<?xml version="1.0" encoding="UTF-8"?>
<!DOCTYPE article PUBLIC "-//NLM//DTD Journal Publishing DTD v2.0 20040830//EN" "http://dtd.nlm.nih.gov/publishing/2.0/journalpublishing.dtd">
<article xmlns:xlink="http://www.w3.org/1999/xlink" article-type="review-article" dtd-version="2.0">
  <front>
    <journal-meta>
      <journal-id journal-id-type="publisher-id">IJMR</journal-id>
      <journal-id journal-id-type="nlm-ta">Interact J Med Res</journal-id>
      <journal-title>Interactive Journal of Medical Research</journal-title>
      <issn pub-type="epub">1929-073X</issn>
      <publisher>
        <publisher-name>JMIR Publications</publisher-name>
        <publisher-loc>Toronto, Canada</publisher-loc>
      </publisher>
    </journal-meta>
    <article-meta>
      <article-id pub-id-type="publisher-id">v11i1e28137</article-id>
      <article-id pub-id-type="pmid">35119371</article-id>
      <article-id pub-id-type="doi">10.2196/28137</article-id>
      <article-categories>
        <subj-group subj-group-type="heading">
          <subject>Review</subject>
        </subj-group>
        <subj-group subj-group-type="article-type">
          <subject>Review</subject>
        </subj-group>
      </article-categories>
      <title-group>
        <article-title>Approaches to Determine and Manage Sexual Consent Abilities for People With Cognitive Disabilities: Systematic Review</article-title>
      </title-group>
      <contrib-group>
        <contrib contrib-type="editor">
          <name>
            <surname>Mavragani</surname>
            <given-names>Amaryllis</given-names>
          </name>
        </contrib>
      </contrib-group>
      <contrib-group>
        <contrib contrib-type="reviewer">
          <name>
            <surname>Donley</surname>
            <given-names>Tiffany</given-names>
          </name>
        </contrib>
        <contrib contrib-type="reviewer">
          <name>
            <surname>Boni-Saenz</surname>
            <given-names>Alexander</given-names>
          </name>
        </contrib>
        <contrib contrib-type="reviewer">
          <name>
            <surname>Smith</surname>
            <given-names>Jewelles</given-names>
          </name>
        </contrib>
      </contrib-group>
      <contrib-group>
        <contrib id="contrib1" contrib-type="author" corresp="yes" equal-contrib="yes">
          <name name-style="western">
            <surname>Esmail</surname>
            <given-names>Shaniff</given-names>
          </name>
          <degrees>PhD</degrees>
          <xref rid="aff1" ref-type="aff">1</xref>
          <address>
            <institution>Department of Occupational Therapy</institution>
            <institution>University of Alberta</institution>
            <addr-line>Corbett Hall</addr-line>
            <addr-line>8205 - 114St 2-64</addr-line>
            <addr-line>Edmonton, AB, T6G 2G4</addr-line>
            <country>Canada</country>
            <phone>1 (780) 492 0397</phone>
            <fax>1 (780) 492 4628</fax>
            <email>shaniff.esmail@ualberta.ca</email>
          </address>
          <ext-link ext-link-type="orcid">https://orcid.org/0000-0003-0372-3311</ext-link>
        </contrib>
        <contrib id="contrib2" contrib-type="author" equal-contrib="yes">
          <name name-style="western">
            <surname>Concannon</surname>
            <given-names>Brendan</given-names>
          </name>
          <degrees>MSci</degrees>
          <xref rid="aff2" ref-type="aff">2</xref>
          <ext-link ext-link-type="orcid">https://orcid.org/0000-0001-5371-3774</ext-link>
        </contrib>
      </contrib-group>
      <aff id="aff1">
        <label>1</label>
        <institution>Department of Occupational Therapy</institution>
        <institution>University of Alberta</institution>
        <addr-line>Edmonton, AB</addr-line>
        <country>Canada</country>
      </aff>
      <aff id="aff2">
        <label>2</label>
        <institution>Faculty of Rehabilitation Medicine</institution>
        <institution>University of Alberta</institution>
        <addr-line>Edmonton, AB</addr-line>
        <country>Canada</country>
      </aff>
      <author-notes>
        <corresp>Corresponding Author: Shaniff Esmail <email>shaniff.esmail@ualberta.ca</email></corresp>
      </author-notes>
      <pub-date pub-type="collection">
        <season>Jan-Jun</season>
        <year>2022</year>
      </pub-date>
      <pub-date pub-type="epub">
        <day>4</day>
        <month>2</month>
        <year>2022</year>
      </pub-date>
      <volume>11</volume>
      <issue>1</issue>
      <elocation-id>e28137</elocation-id>
      <history>
        <date date-type="received">
          <day>24</day>
          <month>2</month>
          <year>2021</year>
        </date>
        <date date-type="rev-request">
          <day>23</day>
          <month>10</month>
          <year>2021</year>
        </date>
        <date date-type="rev-recd">
          <day>5</day>
          <month>12</month>
          <year>2021</year>
        </date>
        <date date-type="accepted">
          <day>17</day>
          <month>12</month>
          <year>2021</year>
        </date>
      </history>
      <copyright-statement>©Shaniff Esmail, Brendan Concannon. Originally published in the Interactive Journal of Medical Research (https://www.i-jmr.org/), 04.02.2022.</copyright-statement>
      <copyright-year>2022</copyright-year>
      <license license-type="open-access" xlink:href="https://creativecommons.org/licenses/by/4.0/">
        <p>This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Interactive Journal of Medical Research, is properly cited. The complete bibliographic information, a link to the original publication on https://www.i-jmr.org/, as well as this copyright and license information must be included.</p>
      </license>
      <self-uri xlink:href="https://www.i-jmr.org/2022/1/e28137" xlink:type="simple"/>
      <abstract>
        <sec sec-type="background">
          <title>Background</title>
          <p>This review focused on how sexual consent ability was determined, managed, and enhanced in people with cognitive disabilities, with the aim of better understanding the recurring themes influencing the design and implementation of these approaches. If a person’s consensual ability becomes compromised, owing to either an early or late-onset cognitive disability, the formal systems involved must establish plans to balance the individual’s rights and restrictions on sexual expression. This review identified these plans, focusing on how they promoted the intimacy rights of the individual.</p>
        </sec>
        <sec sec-type="objective">
          <title>Objective</title>
          <p>This study aims to identify approaches that determine sexual consent ability in people with cognitive disabilities, identify the means of managing and enhancing sexual consent ability in people with cognitive disabilities, and note the recurring themes that influence how these approaches and management systems are designed and implemented.</p>
        </sec>
        <sec sec-type="methods">
          <title>Methods</title>
          <p>A systematic literature review was performed using EBSCOhost (Social Gerontology, CINAHL Plus, MEDLINE, and SocINDEX), Embase, PsyInfo, and Scopus to locate reports on terms expanded on sexual consent and cognitive disability.</p>
        </sec>
        <sec sec-type="results">
          <title>Results</title>
          <p>In all, 47 articles were identified, featuring assessment practices, legal case studies, and clinical standards for managing sexual consent capacity in people with cognitive disabilities. A total of 8 studies (5/8, 63% qualitative and 3/8, 38% quantitative) were included out of the 47 articles identified. Approaches for determining sexual consent included functional capacity and person-centered, integrated, and contextual approaches. Management of sexual consent ability included education, attitude, and advanced directives and support networks. The recurring themes that influenced these approaches included the 3 legal criteria of consent, American Bar Association and American Psychological Association Model, Lichtenberg and Strzepek Instrument, Ames and Samowitz Instrument, Lyden approach, Mental Capacity Act of 2005, and Vancouver Coastal Health Authority of 2009.</p>
        </sec>
        <sec sec-type="conclusions">
          <title>Conclusions</title>
          <p>Determining sexual consent takes a holistic approach, with individuals judged in terms of their adaptive abilities, capacities, and human rights. The attitudes of those using this holistic approach need to be balanced; otherwise, the sexual rights of assessed people could be moved either in favor or against them. The ideal outcome, after person-centered considerations of those living with cognitive disabilities includes the people themselves being involved in the process of personalizing these approaches used to facilitate healthy intimate relationships.</p>
        </sec>
      </abstract>
      <kwd-group>
        <kwd>sexual consent</kwd>
        <kwd>capacity</kwd>
        <kwd>disability</kwd>
        <kwd>sexual expression</kwd>
        <kwd>dementia</kwd>
        <kwd>ethics</kwd>
        <kwd>long-term care</kwd>
      </kwd-group>
    </article-meta>
  </front>
  <body>
    <sec sec-type="introduction">
      <title>Introduction</title>
      <sec>
        <title>Background</title>
        <sec>
          <title>Defining Cognitive Disability, Sexuality, and Consent</title>
          <p>Cognitive disabilities are defined as long-term mental impairments, including those of intellectual and developmental order. The terms <italic>cognitive</italic> and <italic>intellectual</italic> are often used interchangeably, with intellectual disabilities defined as a limitation in academic functioning based on standardized intelligence tests and IQs, associated with IQ scores &#60;75; limitations in learning behavior to one or all three skill types—conceptual skills, social skills, and practical skills; and manifestation of the disability before the age of 18 years [<xref ref-type="bibr" rid="ref1">1</xref>,<xref ref-type="bibr" rid="ref2">2</xref>]. Noncognitive mental conditions, including psychiatric and psychosocial conditions, are associated with anxiety, mood, and personality disorders.</p>
          <p>Sexuality is a holistic concept encompassing sex, gender identity, orientation, eroticism, intimacy, and reproduction [<xref ref-type="bibr" rid="ref3">3</xref>]. It is influenced by physical, psychological, social, financial, cultural, legal, historical, and spiritual factors [<xref ref-type="bibr" rid="ref3">3</xref>]. Sexuality includes sexual expression. The central debate surrounding the rights of people with cognitive disabilities, who wish to express their sexuality, may affect the balance between harm reduction and free sexual expression [<xref ref-type="bibr" rid="ref4">4</xref>]. If a person living with a cognitive disability is proven to have a reduction in consensual capacity, the protection versus empowerment paradox may begin to emerge [<xref ref-type="bibr" rid="ref5">5</xref>,<xref ref-type="bibr" rid="ref6">6</xref>]. The legal, clinical, or ethical system needs to find a balance between the 2 competing interests; protect the person from sexual abuse, by restricting their sexual expression; or allow them to express their sexuality, but in limited capacity as a safety measure [<xref ref-type="bibr" rid="ref5">5</xref>]. An important factor affecting the resolution of the protection versus empowerment paradox is the degree to which an individual can demonstrate their capacity to consent in a sexual relationship.</p>
          <p>In the United States, the legal definition of consent is rooted in the 3 legal criteria of consent as reported by Stavis [<xref ref-type="bibr" rid="ref7">7</xref>] in 1991. A placeholder definition of consent requires that a person communicates a “knowing, intelligent, and voluntary agreement to engage in a given activity” [<xref ref-type="bibr" rid="ref8">8</xref>,<xref ref-type="bibr" rid="ref9">9</xref>]. Assessments that measure consensual ability for a sexual relationship are often based on a person being able to satisfy all three of the following criteria [<xref ref-type="bibr" rid="ref3">3</xref>,<xref ref-type="bibr" rid="ref7">7</xref>,<xref ref-type="bibr" rid="ref10">10</xref>,<xref ref-type="bibr" rid="ref11">11</xref>]:</p>
          <list list-type="order">
            <list-item>
              <p>Knowledge—recognition of the other person in the relationship, including who, what, where, and when and safety aspects of the sexual activity in question, such as the ability to identify body parts.</p>
            </list-item>
            <list-item>
              <p>Intelligence—also known as rationality or understanding, which includes awareness of potential risks (pros and cons) of sexual engagement, appropriateness, consequences, correct familiarity of partner identity, and the ability to discriminate among fantasy, reality, lies, and truth.</p>
            </list-item>
            <list-item>
              <p>Voluntariness—decisional capability to engage or refrain from sexual activity and the ability to take self-protective measures against abuse and exploitation or other unwanted advances. This includes the ability to say “no,” either verbally or nonverbally and the ability to remove oneself from the situation when either they or their partner indicates stopping sexual behavior.</p>
            </list-item>
          </list>
          <p>These 3 legal criteria of consent are quite controversial, because thresholds vary from basic to complex levels of acceptability, depending on differences in state laws [<xref ref-type="bibr" rid="ref12">12</xref>]. People with cognitive disabilities may be unable to fulfill requirements in one region of the United States, yet their ability to demonstrate consent could be acceptable in another region. Outside of the United States, consent definitions may differ among countries such as the United Kingdom, Australia, Ireland, and Canada. In Canada, criminal offenses, including those regarding consent, are governed by the <italic>Criminal Code</italic> [<xref ref-type="bibr" rid="ref13">13</xref>]. Criminal law powers are under the exclusive jurisdiction of the federal government; however, the fulfillment of these laws is often handled by provincial regulations (eg, dealing with sexual assault on university campuses) [<xref ref-type="bibr" rid="ref14">14</xref>]. The <italic>Criminal Code</italic> defines consent with a capacity element, which checks if an individual understands the nature of sexual activity, identity of those involved, and their ability to communicate the choice itself [<xref ref-type="bibr" rid="ref13">13</xref>].</p>
          <p>The capability of people to satisfy sexual consent criteria is often determined by either medical professionals or neuropsychological experts in the judicial system. Common paradoxes have emerged, owing to the philosophical arguments surrounding people’s ability to give consent. These paradoxes include whether people can demonstrate rudimentary versus contextual understanding of the sexual relationship [<xref ref-type="bibr" rid="ref15">15</xref>] and the degree of flexible versus inflexible behavioral allowances in such a relationship [<xref ref-type="bibr" rid="ref16">16</xref>]. Power dynamics, regarding those who are legally able to discern a person’s consensual ability, are met with arguments of feminism, ableism, and disability rights movements [<xref ref-type="bibr" rid="ref17">17</xref>,<xref ref-type="bibr" rid="ref18">18</xref>]. The 3 legal criteria of consent have been accused of failing to consider an individual’s values, culture, and life history [<xref ref-type="bibr" rid="ref10">10</xref>,<xref ref-type="bibr" rid="ref19">19</xref>]. Outside the United States, the United Kingdom and Wales follow the Mental Capacity Act 2005, which has its own criticisms. Although the Mental Capacity Act has similar themes to the 3 legal criteria of consent, it too is criticized because “its best-interests approach is paternalistic” [<xref ref-type="bibr" rid="ref20">20</xref>]. The Mental Capacity Act does not exactly guarantee the rights of an individual, instead only working <italic>if practicable to do so</italic> [<xref ref-type="bibr" rid="ref21">21</xref>]. Some experts argue that an individual’s sexual preference is a form of personal expression, not always systematic or organized, including the weighing of risks and benefits, unlike the 3 legal criteria of consent by the medical and judicial systems in the United States [<xref ref-type="bibr" rid="ref10">10</xref>,<xref ref-type="bibr" rid="ref19">19</xref>]. Consent capacity is considered a state instead of a trait, meaning it is expected to change over time [<xref ref-type="bibr" rid="ref11">11</xref>], and it must be determined in the present moment: not a decision made ahead of time [<xref ref-type="bibr" rid="ref22">22</xref>]. Assessments of a person’s ability to demonstrate capacity in 1 or all 3 prongs of consent can be determined by questionnaires such as the Mini-Mental Status Exam (MMSE) to determine rationality or the Tool for the Assessment of Levels of Knowledge Sexuality and Consent [<xref ref-type="bibr" rid="ref11">11</xref>]. However, the use of these assessments is controversial because of the following:</p>
          <list list-type="order">
            <list-item>
              <p>Rudimentary requirements that check for consent capacity may fail to understand the contextual reason to <italic>why</italic> a person with a cognitive disability may wish to consent to sex [<xref ref-type="bibr" rid="ref18">18</xref>].</p>
            </list-item>
            <list-item>
              <p>Complex knowledge of consent may have assessments and protocols that are too difficult for even the general population to pass [<xref ref-type="bibr" rid="ref23">23</xref>].</p>
            </list-item>
            <list-item>
              <p>The <italic>Ice Cream Reference</italic>—a person with a cognitive disability is expected to follow a rigid medicalized or judicial process in order demonstrate their consent capacity; however, decisions about sexual relationships are arguably more related to selecting a flavor of ice cream than, say, a life-or-death surgical treatment [<xref ref-type="bibr" rid="ref24">24</xref>].</p>
            </list-item>
            <list-item>
              <p>Assessments of consent capacity often place the burden of proof on the person with a cognitive disability rather than putting the onus on others to prove otherwise. Having individuals provide predetermined comfort with various levels of intimacy carries an unfair standard, because even the general population may not know what levels of intimacy they are comfortable with before engaging in such behaviors [<xref ref-type="bibr" rid="ref4">4</xref>].</p>
            </list-item>
          </list>
          <p>There is no clear definition, criteria, or standard for determining a person’s sexual consent capacity [<xref ref-type="bibr" rid="ref5">5</xref>,<xref ref-type="bibr" rid="ref9">9</xref>].</p>
        </sec>
        <sec>
          <title>Human Rights and Sexual Abuse</title>
