 5 (16%) had a reading level of grade 8 or below. Resources were of varying quality; two decision aids from Australia and the Netherlands, two booklets from Australia and the United Kingdom, and three websites from Canada and the United States rated as the highest quality.

Conclusions:

This comprehensive review characterizes numerous resources available to support patients and providers with oncofertility information, counseling, and decision making. More focus is required to improve the awareness and the access of existing resources among patients and providers. Providers can address patient information needs by leveraging or adapting existing resources to support clinical discussions and their specific patient population.


 Citation

Please cite as:

Speller B, Micic S, Daly C, Pi L, Little T, Baxter NN

Oncofertility Decision Support Resources for Women of Reproductive Age: Systematic Review

JMIR Preprints. 31/10/2018:12593

DOI: 10.2196/preprints.12593

URL: https://preprints.jmir.org/preprint/12593

PMID: 31199289

PMCID: 6592478

Per the author's request the PDF is not available.

© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.