          <p>In the late 1960s, the United States Supreme Court declared constitutional rights for people with cognitive disabilities, who were cared for under the powers of the state governments. These constitutional rights were created to protect vulnerable people from harm related to sexual exploitation and abuse, while also upholding their rights to sexual expression. These rights include several categories, including those related to family matters [<xref ref-type="bibr" rid="ref7">7</xref>] and sexual self-determination [<xref ref-type="bibr" rid="ref4">4</xref>]. Although it may seem obvious that people have default rights to privacy, sexuality education, and freedom of choice for sexual expression [<xref ref-type="bibr" rid="ref3">3</xref>,<xref ref-type="bibr" rid="ref25">25</xref>], these rights can be restricted by either informal or formal control systems. Informal control systems such as civil liability [<xref ref-type="bibr" rid="ref26">26</xref>], immutable family policy [<xref ref-type="bibr" rid="ref22">22</xref>], and residential policy [<xref ref-type="bibr" rid="ref4">4</xref>,<xref ref-type="bibr" rid="ref27">27</xref>,<xref ref-type="bibr" rid="ref28">28</xref>] may interfere with a resident’s rights to sexual expression, whereas restrictions from formal control systems may be decided by clinical, ethical, and legal issues [<xref ref-type="bibr" rid="ref26">26</xref>]. The central reason to why these systems may restrict a person’s right to sexual expression is based on the theme of consent [<xref ref-type="bibr" rid="ref1">1</xref>,<xref ref-type="bibr" rid="ref15">15</xref>,<xref ref-type="bibr" rid="ref18">18</xref>,<xref ref-type="bibr" rid="ref29">29</xref>]. New York Penal Law Section 130 states that a lack of consent is an element of every conceivable sexual offense, as written in the article, and adults in a sexual relationship must all be consenting [<xref ref-type="bibr" rid="ref30">30</xref>]. Since 2012, the United Nations has moved toward an equalization stance on the sexual rights of people living with cognitive disabilities. Article 12 of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) states that people with cognitive disabilities reserve equal rights to legal capacity as all other people within all aspects of their lives, including the rights to intimate relationships [<xref ref-type="bibr" rid="ref31">31</xref>]. Canada has accepted and ratified Article 12; however, with reservation, resulting in continued use of substitute decision makers (SDMs) to assist those living with cognitive disabilities in Canada [<xref ref-type="bibr" rid="ref32">32</xref>]. The United States has been hesitant to fully accept and ratify the UNCRPD statement on the rights of people with disabilities [<xref ref-type="bibr" rid="ref33">33</xref>]. It is important for legal systems to establish the components of human rights, because this increases the awareness of any potential violations.</p>
          <p>Sexual abuse occurs when one person forcefully or covertly performs nonconsensual sexual acts, including touching, kissing, oral sex, and anal or vaginal intercourse [<xref ref-type="bibr" rid="ref3">3</xref>,<xref ref-type="bibr" rid="ref34">34</xref>]. Sexual abuse may also involve threatening, coercing, tricking, or manipulating another person into unwanted sexual contact or into such contact in which the other person does not have the capacity to consent [<xref ref-type="bibr" rid="ref11">11</xref>]. According to the <italic>Criminal Code</italic> of Canada<italic>,</italic> an alleged case of sexual assault requires a juridical system to check if people take reasonable steps to ascertain consent [<xref ref-type="bibr" rid="ref13">13</xref>]. Other elements are also checked for, such as the presence of physical force, threats, underaged individuals, fraud, sexual intentions and motivations, recklessness, incapacitation, and chemical impairment and those in positions of authority or trust [<xref ref-type="bibr" rid="ref13">13</xref>].</p>
          <p>People with cognitive disabilities have a greater risk of being sexually abused [<xref ref-type="bibr" rid="ref3">3</xref>,<xref ref-type="bibr" rid="ref25">25</xref>]. Although the statistics on sexual abuse are difficult to determine, one report predicts that 39% to 68% of female children and 16% to 30% of male children with cognitive disabilities will be sexually abused before they are aged 18 years in North America [<xref ref-type="bibr" rid="ref35">35</xref>,<xref ref-type="bibr" rid="ref36">36</xref>]. After interviewing over 40,000 abused victims in Israel, including children up to the age of 14 years and ranging from minor to severe cognitive disabilities, the incidence of sexual abuse was found to be consistent with the previously stated percentages [<xref ref-type="bibr" rid="ref37">37</xref>]. A survey of over 5000 adult women living with cognitive disabilities in North Carolina reported that 48% of sexual assaults were committed by people who were currently or previously in an intimate relationship [<xref ref-type="bibr" rid="ref38">38</xref>]. A 15-year longitudinal study in Ireland determined the following statistics after 118 proven and confirmed episodes of sexual abuse [<xref ref-type="bibr" rid="ref39">39</xref>]:</p>
          <list list-type="order">
            <list-item>
              <p>Most of the perpetrators were men.</p>
            </list-item>
            <list-item>
              <p>A percentage (n=66) of the perpetrators had a cognitive disability.</p>
            </list-item>
            <list-item>
              <p>In all, 24% (n=28) of the perpetrators were relatives.</p>
            </list-item>
            <list-item>
              <p>In all, 9% (n=11) of the perpetrators were agency staff members.</p>
            </list-item>
            <list-item>
              <p>In all, 8% (n=9) of the perpetrators were familiar people.</p>
            </list-item>
            <list-item>
              <p>The remaining perpetrators were either volunteers, strangers, or unknown.</p>
            </list-item>
          </list>
        </sec>
        <sec>
          <title>Society Attitudes on the Sexuality of People With Cognitive Disabilities</title>
          <p>The <italic>zeitgeist</italic> to uphold and safeguard the sexual rights of persons with cognitive disabilities may differ from past ideals, which were weighted toward the protective sides of the protection versus empowerment paradox [<xref ref-type="bibr" rid="ref5">5</xref>,<xref ref-type="bibr" rid="ref40">40</xref>]. Societal views on the amount and types of sexual expression that people with cognitive disabilities were expected to experience were driven by moral aesthetics, which are beliefs and morals that affect the general public’s preference to accept certain behaviors while rejecting others. Thus, people with cognitive disabilities were historically denied the right to express their sexuality, because society may have considered them to be the following:</p>
          <list list-type="order">
            <list-item>
              <p>Hypersexual—<italic>oversexed</italic> people who were often seen as a threat to the gene pool and general public, owing to their excessive sexual behavior [<xref ref-type="bibr" rid="ref8">8</xref>,<xref ref-type="bibr" rid="ref11">11</xref>]. These people may have been identified as having <italic>super human strength</italic> sex drives [<xref ref-type="bibr" rid="ref18">18</xref>]. Reported cases of older adults living with dementia may repeatedly approach partners for sex, after forgetting they had sex earlier [<xref ref-type="bibr" rid="ref41">41</xref>]. An emerging tendency toward public masturbation is a potential problem for older adults living with dementia [<xref ref-type="bibr" rid="ref41">41</xref>]. Child masturbation can also be a common form of childhood sexual behavior, which is considered <italic>developmentally normal</italic>, unless inappropriate owing to public occurrence, excessiveness, or when the behavior causes injury [<xref ref-type="bibr" rid="ref42">42</xref>-<xref ref-type="bibr" rid="ref44">44</xref>].</p>
            </list-item>
            <list-item>
              <p>Asexual—<italic>eternal children</italic> were often seen as potential sexual victims who were deemed to have a major difference in their chronological and mental ages [<xref ref-type="bibr" rid="ref45">45</xref>] and assumed to not necessarily want sexual relationships or need sexuality education, because it may incite increased interest in the activity or the risk of abuse [<xref ref-type="bibr" rid="ref3">3</xref>,<xref ref-type="bibr" rid="ref18">18</xref>,<xref ref-type="bibr" rid="ref46">46</xref>]. Therefore, some policies thought better to keep <italic>Pandora’s box closed</italic> to reduce these risks, which actually increased the vulnerability of these people, due to the lack of education about those who might exploit them in the first place [<xref ref-type="bibr" rid="ref25">25</xref>,<xref ref-type="bibr" rid="ref47">47</xref>]. <italic>Pillow Angels</italic> are defined as people with cognitive disabilities who were thought to be incapable, or should be made incapable, of becoming adults and were removed from sexual relationships to be spared the dangers of sexuality, such as pregnancy and sexual exploitation [<xref ref-type="bibr" rid="ref48">48</xref>,<xref ref-type="bibr" rid="ref49">49</xref>].</p>
            </list-item>
            <list-item>
              <p>Deviant—in the last 20 years of research on the well-being of people who are lesbian, gay, bisexual, transgender, or queer (LGBTQ), there is evidence of victimization among such sexual and gender minorities in both youth and adults [<xref ref-type="bibr" rid="ref50">50</xref>]. Although initial perceptions of the North American society show a more open and tolerant view of the LGBTQ community, victimization rates and disparities have worsened since the 1990s [<xref ref-type="bibr" rid="ref50">50</xref>-<xref ref-type="bibr" rid="ref53">53</xref>]. LGBTQ older adults, living with cognitive disabilities, are often met with <italic>pervasive stigma</italic> by staff in long-term care (LTC) facilities, who have reported to feel disgust or panic, sometimes resorting to denial of such residents’ sexuality [<xref ref-type="bibr" rid="ref22">22</xref>,<xref ref-type="bibr" rid="ref29">29</xref>,<xref ref-type="bibr" rid="ref54">54</xref>,<xref ref-type="bibr" rid="ref55">55</xref>].</p>
            </list-item>
          </list>
          <p>The moral aesthetic to control how people with cognitive disabilities express their sexuality are bound to clinical, ethical, and legal issues [<xref ref-type="bibr" rid="ref26">26</xref>]. There is a potential overlap among these issues.</p>
          <p>Social acceptability struggles to find a balance between sexual acts that are safe versus unsafe, normal versus deviant, and legal versus illegal and what role sexual functioning has in the first place [<xref ref-type="bibr" rid="ref34">34</xref>].</p>
          <p>Clinical policies in a LTC facility could be undeveloped or inconsistent with those living with cognitive disabilities and their sexual expression, resulting in the facility facing repercussions if sexual expression is allowed to continue [<xref ref-type="bibr" rid="ref26">26</xref>,<xref ref-type="bibr" rid="ref56">56</xref>]. LTC facilities for people with cognitive disabilities default to a <italic>protective care paradigm</italic>, with staff and family members restricting such residents from sexually expressing their behaviors to reduce the risk of potential sexual abuse [<xref ref-type="bibr" rid="ref29">29</xref>]. The result is that such residents may resort to <italic>opportunistic moments of privacy to act on their sexual desire</italic> [<xref ref-type="bibr" rid="ref48">48</xref>,<xref ref-type="bibr" rid="ref57">57</xref>], which may lead to unsafe sexual behaviors [<xref ref-type="bibr" rid="ref56">56</xref>,<xref ref-type="bibr" rid="ref58">58</xref>]. Alternatively, they could be affected by iatrogenic loneliness, which is a type of loneliness created by extensive long-term residence policies that prevent them from having privacy and intimacy, resulting in feelings of frustration and unhappiness [<xref ref-type="bibr" rid="ref28">28</xref>,<xref ref-type="bibr" rid="ref59">59</xref>]. LTC staff views on sexual expression differ according to the experience levels of staff members, with frontline staff being more accepting of such behaviors than the managers; however, gay residents are more likely to be restricted to such behaviors in general [<xref ref-type="bibr" rid="ref29">29</xref>]. Ethical views, independent of those with cognitive disabilities, include moral and religious beliefs that others enforce regarding sexual behavior [<xref ref-type="bibr" rid="ref26">26</xref>]. In theory, a LTC facility must support such a resident’s rights to sexual autonomy; however, this obligation is abandoned once the administration, facility staff, or individual’s family members oppose the behavior [<xref ref-type="bibr" rid="ref4">4</xref>,<xref ref-type="bibr" rid="ref22">22</xref>]. Fear of legal repercussions and public ridicule are potential reasons why such people’s sexual interests are downplayed or avoided by family, caregivers, or long-term facility staff [<xref ref-type="bibr" rid="ref23">23</xref>]. Overall, the community is capable of supporting the sexuality of people with cognitive disabilities, upholding attitudes of community inclusion and opportunity; however, personal belief systems are affected by societal attitudes and are what prevent caregivers from providing experiential guidance [<xref ref-type="bibr" rid="ref34">34</xref>,<xref ref-type="bibr" rid="ref60">60</xref>]. Negative attitudes, such as the eugenics movement, were perhaps too difficult for North American society to discard entirely [<xref ref-type="bibr" rid="ref48">48</xref>,<xref ref-type="bibr" rid="ref61">61</xref>]. Thus, society <italic>morphed</italic> them to the new era, resulting in <italic>new-genics</italic> or <italic>neogenics</italic> [<xref ref-type="bibr" rid="ref62">62</xref>]. The intention of determining a person’s capacity to consent to sex has remained a <italic>plague</italic> in the societal attitude to desexualize people with cognitive disabilities, under the moral esthetic to either protect such individuals from themselves or to protect the world from them [<xref ref-type="bibr" rid="ref63">63</xref>].</p>
        </sec>
        <sec>
          <title>Sterilization and Eugenics</title>
          <p>Sterilization is the process of inhibiting a person’s reproductive ability. It inflicts physical and moral injuries to those who do not consent to it [<xref ref-type="bibr" rid="ref21">21</xref>,<xref ref-type="bibr" rid="ref64">64</xref>]. The eugenics movement of the late 19th century led to an increase in nonconsensual sterilization practices, sometimes with the use of deception [<xref ref-type="bibr" rid="ref21">21</xref>]. Eugenicists believed that the human race could be improved by practicing either positive or negative eugenics, which either encouraged the selective breeding of those with desirable traits or the prevention of <italic>defectives</italic> from having offspring [<xref ref-type="bibr" rid="ref65">65</xref>]. In the early 1960s, 28 US states had sterilization protocols, some made compulsory and executed upon people with cognitive disabilities, without their consent [<xref ref-type="bibr" rid="ref3">3</xref>].</p>
          <p>The justification for sterilization was often influenced by the eugenics movement, which believed that <italic>feebleminded</italic> people would reduce the overall intelligence of the population, especially if they were allowed to reproduce [<xref ref-type="bibr" rid="ref21">21</xref>]. It was believed that people with cognitive disabilities would threaten the <italic>heritage of intelligence</italic> [<xref ref-type="bibr" rid="ref40">40</xref>,<xref ref-type="bibr" rid="ref66">66</xref>,<xref ref-type="bibr" rid="ref67">67</xref>]. In actuality, the eugenics idea to use selective breeding to control for inherited psychological traits was proven to be false [<xref ref-type="bibr" rid="ref21">21</xref>,<xref ref-type="bibr" rid="ref68">68</xref>]. Feeblemindedness was previously used as a <italic>conveniently vague grouping</italic>, used to classify those who were outside the obvious diagnostic labels such as schizophrenia [<xref ref-type="bibr" rid="ref21">21</xref>]. Some countries sterilized those diagnosed as <italic>feebleminded</italic>; however, it was later realized that many of these people were actually affected by a lack of education [<xref ref-type="bibr" rid="ref21">21</xref>]. In a report from India that surveyed nearly 20,000 women, higher levels of education increased the likelihood of modern contraceptive use over sterilization; however, the degree of cultural, socioeconomic, educational, and accessibility to modern contraceptives had a profound effect on choice [<xref ref-type="bibr" rid="ref69">69</xref>]. In India, sterilization was more common in women living in low socioeconomic classes, especially in socially disadvantaged women with low education levels [<xref ref-type="bibr" rid="ref69">69</xref>]. Sterilization was sometimes ordered because of the protection versus empowerment paradox. Some systems believed that women with cognitive disabilities would fail to provide adequate care for any children they would have; thus, these potential mothers were prevented from leaving their institutions unless they agreed to become sterilized [<xref ref-type="bibr" rid="ref70">70</xref>]. With the exception of reducing pregnancy and reducing bodily fluids, sterilization of people with cognitive disabilities was found to be ineffective in achieving any of its goals [<xref ref-type="bibr" rid="ref71">71</xref>,<xref ref-type="bibr" rid="ref72">72</xref>]. There is limited evidence available to support sterilization for the management of menstruation, with some experts agreeing that cases involving clinical control of menstrual bleeding are better handled by long-term contraceptive injections [<xref ref-type="bibr" rid="ref73">73</xref>].</p>
          <p>There have been major changes in legislation regarding the practice of nontherapeutic sterilization [<xref ref-type="bibr" rid="ref21">21</xref>]. In Canada, a major case occurred in 1986. This <italic>E (Mrs) versus Eve</italic> case argued that court-ordered sterilization of people, living with cognitive disabilities, would be an infraction against their rights. The mother requested sterilization of her daughter, Eve, aged 24 years, to avoid the risk of pregnancy. After a contentious appeal, the request was denied. The Supreme Court of Canada ruled in favor of Eve, due to a lack of evidence suggesting that forgoing sterilization would have a detrimental effect on physical or mental health in Eve [<xref ref-type="bibr" rid="ref74">74</xref>]. The choice to allow nontherapeutic sterilization of people with cognitive disabilities, in which a procedure would leave a person sterile despite having no life-threatening condition to begin with, was deemed a choice the courts could not safely exercise [<xref ref-type="bibr" rid="ref21">21</xref>,<xref ref-type="bibr" rid="ref74">74</xref>]. Later reports have claimed that some countries have implemented human rights protection to prevent nonconsensual sterilization practices; however, some countries have no such safeguards in place [<xref ref-type="bibr" rid="ref21">21</xref>]. The following references contain additional information pertaining to the statistics and country policy on sterilization: Stein and Tepper [<xref ref-type="bibr" rid="ref3">3</xref>], Rowlands and Amy [<xref ref-type="bibr" rid="ref21">21</xref>], Braun et al [<xref ref-type="bibr" rid="ref64">64</xref>], Tilley et al [<xref ref-type="bibr" rid="ref70">70</xref>], Shea and Kevles [<xref ref-type="bibr" rid="ref75">75</xref>], and Park and Radford [<xref ref-type="bibr" rid="ref76">76</xref>].</p>
        </sec>
        <sec>
          <title>Benefits of Healthy Sexual Expression</title>
          <p>There are psychological and physical benefits of safe sexual expression. Improved self-esteem, cognitive functioning, social relationships, mood, and feelings of independence have been reported as potential benefits [<xref ref-type="bibr" rid="ref77">77</xref>,<xref ref-type="bibr" rid="ref78">78</xref>]. Sexual expression may reduce the risk of cancer and cardiovascular disease [<xref ref-type="bibr" rid="ref77">77</xref>]. There are associations between sexual expression and weight loss, reduced risk of heart disease and stroke, and bolstered immune systems [<xref ref-type="bibr" rid="ref79">79</xref>]. For older adults with cognitive disabilities, sexual expression has been reported to reduce sensitivity to pain, improve cardiovascular health, reduce the likelihood of depression and loneliness, and improve overall well-being [<xref ref-type="bibr" rid="ref80">80</xref>]. Sexuality is <italic>central to an individual’s health and well-being</italic> [<xref ref-type="bibr" rid="ref4">4</xref>].</p>
        </sec>
      </sec>
      <sec>
        <title>Aim of This Review</title>
        <p>This review aims to uncover the used approaches of clinical, legal, and residential systems to determine and manage the sexual consent abilities of people with cognitive disabilities. Recurring themes influencing the shape of these approaches were also identified. Specific audiences for this review include human ecologists, sexuality experts and therapists, forensic neuropsychologists, occupational therapists, sexual educators, health care professionals, service providers, and caregivers.</p>
      </sec>
      <sec>
        <title>Objectives</title>
        <p>The objectives of this review are as follows:</p>
        <list list-type="order">
          <list-item>
            <p>Identify approaches used to determine sexual consent ability in people with cognitive disabilities.</p>
          </list-item>
          <list-item>
            <p>Identify means of managing and enhancing sexual consent ability in people with cognitive disabilities.</p>
          </list-item>
          <list-item>
            <p>Note the recurring themes affecting how such approaches and management systems are designed and implemented.</p>
          </list-item>
        </list>
      </sec>
    </sec>
    <sec sec-type="methods">
      <title>Methods</title>
      <sec>
        <title>Research Question</title>
        <p>This report presents a systematic review of the literature, based on consultation with human ecology and rehabilitation medicine experts, to create the following research question: What are the approaches for determining, managing, and improving sexual consent ability in people with cognitive disabilities?</p>
      </sec>
      <sec>
        <title>Search Strategy</title>
        <p>After discussing the research question with a university librarian, the following bibliographic databases were searched: EBSCOhost (abstracts in Social Gerontology, CINAHL Plus, MEDLINE, and SocINDEX), Embase, PsyInfo, and Scopus. The search strategy included a combination of subject headings and keywords to combine the concepts of consent in sexuality and cognitive disability. <xref ref-type="boxed-text" rid="box1">Textbox 1</xref> lists the inclusion and exclusion standards for each article. The full search strategy is provided in <xref ref-type="supplementary-material" rid="app1">Multimedia Appendix 1</xref>.</p>
        <p>A total of 2 researchers performed the screening process for each article (BJC and recruited researcher, Lyndsay Pinder). Differences among the researchers in terms of accepted and rejected articles were resolved through discussion. All articles indicating topics of sexuality and consent within their titles or abstracts were reserved to complete the first pass of the search process (BJC and Lyndsay Pinder). For the second pass, all reserved reports from the first pass had their full texts screened to confirm the context of the subject (BJC, SE, and Lyndsay Pinder). The methodological quality of the reports featuring experimentation was not formally assessed. There were no data limits.</p>
        <boxed-text id="box1" position="float">
          <title>Search criteria and terms.</title>
          <p>
            <bold>Inclusion criteria</bold>
          </p>
          <list list-type="bullet">
            <list-item>
              <p>Article stated a topic, discussion, or approach to determine the consent capacity of people with cognitive disabilities.</p>
            </list-item>
            <list-item>
              <p>All articles featuring qualitative, quantitative, legal, descriptive, and review reports were accepted.</p>
            </list-item>
            <list-item>
              <p>Reports were accepted in all languages and in article, dissertation thesis, review, or book format.</p>
            </list-item>
          </list>
          <p>
            <bold>Exclusion criteria</bold>
          </p>
          <list list-type="bullet">
            <list-item>
              <p>Topic was about physical disability or did not indicate a potential compromise in a person’s consensual ability.</p>
            </list-item>
            <list-item>
              <p>The article briefly mentioned</p>
              <p>consent to sexuality</p>
              <p>or a similar phrase; however, further details were not provided.</p>
            </list-item>
            <list-item>
              <p>Conference papers, public opinions and non–peer-reviewed articles.</p>
            </list-item>
          </list>
          <p>
            <bold>Search terms used</bold>
          </p>
          <list list-type="bullet">
            <list-item>
              <p>([sex* or intima*] adj10 [consent or consensual]) AND ([(intellectual* or mental* or cognitive*) adj4 (impair* or disab* or deficit*)] or long term care or longterm-care or nursing home* or alzheimer* or dementia or autis* or Down* Syndrome).</p>
            </list-item>
            <list-item>
              <p>These terms were entered into the databases mapped to the following fields: title, abstract, subject heading word, and keyword heading word.</p>
            </list-item>
          </list>
        </boxed-text>
      </sec>
      <sec>
        <title>Search Results</title>
        <p>The search resulted in 439 articles being identified, of which 2 (0.5%) articles were recommended for inclusion in the peer-review process [<xref ref-type="bibr" rid="ref12">12</xref>,<xref ref-type="bibr" rid="ref81">81</xref>]. After the first pass, 22.1% (97/439) articles remained after the titles and abstracts were screened, and 26.2% (115/439) duplicates were removed. During the second screening pass, the full texts of 97 articles were screened to confirm eligibility (<xref rid="figure1" ref-type="fig">Figure 1</xref>). This resulted in a net total of 10.7% (47/439) articles being included in this review.</p>
        <fig id="figure1" position="float">
          <label>Figure 1</label>
          <caption>
            <p>PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) flow diagram of search results [<xref ref-type="bibr" rid="ref82">82</xref>].</p>
          </caption>
          <graphic xlink:href="ijmr_v11i1e28137_fig1.png" alt-version="no" mimetype="image" position="float" xlink:type="simple"/>
        </fig>
      </sec>
    </sec>
    <sec sec-type="results">
      <title>Results</title>
      <sec>
        <title>Overview</title>
        <p>The 47 reports included in this review featured assessment practices, legal case studies, and clinical standards for managing sexual consent capacity in people with cognitive disabilities. Most reports were in the form of expert opinions (36/47, 77%). There were 8 studies (5/8, 63% qualitative and 3/8, 38% quantitative) included in this study. The qualitative studies included the following:</p>
        <list list-type="order">
          <list-item>
            <p>A survey with vignettes to check the ability of residential facility staff to properly identify safe or unsafe sexual behaviors (nonconsensual sexual behavior) in people with cognitive disabilities and respond accordingly [<xref ref-type="bibr" rid="ref34">34</xref>].</p>
          </list-item>
          <list-item>
            <p>A survey of members of the American Psychological Association to determine which criteria were considered the most important when determining sexual consent capacity in people with cognitive disabilities [<xref ref-type="bibr" rid="ref9">9</xref>].</p>
          </list-item>
          <list-item>
            <p>A survey to determine factors that increase the risk of SDMs to decide an <italic>all-or-none</italic> outcome for a person’s sexual autonomy [<xref ref-type="bibr" rid="ref83">83</xref>].</p>
          </list-item>
          <list-item>
            <p>Semistructured interviews in residential mental health treatment facilities to determine what conceptualizes consent to sexual expression from the point of view of administrators, clinical staff, and former clients [<xref ref-type="bibr" rid="ref84">84</xref>].</p>
          </list-item>
          <list-item>
            <p>Semistructured interviews with directors of nursing to identify challenges in managing sexual expression [<xref ref-type="bibr" rid="ref85">85</xref>].</p>
          </list-item>
        </list>
        <p>Quantitative studies focused on educational interventions for the improvement of sexual consent ability in people with cognitive disabilities [<xref ref-type="bibr" rid="ref40">40</xref>,<xref ref-type="bibr" rid="ref86">86</xref>]; 1 study performed a validity measure to compare neuropsychological tests with the Sexual Consent and Education Assessment [<xref ref-type="bibr" rid="ref45">45</xref>]. A total of 4 reports were dedicated to introducing a theme, which would later influence the approaches used to manage or enhance the sexual consent capacity of people with cognitive disabilities. <xref ref-type="table" rid="table1">Table 1</xref> provides a summary of each theme, and <xref ref-type="table" rid="table2">Table 2</xref> provides a brief description of each approach. The 2 approaches for determining or managing consent were peripheral to these themes [<xref ref-type="bibr" rid="ref12">12</xref>,<xref ref-type="bibr" rid="ref81">81</xref>]. For more information about the research studies, refer to <xref ref-type="table" rid="table3">Table 3</xref>.</p>
        <table-wrap position="float" id="table1">
          <label>Table 1</label>
          <caption>
            <p>Themes affecting the approaches for determining sexual consent capacity in people with cognitive disabilities.</p>
          </caption>
          <table width="1000" cellpadding="5" cellspacing="0" border="1" rules="groups" frame="hsides">
            <col width="130"/>
            <col width="770"/>
            <col width="100"/>
            <thead>
              <tr valign="bottom">
                <td>Theme</td>
                <td>Key components</td>
                <td>References</td>
              </tr>
            </thead>
            <tbody>
              <tr valign="top">
                <td>Lichtenberg and Strzepek Instrument</td>
                <td>Interdisciplinary characteristics. Client is assessed (MMSE<sup>a</sup>), followed by a same-sex interview to determine these three main criteria:<break/><list list-type="bullet"><list-item><p>Awareness of the relationship—patient aware of intent, partner identity, and intimacy comfort level.</p></list-item><list-item><p>Ability to avoid exploitation—patient behavior consistent with former beliefs and able to say no.</p></list-item><list-item><p>Awareness of potential risks—consequences of relationship and awareness of relationship duration.</p></list-item><list-item><p>Interview relayed to interdisciplinary team (nurses, occupational therapists, psychiatrists, etc).</p></list-item></list></td>
                <td>[<xref ref-type="bibr" rid="ref22">22</xref>,<xref ref-type="bibr" rid="ref87">87</xref>-<xref ref-type="bibr" rid="ref89">89</xref>]</td>
              </tr>
              <tr valign="top">
                <td>3 legal criteria of consent</td>
                <td>Legal characteristics; client is required to demonstrate ability in the following:<break/><list list-type="bullet"><list-item><p>Knowledge—basic recognition of the other person, relationship, and sexual activity in question.</p></list-item><list-item><p>Intelligence—(rationality and understanding) aware of potential risks in the sexual relationship.</p></list-item><list-item><p>Voluntariness—ability to resist or stop the sexual activity and identify willingness to continue.</p></list-item></list></td>
                <td>[<xref ref-type="bibr" rid="ref3">3</xref>,<xref ref-type="bibr" rid="ref5">5</xref>-<xref ref-type="bibr" rid="ref7">7</xref>,<xref ref-type="bibr" rid="ref9">9</xref>, <xref ref-type="bibr" rid="ref10">10</xref>, <xref ref-type="bibr" rid="ref19">19</xref>, <xref ref-type="bibr" rid="ref26">26</xref>, <xref ref-type="bibr" rid="ref40">40</xref>, <xref ref-type="bibr" rid="ref89">89</xref>-<xref ref-type="bibr" rid="ref93">93</xref>]</td>
              </tr>
              <tr valign="top">
                <td>Ames and Samowitz instrument</td>
                <td>Legal and clinical characteristics based on 3 legal criteria of consent; has 2 categories, A and B; consent determined by communication and behavior. Category B determines client consent ability based on their behavior showing the following:<break/><list list-type="bullet"><list-item><p>Voluntariness.</p></list-item><list-item><p>Safety and avoidance of harm.</p></list-item><list-item><p>No exploitation.</p></list-item><list-item><p>No abuse.</p></list-item><list-item><p>Ability to say no.</p></list-item><list-item><p>Socially appropriate time and place.</p></list-item></list></td>
                <td>[<xref ref-type="bibr" rid="ref5">5</xref>,<xref ref-type="bibr" rid="ref6">6</xref>,<xref ref-type="bibr" rid="ref28">28</xref>,<xref ref-type="bibr" rid="ref94">94</xref>]</td>
              </tr>
              <tr valign="top">
                <td>Mental Capacity Act 2005</td>
                <td>Legal characteristics; based in England and Wales; section 1 of the Act assumes the people have capacity to consent unless proven otherwise; knowledge and resources to aid the person’s decisions are encouraged; Includes rules for SDMs<sup>b</sup>.<break/>Consent requires the person to understand the following:<break/><list list-type="bullet"><list-item><p>Is there understanding of the decision that needs to be made and why?</p></list-item><list-item><p>Does the individual understand the probable consequences when making the decision?</p></list-item><list-item><p>Is the individual capable of understanding, remembering, deliberating, and using information that pertains to the decision?</p></list-item><list-item><p>Is the individual able to communicate his or her decision in any way?</p></list-item></list></td>
                <td>[<xref ref-type="bibr" rid="ref66">66</xref>,<xref ref-type="bibr" rid="ref95">95</xref>-<xref ref-type="bibr" rid="ref97">97</xref>]</td>
              </tr>
              <tr valign="top">
                <td>Lyden approach</td>
                <td>Legal and clinical characteristics; endorses the 3 legal criteria of consent; encourages person-centered and integrated approaches; has important points for individualizing the assessment process, especially for communication.<break/>Has three general methods for determining the consent ability of a person with a cognitive disability, including the following:<break/><list list-type="bullet"><list-item><p>Review the relevant records (including info on reproductive ability and other disabilities).</p></list-item><list-item><p>Create discussions, including those who know or work with the person being assessed.</p></list-item><list-item><p>Conduct a personal interview to determine knowledge and voluntariness, supplemented with a mental status evaluation.</p></list-item></list></td>
                <td>[<xref ref-type="bibr" rid="ref5">5</xref>,<xref ref-type="bibr" rid="ref26">26</xref>,<xref ref-type="bibr" rid="ref89">89</xref>,<xref ref-type="bibr" rid="ref92">92</xref>]</td>
              </tr>
              <tr valign="top">
                <td>ABA/APA<sup>c</sup> model</td>
                <td>Legal and clinical characteristics; based on 3 legal criteria of consent, Lyden approach and Lichtenberg and Strzepek Instrument; expands on above models to include steps on how to enhance consent capacity and form comprehensive neuropsychological testing components; recommends LTC<sup>d</sup> facilities to develop policies and procedures for sexual relations that are consistent with state statutes.</td>
                <td>[<xref ref-type="bibr" rid="ref10">10</xref>,<xref ref-type="bibr" rid="ref22">22</xref>,<xref ref-type="bibr" rid="ref26">26</xref>,<xref ref-type="bibr" rid="ref88">88</xref>]</td>
              </tr>
              <tr valign="top">
                <td>Vancouver Coastal Health Authority 2009</td>
                <td>Clinical characteristics; downloadable manual. Provides recommendations for homecare staff and nurses such as the following:<break/><list list-type="bullet"><list-item><p>Respect the rights of persons with the capacity to consent to sexual activity.</p></list-item><list-item><p>Do not reveal confidential specifics about the person’s sexual activity to those not directly involved in their care (including family members), without the person’s expressed consent, if the person has capacity.</p></list-item><list-item><p>Remember that people who do not have capacity to consent to sex are still sexual beings with intimacy needs.</p></list-item><list-item><p>Remember that not every person is heterosexual.</p></list-item><list-item><p>Address one’s own attitudes and behavior toward older adults and general sexuality.</p></list-item></list></td>
                <td>[<xref ref-type="bibr" rid="ref16">16</xref>,<xref ref-type="bibr" rid="ref98">98</xref>]</td>
              </tr>
            </tbody>
          </table>
          <table-wrap-foot>
            <fn id="table1fn1">
              <p><sup>a</sup>MMSE: Mini-Mental State Exam.</p>
            </fn>
            <fn id="table1fn2">
              <p><sup>b</sup>SDM: substitute decision maker.</p>
            </fn>
            <fn id="table1fn3">
              <p><sup>c</sup>ABA/APA: American Bar Association and American Psychological Association.</p>
            </fn>
            <fn id="table1fn4">
              <p><sup>d</sup>LTC: long-term care.</p>
            </fn>
          </table-wrap-foot>
        </table-wrap>
        <table-wrap position="float" id="table2">
          <label>Table 2</label>
          <caption>
            <p>The approaches used to determine and manage sexual consent abilities for people with cognitive disabilities.</p>
          </caption>
          <table width="1000" cellpadding="5" cellspacing="0" border="1" rules="groups" frame="hsides">
            <col width="30"/>
            <col width="30"/>
            <col width="30"/>
            <col width="710"/>
            <col width="0"/>
            <col width="200"/>
            <thead>
              <tr valign="top">
                <td colspan="5">Approach, type, and details</td>
                <td>References</td>
              </tr>
            </thead>
            <tbody>
              <tr valign="top">
                <td colspan="6">
                  <bold>Advance directive</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td colspan="5">
                  <bold>Managing consent</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Older adults with cognitive disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td><italic>Living wills</italic> for the continuation or startup of relationships in advance.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref99">99</xref>,<xref ref-type="bibr" rid="ref100">100</xref>]</td>
              </tr>
              <tr valign="top">
                <td colspan="6">
                  <bold>Integrated approach</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td colspan="5">
                  <bold>Determining consent</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Cognitive disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>I-team<sup>a</sup> discussion, client assessments, enforcing client rights and education.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref88">88</xref>,<xref ref-type="bibr" rid="ref92">92</xref>,<xref ref-type="bibr" rid="ref97">97</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Reduce <italic>all-or-none</italic> SDM<sup>b</sup> decision outcomes on client rights.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref83">83</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Older adults with cognitive disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>I-team, person-centered, interval checkups, and review policy with SDM.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref89">89</xref>,<xref ref-type="bibr" rid="ref101">101</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>I-team, person-centered, emphasis on client limits and their context.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref10">10</xref>,<xref ref-type="bibr" rid="ref22">22</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Inappropriate behavioral disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Client screening process, semistructured interview, and I-Team discussion.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref93">93</xref>]</td>
              </tr>
              <tr valign="top">
                <td colspan="6">
                  <bold>Person-centered approach</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td colspan="5">
                  <bold>Determining consent</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Cognitive disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Holistic case-by-case, based on needs and policy, and client and staff education.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref4">4</xref>,<xref ref-type="bibr" rid="ref23">23</xref>,<xref ref-type="bibr" rid="ref29">29</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Older adults with cognitive disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>The 4 Ps: prioritize people, practice effectively, preserve safety, and promote trust.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref16">16</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Committee approach—staff, family, friends, residents, and client discussion.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref26">26</xref>,<xref ref-type="bibr" rid="ref28">28</xref>]</td>
              </tr>
              <tr valign="top">
                <td colspan="6">
                  <bold>Education</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td colspan="5">
                  <bold>Managing consent</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Cognitive disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Teach awareness of normal sex behavior to both clients and staff.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref27">27</xref>,<xref ref-type="bibr" rid="ref34">34</xref>,<xref ref-type="bibr" rid="ref95">95</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Client education checked by SCEA<sup>c</sup>, VABS<sup>d</sup>, or IQ tests.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref40">40</xref>,<xref ref-type="bibr" rid="ref86">86</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Developmental disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Consult certified sexuality educators or experts such as AASECT<sup>e</sup> or OWL<sup>f</sup>.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref11">11</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Increase client sex-related knowledge, based on 3 legal criteria of consent.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref3">3</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Older adults with cognitive disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Training for professionals and LGBTQ<sup>g</sup> toolkits (info packages) for them.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref94">94</xref>]</td>
              </tr>
              <tr valign="top">
                <td colspan="6">
                  <bold>Attitude</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td colspan="5">
                  <bold>Managing consent</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Cognitive disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Policy feminist disability theory, consent culture, and rely less on assessment.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref17">17</xref>,<xref ref-type="bibr" rid="ref18">18</xref>,<xref ref-type="bibr" rid="ref66">66</xref>,<xref ref-type="bibr" rid="ref102">102</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Positive liberty, client proactive education, and attention to LGBTQ issues.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref48">48</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Social reframing. Recognize ability without facilitating pity.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref91">91</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Older adults with cognitive disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Request and consult national resources to train teams for clientele.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref85">85</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Inappropriate behavioral disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Psychological, social, and facility improvements over drugs. Staff education.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref41">41</xref>]</td>
              </tr>
              <tr valign="top">
                <td colspan="6">
                  <bold>Functional capacity</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td colspan="5">
                  <bold>Determining consent</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Medical condition (stroke or comatose)</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Consent-Plus with committee input, MMSE<sup>h</sup> (or similar), and interviews.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref19">19</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Cognitive disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>SSAS<sup>i</sup> assessment, based on the 3 legal criteria of consent.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref90">90</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Focus on client act-specific action (not partner choice) based on MCA 2005<sup>j</sup>.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref96">96</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Adaptive capacity—correlate client’s other abilities to sexual consent.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref1">1</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Sex consent requires basic, consequential knowledge.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref9">9</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Older adults with cognitive disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Assessments (MMSE and IQ), coupled with witness statements and context.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref103">103</xref>]</td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>People with psychiatric conditions (schizophrenia, personality)</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Communicate situational and internal understanding.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref84">84</xref>]</td>
              </tr>
              <tr valign="top">
                <td colspan="6">
                  <bold>Support network</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td colspan="5">
                  <bold>Both</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Older adults with cognitive disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Cognition-plus. Determines consent, managed with family, staff, and SDM.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref81">81</xref>]</td>
              </tr>
              <tr valign="top">
                <td colspan="6">
                  <bold>Contextual</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td colspan="5">
                  <bold>Determining consent</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td colspan="4">
                  <bold>Mild cognitive disabilities</bold>
                </td>
              </tr>
              <tr valign="top">
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>
                  <break/>
                </td>
                <td>Consent assessment is kept the same among people and based on context.</td>
                <td colspan="2">[<xref ref-type="bibr" rid="ref12">12</xref>]</td>
              </tr>
            </tbody>
          </table>
          <table-wrap-foot>
            <fn id="table2fn1">
              <p><sup>a</sup>I-Team: interdisciplinary team.</p>
            </fn>
            <fn id="table2fn2">
              <p><sup>b</sup>SDM: substitute decision maker.</p>
            </fn>
            <fn id="table2fn3">
              <p><sup>c</sup>SCEA: Sexual Consent and Education Assessment.</p>
            </fn>
            <fn id="table2fn4">
              <p><sup>d</sup>VABS: Vineland Adaptive Behavior Scale (Interview Edition).</p>
            </fn>
            <fn id="table2fn5">
              <p><sup>e</sup>AASECT: American Association of Sexuality Educators, Counselors, and Therapists.</p>
            </fn>
            <fn id="table2fn6">
              <p><sup>f</sup>OWL: Our Whole Lives.</p>
            </fn>
            <fn id="table2fn7">
              <p><sup>g</sup>LGBTQ: lesbian, gay, bisexual, transgender, transsexual, and queer.</p>
            </fn>
            <fn id="table2fn8">
              <p><sup>h</sup>MMSE: Mini-Mental State Exam.</p>
            </fn>
            <fn id="table2fn9">
              <p><sup>i</sup>SSAS: Social Sexual Awareness Scale.</p>
            </fn>
            <fn id="table2fn10">
              <p><sup>j</sup>MCA 2005: Mental Capacity Act, 2005.</p>
            </fn>
          </table-wrap-foot>
        </table-wrap>
        <table-wrap position="float" id="table3">
          <label>Table 3</label>
          <caption>
            <p>Studies on sexual consent and education for people with cognitive disabilities.</p>
          </caption>
          <table width="1000" cellpadding="5" cellspacing="0" border="1" rules="groups" frame="hsides">
            <col width="130"/>
            <col width="190"/>
            <col width="280"/>
            <col width="300"/>
            <col width="100"/>
            <thead>
              <tr valign="top">
                <td>Study type</td>
                <td>Approach</td>
                <td>Aim</td>
                <td>Key findings</td>
                <td>References</td>
              </tr>
            </thead>
            <tbody>
              <tr valign="top">
                <td>Qualitative</td>
                <td>Integrated</td>
                <td>Interview facility staff and residents to determine factors that increase risk of SDMs<sup>a</sup> deciding <italic>all-or-none</italic> resolutions of resident consent capacity to sexual relationships instead of allowing partial expression.</td>
                <td>Wording of legislation, lack of resources for SDMs and relational dynamics between them and staff increase risks of <italic>all-or-none</italic> decision outcomes. Recommends addressing these factors in integrated approach to reduce risk.</td>
                <td>[<xref ref-type="bibr" rid="ref83">83</xref>]</td>
              </tr>
              <tr valign="top">
                <td>Qualitative</td>
                <td>Attitude and education</td>
                <td>Semistructured interview needs assessment of directors of nursing to identify challenges to sexual expression management in LTC<sup>b</sup> setting.</td>
                <td>Directors of nursing requested sexual expression to be addressed in a top-down manner, with national organizations’ support in resources and training.</td>
                <td>[<xref ref-type="bibr" rid="ref85">85</xref>]</td>
              </tr>
              <tr valign="top">
                <td>Qualitative</td>
                <td>Functional capacity</td>
                <td>Interview facility staff and residents to determine key components of sexual consent.</td>
                <td>Three key themes participants defined for consent: communication—includes all involved in sexual relationship either verbal or nonverbal, situational understanding—includes ability for all involved to interpret assent of partners, and internal understanding—includes personal understanding of desire for sexual relationship.</td>
                <td>[<xref ref-type="bibr" rid="ref84">84</xref>]</td>
              </tr>
              <tr valign="top">
                <td>Qualitative</td>
                <td>Education and attitude</td>
                <td>Survey with vignettes to check residential staff ability to properly identify safe or unsafe sexual behaviors and respond accordingly.</td>
                <td>Staff could generally identify the difference between abusive and safe sexual behavior. Increased age of staff correlated with less accuracy in identifying safe or unsafe behavior.</td>
                <td>[<xref ref-type="bibr" rid="ref34">34</xref>]</td>
              </tr>
              <tr valign="top">
                <td>Qualitative</td>
                <td>Functional capacity</td>
                <td>Survey of APA<sup>c</sup> to determine important criteria to determine key components of sexual consent.</td>
                <td>Key themes defined for consent: basic sexual knowledge, knowledge of the consequences of sexual behavior, and aptitudes related to self-protection.</td>
                <td>[<xref ref-type="bibr" rid="ref9">9</xref>]</td>
              </tr>
              <tr valign="top">
                <td>Quantitative</td>
                <td>Education</td>
                <td>Education intervention—<italic>Living Your Life</italic>, twice weekly, 45 minutes per session, 10-week total, to improve sexuality-related decision ability.</td>
                <td>SCEA<sup>d</sup> scale showed improved scores after education. Retention showed only slight decay after 6-month follow-up.</td>
                <td>[<xref ref-type="bibr" rid="ref86">86</xref>]</td>
              </tr>
              <tr valign="top">
                <td>Quantitative</td>
                <td>Education and functional capacity</td>
                <td>Functional approach cohort study compared sexual consent ability of people living with cognitive disabilities to presumed normal people.</td>
                <td>Some people with cognitive disabilities scored high on all measures, including the Sex-Ken-ID<sup>e</sup>. Recommended ongoing education instead of single inoculation model.</td>
                <td>[<xref ref-type="bibr" rid="ref40">40</xref>]</td>
              </tr>
              <tr valign="top">
                <td>Quantitative</td>
                <td>Functional capacity</td>
                <td>Cross-sectional validity measure used SCEA to compare neuropsychological tests with IQ, adaptive behavioral age, and sex education on consent ability.</td>
                <td>Neuropsychological test battery, especially those measuring executive measures, were found to be more accurate in predicting competency than IQ, adaptive behavior age, and sex education.</td>
                <td>[<xref ref-type="bibr" rid="ref45">45</xref>]</td>
              </tr>
            </tbody>
          </table>
          <table-wrap-foot>
            <fn id="table3fn1">
              <p><sup>a</sup>SDM: substitute decision maker.</p>
            </fn>
            <fn id="table3fn2">
              <p><sup>b</sup>LTC: long-term care.</p>
            </fn>
            <fn id="table3fn3">
              <p><sup>c</sup>APA: American Psychological Association.</p>
            </fn>
            <fn id="table3fn4">
              <p><sup>d</sup>SCEA: Sexual Consent and Education Assessment.</p>
            </fn>
            <fn id="table3fn5">
              <p><sup>e</sup>Sex-Ken-ID: Sex Knowledge, Experience, and Needs Scale for People with Intellectual Disabilities.</p>
            </fn>
          </table-wrap-foot>
        </table-wrap>
      </sec>
      <sec>
        <title>Themes Affecting Approaches for Determining Sexual Consent Capacity</title>
        <p>Most reports (n<italic>=</italic>14) placed the 3 legal criteria of consent themes at the forefront of their approach to determine the sexual consent capacity of people living with cognitive disabilities. Other reports described adapted instruments, such as the Lichtenberg and Strzepek Instrument (n=4) or the Ames and Samowitz Instrument (n=4), which are approaches based on the 3 legal criteria of consent, however, with clinical considerations. The Lichtenberg and Strzepek Instrument mentions the use of an interdisciplinary team for the second part of its assessment process, which incorporated a team of professionals (eg, psychologist, psychiatrist, nurses, recreational therapists, dietitians, and aide staff) to analyze the information obtained by a psychologist or psychiatrist’s interview with the <italic>patient</italic> in the first part [<xref ref-type="bibr" rid="ref87">87</xref>]. The Lyden approach, with person-centered and integrated considerations, has important points for individualizing the assessment process, especially for communication during the interview process. The American Bar Association and American Psychological Association (ABA/APA) model has a handbook, which is based on the 3 legal criteria of consent, Lyden approach, and Lichtenberg and Strzepek Instrument. It includes comprehensive neuropsychological testing components for determining consent capacity; however, it only summarizes the team-based aspects of determination and care plans [<xref ref-type="bibr" rid="ref88">88</xref>].</p>
        <p>With the 3 legal criteria of consent being based in the United States, some international reports described the Mental Capacity Act of 2005 as their main approach (n=4). The Mental Capacity Act of 2005 uses rules reminiscent of the 3 legal criteria of consent and contains the prefix assumption that a person has the default capacity to consent unless proven otherwise. The Mental Capacity Act of 2005 also contains prefix rules to ensure that knowledge and resources are available for assisting a person to make a consensual decision. Some reports introduced white papers and guides for assisting adult sexual health in LTC facilities (n=2), the most recommended guide being from the Vancouver Coastal Health Authority 2009. This guide provides important reminders to nurses and homecare staff regarding the rights of people under their care, while also recommending support to healthy sexual behavior by providing the means to do so (eg, provision of private spaces to reduce public sexual activity) [<xref ref-type="bibr" rid="ref98">98</xref>].</p>
      </sec>
      <sec>
        <title>Approaches for Determining Sexual Consent Ability</title>
        <sec>
          <title>Functional Capacity</title>
          <p>Approaches endorsing the use of functional capacity have shifted away from diagnostic-based assessments (eg, IQ and mental age scores) of decision-making ability to alternative identifiers. There was an overall emphasis in the literature to rely less on mental assessment outcomes when determining the sexual decision-making capacity of people with cognitive disabilities [<xref ref-type="bibr" rid="ref17">17</xref>,<xref ref-type="bibr" rid="ref28">28</xref>,<xref ref-type="bibr" rid="ref85">85</xref>,<xref ref-type="bibr" rid="ref91">91</xref>,<xref ref-type="bibr" rid="ref102">102</xref>]. The problem with mental assessments is the risk of social or cultural factors, concluding that people with cognitive disabilities are incompetent in society, which results in such people being placed in the <italic>cloak of competence</italic> [<xref ref-type="bibr" rid="ref104">104</xref>]. Repeated assessment measures show mixed results for the same person, varying between having and not having a sexual consent capacity [<xref ref-type="bibr" rid="ref3">3</xref>]. Thus, even if people with cognitive disabilities are able to demonstrate sexual consent capacity, social judgment may still suspect such people as being less than capable when compared with normative scores of intelligence and adaptive behavioral ability [<xref ref-type="bibr" rid="ref91">91</xref>].</p>
          <p>Despite the shortcomings of mental assessments, reports vouching for functional capacity approaches recommended to either expand the assessment’s ability to check for adaptive behavioral domains [<xref ref-type="bibr" rid="ref1">1</xref>,<xref ref-type="bibr" rid="ref19">19</xref>], featuring the use of neuropsychological assessments [<xref ref-type="bibr" rid="ref88">88</xref>] or relegate such mental assessments to a supporting role [<xref ref-type="bibr" rid="ref103">103</xref>]. Although a mental state assessment such as the MMSE may provide a basic idea on how well a person with cognitive disabilities makes rational decisions, it was recommended to consider other domains of functional capacity such as literacy skills, self-care skills, independent care ability, and physical upkeep [<xref ref-type="bibr" rid="ref1">1</xref>]. A secondary diagnosis, including checks for both cognitive and functional ability, should be used when making a capacity judgment [<xref ref-type="bibr" rid="ref103">103</xref>]. A report by Bogacki et al [<xref ref-type="bibr" rid="ref90">90</xref>] introduced the Social Sexual Awareness Scale, a scale based on the 3 legal criteria of consent that checks a person’s knowledge for contextual and safety factors such as risk of disease, contraceptive use, age of partners, and the handling of unwanted advances [<xref ref-type="bibr" rid="ref90">90</xref>]. Another recommendation was to assess decision-making capacity on act-specific decisions (eg, being able to make a decision on a sexual relationship, retain that decision, and have a rudimentary understanding of the sexual act) instead of theoretical ability [<xref ref-type="bibr" rid="ref96">96</xref>]. One report suggested a holistic approach, complete with a progressive committee [<xref ref-type="bibr" rid="ref19">19</xref>], supplemented with theories of Consensual-Minimalism and Consent-Plus by Wertheimer [<xref ref-type="bibr" rid="ref105">105</xref>]. Consensual-Minimalism checks for the most straightforward sense of consent among those in a relationship, whereas Consent-Plus pertains to situations where consent is necessary in addition to other factors that are additionally required to make the sexual relationship permissible (eg, social, religious, and cultural factors) [<xref ref-type="bibr" rid="ref105">105</xref>].</p>
        </sec>
        <sec>
          <title>Person-Centered Approach</title>
          <p>The person-centered approach is philosophically driven to promote ethical integrity when working with people to determine their consent capacity [<xref ref-type="bibr" rid="ref4">4</xref>]. Discussions with the people themselves will enable a better understanding of both their sexuality and cognitive disabilities, which are essential for determining their preferences [<xref ref-type="bibr" rid="ref15">15</xref>,<xref ref-type="bibr" rid="ref99">99</xref>]. The person-centered approach needs to be flexible to accommodate the specific needs of each individual, promote their dignity and autonomy, and uncover potential contexts that could identify risks associated with sexual expression [<xref ref-type="bibr" rid="ref16">16</xref>,<xref ref-type="bibr" rid="ref18">18</xref>]. In terms of philosophical components throughout the literature, the person-centered approach was recommended to include the following (people living with cognitive disabilities, who are to be provided such services, will be referred to as <italic>clients</italic> in this list):</p>
          <list list-type="order">
            <list-item>
              <p>Open communication—this factor begins with individualizing the communication process with clients, following key components of the Lichtenberg and Strzepek Instrument, Ames and Samowitz Instrument, Lyden approach, ABA/APA model, and Vancouver Coastal Health Authority themes [<xref ref-type="bibr" rid="ref5">5</xref>,<xref ref-type="bibr" rid="ref6">6</xref>,<xref ref-type="bibr" rid="ref87">87</xref>,<xref ref-type="bibr" rid="ref98">98</xref>]. At the same time, given the personal biases and stigmas associated with sexuality, everyone including caregivers and staff should discuss such potential issues while planning to address them [<xref ref-type="bibr" rid="ref23">23</xref>].</p>
            </list-item>
            <list-item>
              <p>Committee approach—following open communication, this factor can <italic>diffuse liability exposure and provide enhanced objectivity</italic> [<xref ref-type="bibr" rid="ref5">5</xref>]. If persistent evidence shows that a client’s consent ability has become compromised, any decisions involving their rights to sexual intimacy must involve discussions with family, friends, caregivers, and staff in a <italic>multidisciplinary team</italic> setting [<xref ref-type="bibr" rid="ref16">16</xref>]. Such a committee can incorporate various perspectives to enhance a client’s autonomy, dignity, and rights to sexual expression in addition to determining areas and means for improving their potential shortcomings in the 3 legal criteria of consent themes [<xref ref-type="bibr" rid="ref5">5</xref>,<xref ref-type="bibr" rid="ref26">26</xref>]. Lay-witnesses are useful for determining other contextual information, such as the client’s adaptive capacity, in addition to determining potential SDMs if allowed [<xref ref-type="bibr" rid="ref1">1</xref>,<xref ref-type="bibr" rid="ref89">89</xref>].</p>
            </list-item>
            <list-item>
              <p>Capacity assumed—a client’s sexual decision-making capacity needs to be assumed intact unless proven otherwise [<xref ref-type="bibr" rid="ref4">4</xref>,<xref ref-type="bibr" rid="ref83">83</xref>]. It is unethical and discriminatory to use assessments to prove that a client is incapable of demonstrating consent capacity [<xref ref-type="bibr" rid="ref17">17</xref>]. A common-sense approach, with staff and peers observing the client’s interactions, nonverbal language, and social cues should instead be considered when determining their sexual decision-making capacity [<xref ref-type="bibr" rid="ref4">4</xref>].</p>
            </list-item>
            <list-item>
              <p>Withhold Bias—people’s attitudes, including those of staff members and caregivers, may inadvertently be against a client’s sexual preferences and deny them their rights to sexual expression [<xref ref-type="bibr" rid="ref91">91</xref>]. It was strongly recommended for both clients and staff to receive education programs to discern differences between normative and unhealthy sexual behaviors in addition to reframing their perceptions regarding client sexual preferences and rights [<xref ref-type="bibr" rid="ref3">3</xref>,<xref ref-type="bibr" rid="ref23">23</xref>,<xref ref-type="bibr" rid="ref29">29</xref>,<xref ref-type="bibr" rid="ref34">34</xref>,<xref ref-type="bibr" rid="ref88">88</xref>,<xref ref-type="bibr" rid="ref92">92</xref>].</p>
            </list-item>
            <list-item>
              <p>Tracking—a client’s sexual preference and decision-making ability is expected to change over time; thus, person-centered approaches should track a client’s progress, reconfirming that they retain the capacity to both understand and refuse a sexual interaction when necessary [<xref ref-type="bibr" rid="ref23">23</xref>]. The impact of educational programs for enhancing a client’s sexual consent capacity should also be used and tracked over time [<xref ref-type="bibr" rid="ref40">40</xref>]. Improving the client’s access to materials for practicing safe sex, such as condoms and contraceptives, should be continuously implemented [<xref ref-type="bibr" rid="ref23">23</xref>]. Safeguards that limit forms of client sexual expression, such as restricting a relationship to kissing and touching only, requires continual monitoring by staff to ensure that such safeguards are not exceeded [<xref ref-type="bibr" rid="ref5">5</xref>].</p>
            </list-item>
          </list>
          <p>One report presented a system for nurses to use, which adheres to some of the previously mentioned philosophical components. The system comprises the 4 themes of the code, Professional Standards of Practice and Behavior for Nurses and Midwives [<xref ref-type="bibr" rid="ref106">106</xref>]. The 4 themes are prioritize people, practice effectively, preserve safety, and promote professionalism and trust [<xref ref-type="bibr" rid="ref16">16</xref>]. It includes considerations such as withholding bias, open communication, and the committee approach. A report by Wilkins [<xref ref-type="bibr" rid="ref107">107</xref>] suggested an emphasis among a substituted judgment, best interest standard, or a mix of the two. The substituted judgment standard emphasizes the use of advanced directives, whereas the best interest standard emphasizes the balance between risks and benefits, allowing some restricted forms of client sexual expression if the potential benefits are worth the risks.</p>
        </sec>
        <sec>
          <title>Integrated Approach</title>
          <p>This is perhaps the most comprehensive approach in terms of providing a detailed care plan for determining sexual consent capacity in people with cognitive disabilities, while also discussing plans for enhancing consent capacity if necessary. The key features of the integrated approach include an interdisciplinary team discussion process, using aspects of a person-centered approach, complete with other holistic considerations. With the service user’s permission, the interdisciplinary team can be comprised an array of practitioners including physicians, occupational therapists, psychologists, social workers, nurses, and legal guardians of the person involved in the discussion [<xref ref-type="bibr" rid="ref22">22</xref>]. The integrated approach is likely to encompass the following themes:</p>
          <list list-type="order">
            <list-item>
              <p>The 3 legal criteria of consent—for legally defining the terms of consent [<xref ref-type="bibr" rid="ref7">7</xref>,<xref ref-type="bibr" rid="ref10">10</xref>,<xref ref-type="bibr" rid="ref22">22</xref>].</p>
            </list-item>
            <list-item>
              <p>ABA/APA model—for blueprinting the overall assessment and care plan design process, endorsing person-centered considerations of the evaluated person’s sexual values, which endorses the Lichtenberg and Strzepek instruments for both functional capacity and ethical considerations [<xref ref-type="bibr" rid="ref87">87</xref>,<xref ref-type="bibr" rid="ref88">88</xref>].</p>
            </list-item>
            <list-item>
              <p>Lyden approach—for individualizing the communication and assessment process, encouraging person-centered aspects to the approach [<xref ref-type="bibr" rid="ref5">5</xref>,<xref ref-type="bibr" rid="ref22">22</xref>,<xref ref-type="bibr" rid="ref88">88</xref>].</p>
            </list-item>
            <list-item>
              <p>Lichtenberg and Strzepek Instrument—assuming that the assessment aspect of the process is performed with an MMSE [<xref ref-type="bibr" rid="ref87">87</xref>,<xref ref-type="bibr" rid="ref88">88</xref>]; however, such assessments were designated as a supplementary role to determine where lacking areas of knowledge could be improved [<xref ref-type="bibr" rid="ref48">48</xref>].</p>
            </list-item>
          </list>
          <p>Friends and family of the evaluated person are encouraged to play a role in the discussion process [<xref ref-type="bibr" rid="ref22">22</xref>]. Team input determines the restrictions of sexual expression, if any and medications to be prescribed, if any, while also noting contextual factors of the relationship, such as potential risks of coercion or abuse [<xref ref-type="bibr" rid="ref22">22</xref>,<xref ref-type="bibr" rid="ref92">92</xref>]. Overall, the integrated approach focuses on holistic contextual factors throughout the assessment process, including factors such as the person’s communication ability, access to privacy, informed consent ability, family involvement, religious beliefs, and social history [<xref ref-type="bibr" rid="ref22">22</xref>,<xref ref-type="bibr" rid="ref88">88</xref>].</p>
        </sec>
        <sec>
          <title>Contextual Approach</title>
          <p>The contextual approach was aimed at individuals with mild cognitive disabilities and has 2 components [<xref ref-type="bibr" rid="ref12">12</xref>]. First, whenever a judicial system assesses the consent ability of an individual living with a cognitive disability, the ruling must meet the same standard as anyone else. Second, it is recommended that consent ability be focused on the situational context rather than on intellectual attributes. For example, an individual with a cognitive disability may show consent capability in a healthy relationship but not when their partner uses coercion or threats.</p>
          <p>The first component becomes especially important when consent definitions require an understanding of tests involving the nature, consequences, and moral dimensions of sexual acts [<xref ref-type="bibr" rid="ref12">12</xref>]. It is important to keep assessments among individuals the same, whether they have intellectual disabilities, because this focuses on social innerworkings within an intimate relationship [<xref ref-type="bibr" rid="ref12">12</xref>]. This component also respects the capabilities of individuals with cognitive disabilities. The second component realizes that consent ability is affected by social constructs such as communication, social skills, and community support. A contextual approach reassures the balance of protection toward vulnerable persons while respecting their consensual rights to sexual relationships.</p>
        </sec>
      </sec>
      <sec>
        <title>Approaches for Managing Sexual Consent Ability</title>
        <sec>
          <title>Education</title>
          <p>There was a pattern in the reports explaining how education could improve the sexual decision-making ability of people living with cognitive disabilities. The pattern starts by mentioning the 3 legal criteria of consent components (knowledge, understanding, and voluntariness), followed by a defined set of basic skill checks to determine whether such people could address these components. Note that the 3 legal criteria of consent have a knowledge component, which defaults to being improved by sex education; however, its other components, such as understanding, may benefit from education as well [<xref ref-type="bibr" rid="ref3">3</xref>,<xref ref-type="bibr" rid="ref5">5</xref>,<xref ref-type="bibr" rid="ref40">40</xref>,<xref ref-type="bibr" rid="ref86">86</xref>]. The basic skill checks included areas that expanded upon the three legal criteria of consent [<xref ref-type="bibr" rid="ref3">3</xref>,<xref ref-type="bibr" rid="ref5">5</xref>,<xref ref-type="bibr" rid="ref11">11</xref>,<xref ref-type="bibr" rid="ref40">40</xref>]:</p>
          <list list-type="order">
            <list-item>
              <p>Knowledge of body parts and sexual relationships and acts.</p>
            </list-item>
            <list-item>
              <p>Knowledge of consequences from sexual relationships.</p>
            </list-item>
            <list-item>
              <p>Understanding of appropriate sexual behavior and context for it.</p>
            </list-item>
            <list-item>
              <p>Understanding of the voluntary nature of a sexual relationship.</p>
            </list-item>
            <list-item>
              <p>Ability to recognize abusive situations.</p>
            </list-item>
            <list-item>
              <p>Ability to be assertive in such situations to reject unwanted advances.</p>
            </list-item>
          </list>
          <p>The reports endorsing educational approaches described measures that check for these areas, such as the Sexual Consent and Education Assessment [<xref ref-type="bibr" rid="ref86">86</xref>], Sex Knowledge, Experience and Needs Scale for People with Intellectual Disabilities [<xref ref-type="bibr" rid="ref40">40</xref>], and Tool for the Assessment of Levels of Knowledge Sexuality and Consent [<xref ref-type="bibr" rid="ref11">11</xref>]. For educational programs themselves, the recommendations were the <italic>Living Your Life—The Sex Education and Personal Development Resource for Special Education Needs</italic> [<xref ref-type="bibr" rid="ref86">86</xref>,<xref ref-type="bibr" rid="ref108">108</xref>] and comprehensible evidence-based programs with simple language [<xref ref-type="bibr" rid="ref3">3</xref>]. It is important for the aforementioned assessments to be used only for the identification of gaps in a person’s knowledge of safe sexual acts, followed by providing educational programs to rectify such gaps if necessary [<xref ref-type="bibr" rid="ref48">48</xref>,<xref ref-type="bibr" rid="ref92">92</xref>].</p>
          <p>In addition to people with cognitive disabilities, it was encouraged for staff in LTC facilities to receive education to better identify the difference between healthy and unhealthy sexual behaviors and how to resolve such situations accordingly [<xref ref-type="bibr" rid="ref27">27</xref>,<xref ref-type="bibr" rid="ref34">34</xref>]. Both families and LTC staff were recommended to receive education to better understand the rights to intimacy, sexuality, and privacy for people with cognitive disabilities [<xref ref-type="bibr" rid="ref27">27</xref>]. It was suggested that staff use <italic>LGBTQ toolkits</italic>, which are manuals that describe ethical approaches when working with older female adults who have these sexual identities [<xref ref-type="bibr" rid="ref94">94</xref>].</p>
          <p>Criminal justice systems were encouraged to use education and training programs to increase the awareness of communication disorders, while also considering alternative communication platforms and multidisciplinary collaborations with relevant disciplines [<xref ref-type="bibr" rid="ref109">109</xref>]. Children and people with communication disabilities are at a disadvantage when disclosing their experiences of sexual abuse to a criminal justice system, often because the system’s procedures may not be adapted to meet the needs of such people [<xref ref-type="bibr" rid="ref109">109</xref>-<xref ref-type="bibr" rid="ref111">111</xref>]. Sexual abuse cases showed improved outcomes when collaborative support was combined with communication awareness, such as for law enforcement and child protection services [<xref ref-type="bibr" rid="ref111">111</xref>]. Improved access to sexual and gender-based violence education for vulnerable populations, such as refugees, was also recommended in addition to encouraging inclusion in community support programs [<xref ref-type="bibr" rid="ref109">109</xref>].</p>
        </sec>
        <sec>
          <title>Attitude</title>
          <p>There were 3 articles that argued for both disability and feminist rights movements to overcome negative attitudes within communities [<xref ref-type="bibr" rid="ref17">17</xref>,<xref ref-type="bibr" rid="ref18">18</xref>,<xref ref-type="bibr" rid="ref102">102</xref>]. Doyle [<xref ref-type="bibr" rid="ref18">18</xref>] described how social construction theory for feminism relates to people with cognitive disabilities, defining it as culturally set norms, rights, and commitments that detail expectations on how people of differing statuses relate to one another [<xref ref-type="bibr" rid="ref112">112</xref>]. Doyle [<xref ref-type="bibr" rid="ref18">18</xref>] also explained that script theory is a form of construction theory that influences a person’s sexual behaviors by external and internal factors, defined as society’s <italic>mutually shared conventions and norms</italic> and personal motivations, respectively [<xref ref-type="bibr" rid="ref18">18</xref>,<xref ref-type="bibr" rid="ref113">113</xref>]. Script theory explains how the sexuality of a person with cognitive disabilities is potentially influenced by critical factors beyond just sex drive and instinct: it has learned behavior characteristics, influenced by social contexts, affecting how people express themselves [<xref ref-type="bibr" rid="ref18">18</xref>].</p>
          <p>Negative cultural attitudes, such as rape culture, should be countered by plans using lifelong sexuality education and policy change with <italic>intermovement collaboration</italic>, addressing the aforementioned internal and external factors [<xref ref-type="bibr" rid="ref17">17</xref>]. A person with a cognitive disability could be incapable of demonstrating or understanding consent capacity, due to a lack of knowledge or having misaligned sexual scripts [<xref ref-type="bibr" rid="ref18">18</xref>]; however, educational interventions may allow that person to reach capacity [<xref ref-type="bibr" rid="ref5">5</xref>]. Note that a strict education approach emphasizes sexuality instruction to fill missing gaps in knowledge and understanding of consent criteria, although the attitude approach is often based on social construction theory, suggesting the use of education to reframe a person’s sexual scripts.</p>
          <p>The attitude approach also discussed how a person with cognitive disabilities and their external factors such as government, legal systems, administration, practitioners, staff of LTC facilities, and family could be influenced. A study by Syme et al [<xref ref-type="bibr" rid="ref85">85</xref>] determined that a proactive approach to policy development in LTCs was recommended, in addition to addressing negative staff and family attitudes. Addressing the lack of awareness of sexual expression in people with cognitive disabilities, making necessary environmental changes to ensure privacy, identifying staff or family attitudes, and tracking the person’s sexuality with recurrent assessments were the top areas to address in LTC facilities [<xref ref-type="bibr" rid="ref85">85</xref>]. The study by Syme et al [<xref ref-type="bibr" rid="ref85">85</xref>] found that all nursing directors (n<italic>=</italic>20) endorsed the use of sexuality education, with <italic>many</italic> endorsing attitude discussions with staff and family about aging sexuality, changing negative attitudes, increasing people’s awareness of their own attitudes, and emphasizing sexual health. A report by Victor [<xref ref-type="bibr" rid="ref23">23</xref>] mentioned the use of staff attitudes about intimacy and dementia survey proposed by Kuhn [<xref ref-type="bibr" rid="ref114">114</xref>] to measure staff or caregiver attitudes on this topic. A collaborative reform process was recommended to change legal terms (eg, mentally impaired to vulnerable or protected persons) when reframing government views that hold people to a disproportionately higher standard [<xref ref-type="bibr" rid="ref92">92</xref>]. For committee approaches, members were tasked with reducing the risk of personal bias within the leading assessor, by providing a <italic>balanced exchange of ideas in a competent and thorough manner</italic>, throughout the consent capacity determination process [<xref ref-type="bibr" rid="ref5">5</xref>].</p>
        </sec>
        <sec>
          <title>Advanced Directives</title>
          <p>Advanced directives are contingency plans that allow people to consent to specific sexual acts ahead of time or grant decision-making power to an SDM for an applicable future context [<xref ref-type="bibr" rid="ref115">115</xref>]. The plan involves the person, who is legally capable of providing sexual consent at the time, the past self, to set up a contingency for an impending period when their sexual decision-making ability may become compromised, the future self. This compromised ability to provide sexual consent may occur owing to impending conditions from events such as dementia, stroke, or brain surgery. There are two types of advanced directives [<xref ref-type="bibr" rid="ref115">115</xref>]: instructional directives and proxy directives. The instructional directives can be either permissive, allowing permissions to take place when they legally could not or restrictive, halting actions from happening when situations would normally favor them [<xref ref-type="bibr" rid="ref115">115</xref>]. The proxy directive features the use of SDMs, either as a surrogate decision maker or the power of attorney [<xref ref-type="bibr" rid="ref115">115</xref>].</p>
          <p>A person’s ability to consent to sex can change over time, varying across situations in terms of capacity and sexual preference [<xref ref-type="bibr" rid="ref3">3</xref>,<xref ref-type="bibr" rid="ref5">5</xref>,<xref ref-type="bibr" rid="ref11">11</xref>]. Unless legal exceptions have been established, it is illegal for consent to be given by someone else [<xref ref-type="bibr" rid="ref7">7</xref>]. Advanced directives are noted for upholding a person’s core values and religious beliefs when resolving decisions involving sexual relationships, perhaps preserving the sexual preferences of a person living with a cognitive disability [<xref ref-type="bibr" rid="ref77">77</xref>]; however, the drawback is that the person is <italic>locked into certain conditions that may not coincide with the desires of the future self</italic> [<xref ref-type="bibr" rid="ref28">28</xref>]. The use of advanced directives in this manner is referred to as the substituted judgment standard [<xref ref-type="bibr" rid="ref28">28</xref>]. One report presented the <italic>Prior Consent Thesis</italic>, a philosophy-driven argument that states that a competent person can give valid prior consent to a competent partner, in which consent could remain even after mental capacity in one person becomes compromised [<xref ref-type="bibr" rid="ref100">100</xref>]. Sexual advance directives are not promises that could lead to the promiser being locked in servitude. The advance directive is not about owing a commitment; a person’s advance directive merely states that such an encounter be allowed if they token consent [<xref ref-type="bibr" rid="ref100">100</xref>].</p>
        </sec>
        <sec>
          <title>Support Network</title>
          <p>Using the cognition-plus test, this approach contains three steps [<xref ref-type="bibr" rid="ref81">81</xref>]: (1) check if the individual is capable of communicating a desire for an intimate relationship, (2) check if the individual is aware of the nature and consequences of sexual decisions, and (3) determine the adequacy of an individual’s decision-making support network.</p>
          <p>If step 1 is unfulfilled, the test ends. Individuals who cannot determine an intimate relationship cannot qualify as sexual agents. If steps 1-2 are fulfilled, the individual is deemed to have consent capacity without the need for assistance. Step 3 becomes active only if step 2 is unfulfilled. The determination of an individual’s support network is contextual-based, guided by the fiduciary law [<xref ref-type="bibr" rid="ref81">81</xref>]. The legal system would need to check if the support network is free from conflict of interest, while showing an understanding of the individual’s sexual preferences, with contingencies to protect the individual against consequences of sexual encounters, such as pregnancy or sexually transmitted disease [<xref ref-type="bibr" rid="ref81">81</xref>]. The support network is expected to be different among individuals but may comprise the individual’s friends, family, institutional staff, and SDMs. SDMs are not recommended to act alone in a support network [<xref ref-type="bibr" rid="ref81">81</xref>]. It is possible that people in the support network may have disagreements on the individual’s preferences, in which case these disagreements will need to be resolved in a civil manner before this approach is implemented [<xref ref-type="bibr" rid="ref81">81</xref>]. The legal system should not intervene whenever a civil dispute occurs: its focus should only be on checking the support network’s adequacy [<xref ref-type="bibr" rid="ref81">81</xref>]. It is important to note that support networks should not exist to make decisions for people with cognitive disabilities but only to assist them in achieving their decisions [<xref ref-type="bibr" rid="ref81">81</xref>].</p>
        </sec>
      </sec>
    </sec>
    <sec sec-type="discussion">
      <title>Discussion</title>
      <sec>
        <title>Principal Findings</title>
        <p>This review focused on the approaches used to determine and manage sexual consent abilities in people with cognitive disabilities, noting the recurring themes influencing how these approaches were implemented. The literature assumes that such people are capable of having the capacity to desire and consent to healthy intimate relationships; however, some situations may ignore or suppress these capabilities [<xref ref-type="bibr" rid="ref5">5</xref>]. The movement of medicalized models to be enhanced by social support was also emphasized.</p>
      </sec>
      <sec>
        <title>Key Points When Determining Sexual Consent Ability</title>
        <p>Review of the literature has established that determining consensual abilities requires a holistic approach, with individuals being considered in terms of their adaptive abilities, capacities, and human rights. An abridged description of such a holistic approach includes identification of the person’s sexual identity, beliefs and values, opinions from friends and family, medical records and clinical interviews (person-centered), neuropsychological testing, and functional capacity measures involving adaptive capability skill checks, followed preferably by an interdisciplinary discussion and action plan [<xref ref-type="bibr" rid="ref88">88</xref>]. Although the 3 legal criteria of consent may appear as the starting point for defining a person’s consent capacity, sexual identity, beliefs, values, culture, and life history should be examined first to guide the consent-determining process [<xref ref-type="bibr" rid="ref10">10</xref>]. This promotes the person-centered approach, especially if the assessed individual is of the LGBTQ community. The use of a committee during person-centered and integrated approaches must maintain a morality balance within the main reviewer; otherwise, the consent determination process can be skewed either in favor of or against the assessed individual [<xref ref-type="bibr" rid="ref91">91</xref>]. Continual monitoring of an individual’s sexual preferences allows caregivers or service providers to offer empathetic maintenance over time, which becomes especially useful during cases of <italic>fading identity</italic>, owing to conditions such as dementia [<xref ref-type="bibr" rid="ref23">23</xref>]. Educational programs focused specifically on these identified preferences can be provided to improve empathetic maintenance for such service providers.</p>
        <p>The functional capacity report by Harris [<xref ref-type="bibr" rid="ref1">1</xref>] provided examples of evidence for sexual consent ability in people with cognitive disabilities, including those demonstrating skills such as exercising <italic>good judgment</italic> and being able to identity their name and address correctly. However, the report by Harris [<xref ref-type="bibr" rid="ref1">1</xref>] also admits that appraising these examples can be an <italic>abstract exercise</italic>, with some forms of evidence carrying a higher amount of probative weight than others, such as previous experience with sex education over IQ scores. A report by Thomas [<xref ref-type="bibr" rid="ref84">84</xref>] provided elements of consent capacity definitions (communication, situational, and internal understanding), which were recommended to be presented to other residential mental health experts to create and improve the acceptable definition of consent ability. The most important consideration when using the functional capacity approach is to enforce that people with cognitive disabilities are not regulated differently than people without cognitive disabilities. If they should be denied legal right to sexual consent, the conclusion should only be drawn if the functional capacity appraisal process is performed on a truly equal basis for all [<xref ref-type="bibr" rid="ref66">66</xref>].</p>
        <p>Critical requirements of consent culture, which states that “people can have sex only when everyone agrees it is OK” [<xref ref-type="bibr" rid="ref17">17</xref>], is met with scenarios where a person in a married relationship wants to have sex with their partner who has severe dementia, incapable of showing either signs of assent or refusal. Although it is important for all parties in the relationship to show the ability to refuse a sexual encounter at any point, which many people with cognitive disabilities will be incapable of doing [<xref ref-type="bibr" rid="ref23">23</xref>], one proposed idea is to affiliate consensual sex with a continuation aspect, assuming consent from a previous loving relationship will remain even after someone loses the ability to consent afterward [<xref ref-type="bibr" rid="ref100">100</xref>]. This continuation aspect of a sexual relationship with someone living with a cognitive disability is the <italic>Prior Consent Thesis</italic>, which deems current sexual relationships permissible, providing both people in the relationship gave consent to sex with each other before.</p>
      </sec>
      <sec>
        <title>Key Points When Managing and Enhancing Sexual Consent Ability</title>
        <p>The key aspects to consider when managing and enhancing consensual ability in people with cognitive disabilities starts with attitude change. Some of the recurring attitudinal barriers identified in the literature include internal factors, such as those inflicting the individuals themselves as explained by script theory and external factors, peripheral to the individual affecting their consent ability and rights, examples being care providers, legal systems, family, friends, and supportive decision makers [<xref ref-type="bibr" rid="ref18">18</xref>]. The attitude approach gives the impression of being the most important approach because of its ability to reframe either the internal or external factors’ view of sexual expression for people with cognitive disabilities.</p>
        <p>For internal factors, script theory explained that people with cognitive disabilities may show unhealthy sexual behaviors because of unlearned scripts [<xref ref-type="bibr" rid="ref18">18</xref>], which can be supplemented by education to fortify the knowledge and understanding prongs in the 3 legal criteria of consent theme. Script theory also explains that people may have intact sexual knowledge; however, <italic>vital elements</italic> pertaining to healthy attitudes can be misaligned, which may result in unhealthy behaviors directed at oneself or other people [<xref ref-type="bibr" rid="ref18">18</xref>]. It has been reported that sexual knowledge alone does not always transfer to safer sexual behaviors [<xref ref-type="bibr" rid="ref116">116</xref>]; thus, the importance of lived experiences on consensual ability emphasizes the importance of understanding the contextual reason why people with cognitive disabilities may consent to sex [<xref ref-type="bibr" rid="ref18">18</xref>]. It is important to note that script theory does not explain inherent sexuality within individuals. Sometimes, unhealthy sexual behaviors stem from physical conditions, such as those from affected neurobiological areas in the brain within a person living with dementia [<xref ref-type="bibr" rid="ref93">93</xref>].</p>
        <p>External factors influencing sexual expression in people with cognitive disabilities include both formal and local situations. A report by Arstein-Kerslake and Flynn [<xref ref-type="bibr" rid="ref102">102</xref>] provided details of a grassroots voice movement, using feminist disability theory to encourage a formal legal system to adopt vital changes to its interpretation of sexual rights for people with cognitive disabilities, further describing the drafting of its convention by a disabled people’s organization to reform the rights of such people. Perhaps these details may be enough to convince a similar rights movement to attempt their own reform process; however, the unique details pertaining to each convention’s attitudinal barriers will need to be reported in future literature for conventions to strategize and gain a greater level of confidence in attitude change. The more details a system can obtain for establishing attitude change, the louder a new convention can have a voice.</p>
        <p>To check and address internal and external factors in the local situation, attitude checks using tools such as the staff attitudes about intimacy and dementia survey were recommended to give a general idea about potential staff, family, and caregiver biases toward sexual preferences in people with cognitive disabilities [<xref ref-type="bibr" rid="ref23">23</xref>,<xref ref-type="bibr" rid="ref93">93</xref>,<xref ref-type="bibr" rid="ref114">114</xref>]. Publicly available guides, such as the Vancouver Coastal Health Authority Guide (2009), provide recommendations about components of staff education, SDMs, and family decision-making, including what to do in case decisions fall upon family members who do not support the client’s sexual activity. For situations with decision makers who do not agree with their clients’ sexual preferences, example guidelines include reiterating the legal obligations of such decision makers while reassuring them that they do not have to change their personal values—they only need to respect the legal rights of the client, especially after they have been given sex education [<xref ref-type="bibr" rid="ref98">98</xref>].</p>
        <p>The attitude approach is arguably the most important approach to consider, because all efforts to realize a person’s sexual consent ability can be lost, should the final decision fall onto someone who does not agree with the sexual preference in the first place. The comprehensive aspects of the integrated approach are not immune to this. The Hillman report [<xref ref-type="bibr" rid="ref22">22</xref>] described an in-depth integrated approach that was used to assist with the sexual consent ability of a resident in a nursing home; however, the final outcome resulted in the family relocating the resident from there because of a difference in perceptions regarding sexual relationships. Using education to reframe staff and family attitudes is key because to quote one director of nursing from the study by Syme et al [<xref ref-type="bibr" rid="ref85">85</xref>], “If the families don’t buy it, it’s gonna fail miserably.” The Boni-Saenz [<xref ref-type="bibr" rid="ref81">81</xref>] report mentioned that support networks may fail because cognition-plus does not force its members to agree with their sexual preferences [<xref ref-type="bibr" rid="ref81">81</xref>]. This suggests that both education and attitude approaches may ensure that consent plans are fulfilled properly. It was recommended for newer doctrines to reframe attitudes and counter stereotyping beliefs within those who serve people with cognitive disabilities, using laws to <italic>exert positive expressive pressure on social norms</italic> [<xref ref-type="bibr" rid="ref81">81</xref>].</p>
        <p>Advanced directives have evolved to a point where they may play a role in sexual decision-making. They are best established within third-party systems, especially those equipped to monitor their use, such as those in LTC settings [<xref ref-type="bibr" rid="ref115">115</xref>]. Advanced directives may improve the decisional accuracy of institutional staff and loved ones who may act on behalf of the person living with a cognitive disability [<xref ref-type="bibr" rid="ref117">117</xref>] or act as an <italic>essential element</italic> in a legal case against sexual assault [<xref ref-type="bibr" rid="ref115">115</xref>]. The literature has revealed that the use of SDMs has been controversial. Although an SDM may appear qualified to make a decision on behalf of a person for a future sexual situation, it is possible the SDM may develop a conflict of interest, failing to act with loyalty in their proxy decision-making, resulting in potential <italic>congruence problems</italic> [<xref ref-type="bibr" rid="ref118">118</xref>]. Having an advanced directive coupled with LTC facility monitoring or other such third-party settings reduces the risk of objective harm [<xref ref-type="bibr" rid="ref115">115</xref>]. Further controversy stems from the disagreements among systems adopting the use of SDMs and the UNCRPD. The UNCRPD is against the use of SDMs, owing to the motion by Article 12 to establish equal rights for those living with cognitive disabilities [<xref ref-type="bibr" rid="ref31">31</xref>,<xref ref-type="bibr" rid="ref32">32</xref>]. The UNCRPD states that a lack of consensual capacity should not restrict a person’s ability to make a decision, insisting that said person’s <italic>will and preferences</italic> must be acknowledged [<xref ref-type="bibr" rid="ref31">31</xref>,<xref ref-type="bibr" rid="ref32">32</xref>]. Several experts have accused this interpretation as unrealistic [<xref ref-type="bibr" rid="ref32">32</xref>,<xref ref-type="bibr" rid="ref119">119</xref>-<xref ref-type="bibr" rid="ref121">121</xref>]. Forgoing the use of SDMs would reduce civil commitment and potentially increase the risk of harm for individuals living with severe cognitive or psychotic disorders [<xref ref-type="bibr" rid="ref32">32</xref>].</p>
        <p>There are philosophical arguments that may prefer either the individual’s past or future self to take precedence over the final decision of the advanced directive. It is important for evidence of both the past and future self to show some form of communication to consent, be it verbal or nonverbal. If the past self had a contingency to consent to a sexual relationship and the future self showed a token of interest, such as overtly wanting to hold hands with someone they like, this may show an overlap in interests between the past and future selves. The noticeable overlap in consensual interests between past and future selves is known as the Consensus of Consents [<xref ref-type="bibr" rid="ref115">115</xref>], which is the key to deciding whether such an advance directive is legally enforceable. Unfortunately, a person with a cognitive disability may show behavior that is less obvious in showing contemporaneous consent. It could be that some people living with dementia will have conditions so dire that they cannot communicate any form of consent at all. In these cases, the ability to express some form of definitive volition is required, either in the form of a verbal <italic>yes</italic> or some behavioral initiation of sexual expression [<xref ref-type="bibr" rid="ref122">122</xref>]. With this volitional requirement, the voluntariness prong of the 3 legal criteria of consent demonstrates that sexual advance directives have both legal and medical domains, thus requiring dedicated supporters to have knowledge about consent capacity, mental conditions, and the very people living with cognitive disabilities themselves.</p>
      </sec>
      <sec>
        <title>Limitations</title>
        <p>This review used a systematic method to identify approaches for determining and managing sexual consent capacity in people with cognitive disabilities. There was an emphasis on recognizing the patterns of themes, each influencing how consent-determining and enhancement programs were implemented. Although the literature on the subject may have a diverse array of ideas, acknowledging the views and rights of those who desire intimate relationships, this review emphasizes a convergent style to bring these ideas together. With this review’s emphasis on pattern recognition for noting recurring themes, there is a strong possibility that emergent ideas may have been downplayed or missed entirely. This review did not include ideas from conference papers, public opinions, or non–peer-reviewed articles. This may have shifted this review’s focus to a stronger understanding of already-established sexual consent themes; however, it could be that newer ideas may change these already-existing themes. Future research may provide emergent ideas with a greater consideration of the subject. In addition, although this review featured reports from both clinical and legal sources, this review predominantly used a clinical search protocol to locate the literature. The search process was not dedicated to the legal databases. Future research on this topic should be performed with a legal background, incorporating the necessary legal databases and journals.</p>
      </sec>
      <sec>
        <title>Conclusions</title>
        <p>The desire to have an intimate relationship is one of the core elements of sexuality, which is part of what it is to be human. Healthy sexual relationships are driven by consent, which is commonly defined by people’s capability to demonstrate sexual knowledge, intelligence, and voluntariness. However, if a person with a cognitive disability has a compromised consent ability, the involved legal, clinical, or ethical systems must determine the balance between permitting and restricting sexual activity to reduce the risk of unhealthy or harmful sexual behavior. It is important for the attitudes of those involved in this process to be balanced; otherwise, the sexual rights of such assessed people could be moved either in favor or against them. The means for determining the sexual consent ability of people with cognitive disabilities include functional capacity and person-centered and integrated approaches. Management of consent ability includes education, attitude, and advanced directive approaches. These approaches seek the ideal outcome where person-centered considerations of those living with cognitive disabilities are understood and they themselves are involved in the process of personalizing the approaches used to facilitate healthy intimate relationships.</p>
      </sec>
    </sec>
  </body>
  <back>
    <app-group>
      <supplementary-material id="app1">
        <label>Multimedia Appendix 1</label>
        <p>Search strategy.</p>
        <media xlink:href="ijmr_v11i1e28137_app1.pdf" xlink:title="PDF File  (Adobe PDF File), 470 KB"/>
      </supplementary-material>
    </app-group>
    <glossary>
      <title>Abbreviations</title>
      <def-list>
        <def-item>
          <term id="abb1">ABA/APA</term>
          <def>
            <p>American Bar Association and American Psychological Association</p>
          </def>
        </def-item>
        <def-item>
          <term id="abb2">LTC</term>
          <def>
            <p>long-term care</p>
          </def>
        </def-item>
        <def-item>
          <term id="abb3">MMSE</term>
          <def>
            <p>Mini-Mental Status Exam</p>
          </def>
        </def-item>
        <def-item>
          <term id="abb4">SDM</term>
          <def>
            <p>substitute decision maker</p>
          </def>
        </def-item>
        <def-item>
          <term id="abb5">UNCRPD</term>
          <def>
            <p>United Nations Convention on the Rights of Persons with Disabilities</p>
          </def>
        </def-item>
      </def-list>
    </glossary>
    <ack>
      <p>The authors wish to acknowledge the contributions of the librarian in residence from the Rehabilitation Research Center, Faculty of Rehabilitation Medicine, University of Alberta, who lent their support for the search protocol used in this systematic review.</p>
    </ack>
    <fn-group>
      <fn fn-type="con">
        <p>BJC and SE coconceptualized this review. SE contributed to the design of the sexual consent research question and search parameters. BJC led the manuscript writing process. SE contributed to the writing process and the revisions. All the authors approved the final version of the manuscript.</p>
      </fn>
      <fn fn-type="conflict">
        <p>None declared.</p>
      </fn>
    </fn-group>
    <ref-list>
      <ref id="ref1">
        <label>1</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Harris</surname>
              <given-names>J</given-names>
            </name>
          </person-group>
          <article-title>Sexual consent and disability</article-title>
          <source>New York Uni Law Rev</source>
          <year>2018</year>
          <volume>93</volume>
          <issue>3</issue>
          <fpage>480</fpage>
          <lpage>557</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://www.scopus.com/inward/record.uri?eid=2-s2.0-85052579858&#38;partnerID=40&#38;md5=389d8c211fd4963a45a040aa8bd877eb"/>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref2">
        <label>2</label>
        <nlm-citation citation-type="book">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Schalock</surname>
              <given-names>RL</given-names>
            </name>
            <name name-style="western">
              <surname>Borthwick-Duffy</surname>
              <given-names>SA</given-names>
            </name>
            <name name-style="western">
              <surname>Bradley</surname>
              <given-names>VJ</given-names>
            </name>
            <name name-style="western">
              <surname>Buntinx</surname>
              <given-names>WH</given-names>
            </name>
            <name name-style="western">
              <surname>Coulter</surname>
              <given-names>DL</given-names>
            </name>
            <name name-style="western">
              <surname>Craig</surname>
              <given-names>EM</given-names>
            </name>
            <name name-style="western">
              <surname>Gomez</surname>
              <given-names>SC</given-names>
            </name>
            <name name-style="western">
              <surname>Lachapelle</surname>
              <given-names>Y</given-names>
            </name>
            <name name-style="western">
              <surname>Luckasson</surname>
              <given-names>R</given-names>
            </name>
            <name name-style="western">
              <surname>Reeve</surname>
              <given-names>A</given-names>
            </name>
            <name name-style="western">
              <surname>Shogren</surname>
              <given-names>KA</given-names>
            </name>
            <name name-style="western">
              <surname>Snell</surname>
              <given-names>ME</given-names>
            </name>
            <name name-style="western">
              <surname>Spreat</surname>
              <given-names>S</given-names>
            </name>
            <name name-style="western">
              <surname>Tasse</surname>
              <given-names>MJ</given-names>
            </name>
            <name name-style="western">
              <surname>Thompson</surname>
              <given-names>JR</given-names>
            </name>
            <name name-style="western">
              <surname>Verdugo-Alonso</surname>
              <given-names>MA</given-names>
            </name>
            <name name-style="western">
              <surname>Wehmeyer</surname>
              <given-names>ML</given-names>
            </name>
            <name name-style="western">
              <surname>Yeager</surname>
              <given-names>MH</given-names>
            </name>
          </person-group>
          <source>Intellectual Disability: Definition, Classification, and Systems of Supports. Eleventh Edition</source>
          <year>2010</year>
          <publisher-loc>Washington, DC</publisher-loc>
          <publisher-name>American Association on Intellectual and Developmental Disabilities</publisher-name>
        </nlm-citation>
      </ref>
      <ref id="ref3">
        <label>3</label>
        <nlm-citation citation-type="book">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Stein</surname>
              <given-names>S</given-names>
            </name>
            <name name-style="western">
              <surname>Tepper</surname>
              <given-names>M</given-names>
            </name>
          </person-group>
          <article-title>Sexuality</article-title>
          <source>Health Care for People with Intellectual and Developmental Disabilities across the Lifespan</source>
          <year>2016</year>
          <publisher-loc>Cham</publisher-loc>
          <publisher-name>Springer</publisher-name>
          <fpage>1365</fpage>
          <lpage>81</lpage>
        </nlm-citation>
      </ref>
      <ref id="ref4">
        <label>4</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Tarzia</surname>
              <given-names>L</given-names>
            </name>
            <name name-style="western">
              <surname>Fetherstonhaugh</surname>
              <given-names>D</given-names>
            </name>
            <name name-style="western">
              <surname>Bauer</surname>
              <given-names>M</given-names>
            </name>
          </person-group>
          <article-title>Dementia, sexuality and consent in residential aged care facilities</article-title>
          <source>J Med Ethics</source>
          <year>2012</year>
          <month>10</month>
          <volume>38</volume>
          <issue>10</issue>
          <fpage>609</fpage>
          <lpage>13</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://jme.bmj.com/content/38/10/609"/>
          </comment>
          <pub-id pub-id-type="doi">10.1136/medethics-2011-100453</pub-id>
          <pub-id pub-id-type="medline">22736582</pub-id>
          <pub-id pub-id-type="pii">medethics-2011-100453</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref5">
        <label>5</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Lyden</surname>
              <given-names>M</given-names>
            </name>
          </person-group>
          <article-title>Assessment of sexual consent capacity</article-title>
          <source>Sex Disabil</source>
          <year>2007</year>
          <month>2</month>
          <day>20</day>
          <volume>25</volume>
          <issue>1</issue>
          <fpage>3</fpage>
          <lpage>20</lpage>
          <pub-id pub-id-type="doi">10.1007/s11195-006-9028-2</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref6">
        <label>6</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Ames</surname>
              <given-names>TR</given-names>
            </name>
            <name name-style="western">
              <surname>Samowitz</surname>
              <given-names>P</given-names>
            </name>
          </person-group>
          <article-title>Inclusionary standard for determining sexual consent for individuals with developmental disabilities</article-title>
          <source>Mental Retard</source>
          <year>1995</year>
          <volume>33</volume>
          <issue>4</issue>
          <fpage>264</fpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://www.proquest.com/docview/1293691834?pq-origsite=gscholar&#38;fromopenview=true&#38;imgSeq=1"/>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref7">
        <label>7</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Stavis</surname>
              <given-names>PF</given-names>
            </name>
          </person-group>
          <article-title>Harmonizing the right to sexual expression and the right to protection from harm for persons with mental disability</article-title>
          <source>Sex Disabil</source>
          <year>1991</year>
          <volume>9</volume>
          <issue>2</issue>
          <fpage>131</fpage>
          <lpage>41</lpage>
          <pub-id pub-id-type="doi">10.1007/bf01101738</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref8">
        <label>8</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Kaeser</surname>
              <given-names>F</given-names>
            </name>
          </person-group>
          <article-title>Can people with severe mental retardation consent to mutual sex?</article-title>
          <source>Sex Disabil</source>
          <year>1992</year>
          <volume>10</volume>
          <issue>1</issue>
          <fpage>33</fpage>
          <lpage>42</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://link.springer.com/article/10.1007/BF01102246"/>
          </comment>
          <pub-id pub-id-type="doi">10.1007/bf01102246</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref9">
        <label>9</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Hill Kennedy</surname>
              <given-names>C</given-names>
            </name>
            <name name-style="western">
              <surname>Niederbuhl</surname>
              <given-names>J</given-names>
            </name>
          </person-group>
          <article-title>Establishing criteria for sexual consent capacity</article-title>
          <source>Am J Mental Retard</source>
          <year>2001</year>
          <volume>106</volume>
          <issue>6</issue>
          <fpage>503</fpage>
          <pub-id pub-id-type="doi">10.1352/0895-8017(2001)106&#60;0503:ecfscc&#62;2.0.co;2</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref10">
        <label>10</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Abellard</surname>
              <given-names>J</given-names>
            </name>
            <name name-style="western">
              <surname>Rodgers</surname>
              <given-names>C</given-names>
            </name>
            <name name-style="western">
              <surname>Bales</surname>
              <given-names>A</given-names>
            </name>
          </person-group>
          <article-title>Balancing sexual expression and risk of harm in elderly persons with dementia</article-title>
          <source>J Am Acad Psychiatry Law</source>
          <year>2017</year>
          <volume>45</volume>
          <fpage>485</fpage>
          <lpage>92</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://web.archive.org/web/20180508093236id_/http://jaapl.org:80/content/jaapl/45/4/485.full.pdf"/>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref11">
        <label>11</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Stein</surname>
              <given-names>S</given-names>
            </name>
            <name name-style="western">
              <surname>Dillenburger</surname>
              <given-names>K</given-names>
            </name>
          </person-group>
          <article-title>Ethics in sexual behavior assessment and support for people with intellectual disability</article-title>
          <source>Int J Disab Hum Dev</source>
          <year>2016</year>
          <volume>16</volume>
          <issue>1</issue>
          <fpage>11</fpage>
          <lpage>7</lpage>
          <pub-id pub-id-type="doi">10.1515/ijdhd-2016-0023</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref12">
        <label>12</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Denno</surname>
              <given-names>DW</given-names>
            </name>
          </person-group>
          <article-title>Sexuality, rape, and mental retardation</article-title>
          <source>University of Illinois Law Review</source>
          <year>1997</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://heinonline.org/HOL/P?h=hein.journals/unilllr1997&#38;i=327">https://heinonline.org/HOL/P?h=hein.journals/unilllr1997&#38;i=327</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref13">
        <label>13</label>
        <nlm-citation citation-type="web">
          <article-title>Criminal code: C C-46</article-title>
          <source>CanLII</source>
          <year>1985</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://www.canlii.org/en/ca/laws/stat/rsc-1985-c-c-46/latest/">https://www.canlii.org/en/ca/laws/stat/rsc-1985-c-c-46/latest/</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref14">
        <label>14</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Lopes-Baker</surname>
              <given-names>A</given-names>
            </name>
            <name name-style="western">
              <surname>McDonald</surname>
              <given-names>M</given-names>
            </name>
            <name name-style="western">
              <surname>Schissler</surname>
              <given-names>J</given-names>
            </name>
          </person-group>
          <article-title>Canada and United States: campus sexual assault law and policy comparative analysis</article-title>
          <source>Can.-U.S. L.J</source>
          <year>2017</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://scholarlycommons.law.case.edu/cuslj/vol41/iss1/8">https://scholarlycommons.law.case.edu/cuslj/vol41/iss1/8</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref15">
        <label>15</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Curtice</surname>
              <given-names>M</given-names>
            </name>
            <name name-style="western">
              <surname>Mayo</surname>
              <given-names>J</given-names>
            </name>
            <name name-style="western">
              <surname>Crocombe</surname>
              <given-names>J</given-names>
            </name>
          </person-group>
          <article-title>Consent and sex in vulnerable adults: a review of case law</article-title>
          <source>Br J Learn Disabil</source>
          <year>2012</year>
          <month>06</month>
          <day>28</day>
          <volume>41</volume>
          <issue>4</issue>
          <fpage>280</fpage>
          <lpage>7</lpage>
          <pub-id pub-id-type="doi">10.1111/j.1468-3156.2012.00753.x</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref16">
        <label>16</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Syme</surname>
              <given-names>M</given-names>
            </name>
          </person-group>
          <article-title>Supporting safe sexual and intimate expression among older people in care homes</article-title>
          <source>Nurs Stand</source>
          <year>2017</year>
          <month>08</month>
          <day>23</day>
          <volume>31</volume>
          <issue>52</issue>
          <fpage>52</fpage>
          <lpage>63</lpage>
          <pub-id pub-id-type="doi">10.7748/ns.2017.e10906</pub-id>
          <pub-id pub-id-type="medline">28831892</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref17">
        <label>17</label>
        <nlm-citation citation-type="book">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Moras</surname>
              <given-names>R</given-names>
            </name>
          </person-group>
          <article-title>Feminism, rape culture, and intellectual disability: incorporating sexual self-advocacy and sexual consent capacity</article-title>
          <source>Emerging Perspectives on Disability Studies</source>
          <year>2013</year>
          <publisher-loc>New York</publisher-loc>
          <publisher-name>Palgrave Macmillan</publisher-name>
          <fpage>189</fpage>
          <lpage>207</lpage>
        </nlm-citation>
      </ref>
      <ref id="ref18">
        <label>18</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Doyle</surname>
              <given-names>S</given-names>
            </name>
          </person-group>
          <article-title>The notion of consent to sexual activity for persons with mental disabilities</article-title>
          <source>Liverpool Law Rev</source>
          <year>2010</year>
          <month>10</month>
          <day>26</day>
          <volume>31</volume>
          <issue>2</issue>
          <fpage>111</fpage>
          <lpage>35</lpage>
          <pub-id pub-id-type="doi">10.1007/s10991-010-9076-7</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref19">
        <label>19</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Lindsay</surname>
              <given-names>JR</given-names>
            </name>
          </person-group>
          <article-title>The need for more specific legislation in sexual consent capacity assessments for nursing home residents</article-title>
          <source>J Leg Med</source>
          <year>2010</year>
          <month>07</month>
          <day>31</day>
          <volume>31</volume>
          <issue>3</issue>
          <fpage>303</fpage>
          <lpage>23</lpage>
          <pub-id pub-id-type="doi">10.1080/01947648.2010.505835</pub-id>
          <pub-id pub-id-type="medline">20830640</pub-id>
          <pub-id pub-id-type="pii">926729376</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref20">
        <label>20</label>
        <nlm-citation citation-type="book">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Dimopoulos</surname>
              <given-names>A</given-names>
            </name>
          </person-group>
          <source>Issues in Human Rights Protection of Intellectually Disabled Persons</source>
          <year>2010</year>
          <publisher-loc>London, UK</publisher-loc>
          <publisher-name>Routledge</publisher-name>
        </nlm-citation>
      </ref>
      <ref id="ref21">
        <label>21</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Rowlands</surname>
              <given-names>S</given-names>
            </name>
            <name name-style="western">
              <surname>Amy</surname>
              <given-names>JJ</given-names>
            </name>
          </person-group>
          <article-title>Sterilization of those with intellectual disability: evolution from non-consensual interventions to strict safeguards</article-title>
          <source>J Intellect Disabil</source>
          <year>2019</year>
          <month>06</month>
          <volume>23</volume>
          <issue>2</issue>
          <fpage>233</fpage>
          <lpage>49</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1177/1744629517747162"/>
          </comment>
          <pub-id pub-id-type="doi">10.1177/1744629517747162</pub-id>
          <pub-id pub-id-type="medline">29228865</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref22">
        <label>22</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Hillman</surname>
              <given-names>J</given-names>
            </name>
          </person-group>
          <article-title>Sexual consent capacity: ethical issues and challenges in long-term care</article-title>
          <source>Clin Gerontol</source>
          <year>2017</year>
          <month>05</month>
          <day>10</day>
          <volume>40</volume>
          <issue>1</issue>
          <fpage>43</fpage>
          <lpage>50</lpage>
          <pub-id pub-id-type="doi">10.1080/07317115.2016.1185488</pub-id>
          <pub-id pub-id-type="medline">28452627</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref23">
        <label>23</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Victor</surname>
              <given-names>E</given-names>
            </name>
            <name name-style="western">
              <surname>Guidry-Grimes</surname>
              <given-names>L</given-names>
            </name>
          </person-group>
          <article-title>Relational autonomy in action: rethinking dementia and sexuality in care facilities</article-title>
          <source>Nurs Ethics</source>
          <year>2019</year>
          <month>09</month>
          <day>18</day>
          <volume>26</volume>
          <issue>6</issue>
          <fpage>1654</fpage>
          <lpage>64</lpage>
          <pub-id pub-id-type="doi">10.1177/0969733018780527</pub-id>
          <pub-id pub-id-type="medline">30021486</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref24">
        <label>24</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Richardson</surname>
              <given-names>JP</given-names>
            </name>
            <name name-style="western">
              <surname>Lazur</surname>
              <given-names>A</given-names>
            </name>
          </person-group>
          <article-title>Sexuality in the nursing home patient</article-title>
          <source>Am Fam Physician</source>
          <year>1995</year>
          <month>01</month>
          <volume>51</volume>
          <issue>1</issue>
          <fpage>121</fpage>
          <lpage>4</lpage>
          <pub-id pub-id-type="medline">7810464</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref25">
        <label>25</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Greydanus</surname>
              <given-names>D</given-names>
            </name>
            <name name-style="western">
              <surname>Omar</surname>
              <given-names>HA</given-names>
            </name>
          </person-group>
          <article-title>Sexuality issues and gynecologic care of adolescents with developmental disabilities</article-title>
          <source>Pediatr Clin North Am</source>
          <year>2008</year>
          <month>12</month>
          <volume>55</volume>
          <issue>6</issue>
          <fpage>1315</fpage>
          <lpage>35, viii</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1016/j.pcl.2008.08.002"/>
          </comment>
          <pub-id pub-id-type="doi">10.1016/j.pcl.2008.08.002</pub-id>
          <pub-id pub-id-type="medline">19041460</pub-id>
          <pub-id pub-id-type="pii">S0031-3955(08)00165-X</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref26">
        <label>26</label>
        <nlm-citation citation-type="book">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Ambrosini</surname>
              <given-names>D</given-names>
            </name>
            <name name-style="western">
              <surname>Hategan</surname>
              <given-names>A</given-names>
            </name>
            <name name-style="western">
              <surname>Bourgeois</surname>
              <given-names>J</given-names>
            </name>
          </person-group>
          <article-title>The sexual consent and patients with major neurocognitive disorders</article-title>
          <source>On-Call Geriat Psychiatry</source>
          <year>2016</year>
          <publisher-loc>Cham</publisher-loc>
          <publisher-name>Springer</publisher-name>
          <fpage>209</fpage>
          <lpage>15</lpage>
        </nlm-citation>
      </ref>
      <ref id="ref27">
        <label>27</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Bradley</surname>
              <given-names>C</given-names>
            </name>
          </person-group>
          <article-title>Supporting intimacy in the rehabilitative, assisted, and long-term care settings</article-title>
          <source>Topics Geriat Rehab</source>
          <year>2016</year>
          <volume>32</volume>
          <issue>3</issue>
          <fpage>218</fpage>
          <lpage>20</lpage>
          <pub-id pub-id-type="doi">10.1097/TGR.0000000000000113</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref28">
        <label>28</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Wilkins</surname>
              <given-names>JM</given-names>
            </name>
          </person-group>
          <article-title>More than capacity: alternatives for sexual decision making for individuals with dementia</article-title>
          <source>Gerontologist</source>
          <year>2015</year>
          <month>10</month>
          <day>27</day>
          <volume>55</volume>
          <issue>5</issue>
          <fpage>716</fpage>
          <lpage>23</lpage>
          <pub-id pub-id-type="doi">10.1093/geront/gnv098</pub-id>
          <pub-id pub-id-type="medline">26315314</pub-id>
          <pub-id pub-id-type="pii">gnv098</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref29">
        <label>29</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Roelofs</surname>
              <given-names>T</given-names>
            </name>
            <name name-style="western">
              <surname>Luijkx</surname>
              <given-names>KG</given-names>
            </name>
            <name name-style="western">
              <surname>Embregts</surname>
              <given-names>PJ</given-names>
            </name>
          </person-group>
          <article-title>Intimacy and sexuality of nursing home residents with dementia: a systematic review</article-title>
          <source>Int Psychogeriatr</source>
          <year>2014</year>
          <month>11</month>
          <day>10</day>
          <volume>27</volume>
          <issue>3</issue>
          <fpage>367</fpage>
          <lpage>84</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1017/S1041610214002373"/>
          </comment>
          <pub-id pub-id-type="doi">10.1017/s1041610214002373</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref30">
        <label>30</label>
        <nlm-citation citation-type="web">
          <article-title>Article 130 - NY Penal Law</article-title>
          <source>New York State Law</source>
          <year>2020</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="http://ypdcrime.com/penal.law/article130.htm#p130.05">http://ypdcrime.com/penal.law/article130.htm#p130.05</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref31">
        <label>31</label>
        <nlm-citation citation-type="web">
          <article-title>Sexual and reproductive health</article-title>
          <source>World Health Organization</source>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://www.who.int/reproductivehealth/topics/gender_rights/sexual_health/en/">https://www.who.int/reproductivehealth/topics/gender_rights/sexual_health/en/</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref32">
        <label>32</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Dufour</surname>
              <given-names>M</given-names>
            </name>
            <name name-style="western">
              <surname>Hastings</surname>
              <given-names>T</given-names>
            </name>
            <name name-style="western">
              <surname>O'Reilly</surname>
              <given-names>R</given-names>
            </name>
          </person-group>
          <article-title>Canada should retain its reservation on the United Nation's convention on the rights of persons with disabilities</article-title>
          <source>Can J Psychiatry</source>
          <year>2018</year>
          <month>12</month>
          <volume>63</volume>
          <issue>12</issue>
          <fpage>809</fpage>
          <lpage>12</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="http://europepmc.org/abstract/MED/29925272"/>
          </comment>
          <pub-id pub-id-type="doi">10.1177/0706743718784939</pub-id>
          <pub-id pub-id-type="medline">29925272</pub-id>
          <pub-id pub-id-type="pmcid">PMC6309045</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref33">
        <label>33</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Kanter</surname>
              <given-names>AS</given-names>
            </name>
          </person-group>
          <article-title>Let’s try again: why the United States should ratify the United Nations convention on the rights of people with disabilities</article-title>
          <source>Touro Law Review</source>
          <year>2019</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://www.semanticscholar.org/paper/Let%E2%80%99s-Try-Again%3A-Why-the-United-States-Should-the-Kanter/deb1902d5190ff9e128e809b7c82ec0d44969890">https://tinyurl.com/mrxezvem</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref34">
        <label>34</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Crawford</surname>
              <given-names>D</given-names>
            </name>
          </person-group>
          <article-title>Assessment of staff perceptions of sexual behavior among persons with intellectual and developmental disabilities</article-title>
          <source>Dissertation, Massachusetts School of Professional Psychology</source>
          <year>2014</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://www.proquest.com/docview/1558180795?pq-origsite=gscholar&#38;fromopenview=true">https://www.proquest.com/docview/1558180795?pq-origsite=gscholar&#38;fromopenview=true</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref35">
        <label>35</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Senn</surname>
              <given-names>CY</given-names>
            </name>
          </person-group>
          <article-title>Vulnerable: sexual abuse and people with an intellectual handicap</article-title>
          <source>ERIC Institute of Education Sciences</source>
          <year>1988</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://eric.ed.gov/?id=ED302975">https://eric.ed.gov/?id=ED302975</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref36">
        <label>36</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Mahoney</surname>
              <given-names>A</given-names>
            </name>
            <name name-style="western">
              <surname>Poling</surname>
              <given-names>A</given-names>
            </name>
          </person-group>
          <article-title>Sexual abuse prevention for people with severe developmental disabilities</article-title>
          <source>J Dev Phys Disabil</source>
          <year>2011</year>
          <month>5</month>
          <day>3</day>
          <volume>23</volume>
          <issue>4</issue>
          <fpage>369</fpage>
          <lpage>76</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://link.springer.com/content/pdf/10.1007/s10882-011-9244-2.pdf"/>
          </comment>
          <pub-id pub-id-type="doi">10.1007/s10882-011-9244-2</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref37">
        <label>37</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Hershkowitz</surname>
              <given-names>I</given-names>
            </name>
            <name name-style="western">
              <surname>Lamb</surname>
              <given-names>ME</given-names>
            </name>
            <name name-style="western">
              <surname>Horowitz</surname>
              <given-names>D</given-names>
            </name>
          </person-group>
          <article-title>Victimization of children with disabilities</article-title>
          <source>Am J Orthopsychiatry</source>
          <year>2007</year>
          <month>10</month>
          <volume>77</volume>
          <issue>4</issue>
          <fpage>629</fpage>
          <lpage>35</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1037/0002-9432.77.4.629"/>
          </comment>
          <pub-id pub-id-type="doi">10.1037/0002-9432.77.4.629</pub-id>
          <pub-id pub-id-type="medline">18194043</pub-id>
          <pub-id pub-id-type="pii">2007-19519-015</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref38">
        <label>38</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Martin</surname>
              <given-names>S</given-names>
            </name>
            <name name-style="western">
              <surname>Ray</surname>
              <given-names>N</given-names>
            </name>
            <name name-style="western">
              <surname>Sotres-Alvarez</surname>
              <given-names>D</given-names>
            </name>
            <name name-style="western">
              <surname>Kupper</surname>
              <given-names>LL</given-names>
            </name>
            <name name-style="western">
              <surname>Moracco</surname>
              <given-names>KE</given-names>
            </name>
            <name name-style="western">
              <surname>Dickens</surname>
              <given-names>PA</given-names>
            </name>
            <name name-style="western">
              <surname>Scandlin</surname>
              <given-names>D</given-names>
            </name>
            <name name-style="western">
              <surname>Gizlice</surname>
              <given-names>Z</given-names>
            </name>
          </person-group>
          <article-title>Physical and sexual assault of women with disabilities</article-title>
          <source>Violence Against Women</source>
          <year>2006</year>
          <month>09</month>
          <volume>12</volume>
          <issue>9</issue>
          <fpage>823</fpage>
          <lpage>37</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1177/1077801206292672"/>
          </comment>
          <pub-id pub-id-type="doi">10.1177/1077801206292672</pub-id>
          <pub-id pub-id-type="medline">16905675</pub-id>
          <pub-id pub-id-type="pii">12/9/823</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref39">
        <label>39</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>McCormack</surname>
              <given-names>B</given-names>
            </name>
            <name name-style="western">
              <surname>Kavanagh</surname>
              <given-names>D</given-names>
            </name>
            <name name-style="western">
              <surname>Caffrey</surname>
              <given-names>S</given-names>
            </name>
            <name name-style="western">
              <surname>Power</surname>
              <given-names>A</given-names>
            </name>
          </person-group>
          <article-title>Investigating sexual abuse: findings of a 15-year longitudinal study</article-title>
          <source>J Appl Res Int Dis</source>
          <year>2005</year>
          <month>09</month>
          <volume>18</volume>
          <issue>3</issue>
          <fpage>217</fpage>
          <lpage>27</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1111/j.1468-3148.2005.00236.x"/>
          </comment>
          <pub-id pub-id-type="doi">10.1111/j.1468-3148.2005.00236.x</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref40">
        <label>40</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Murphy</surname>
              <given-names>G</given-names>
            </name>
            <name name-style="western">
              <surname>O'Callaghan</surname>
              <given-names>Ali</given-names>
            </name>
          </person-group>
          <article-title>Capacity of adults with intellectual disabilities to consent to sexual relationships</article-title>
          <source>Psychol Med</source>
          <year>2004</year>
          <month>10</month>
          <volume>34</volume>
          <issue>7</issue>
          <fpage>1347</fpage>
          <lpage>57</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1017/S0033291704001941"/>
          </comment>
          <pub-id pub-id-type="doi">10.1017/s0033291704001941</pub-id>
          <pub-id pub-id-type="medline">15697061</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref41">
        <label>41</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Benbow</surname>
              <given-names>S</given-names>
            </name>
            <name name-style="western">
              <surname>Jagus</surname>
              <given-names>CE</given-names>
            </name>
          </person-group>
          <article-title>Sexuality in older women with mental health problems</article-title>
          <source>Sex Rel Ther</source>
          <year>2002</year>
          <month>08</month>
          <volume>17</volume>
          <issue>3</issue>
          <fpage>261</fpage>
          <lpage>70</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1080/14681990220149068"/>
          </comment>
          <pub-id pub-id-type="doi">10.1080/14681990220149068</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref42">
        <label>42</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Hornor</surname>
              <given-names>G</given-names>
            </name>
          </person-group>
          <article-title>Sexual behavior in children</article-title>
          <source>J Pediatr Health Care</source>
          <year>2004</year>
          <month>3</month>
          <volume>18</volume>
          <issue>2</issue>
          <fpage>57</fpage>
          <lpage>64</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1016/S0891-5245(03)00154-8"/>
          </comment>
          <pub-id pub-id-type="doi">10.1016/s0891-5245(03)00154-8</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref43">
        <label>43</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Patterson</surname>
              <given-names>T</given-names>
            </name>
            <name name-style="western">
              <surname>Scott</surname>
              <given-names>C</given-names>
            </name>
          </person-group>
          <article-title>Behavioral management of inappropriate masturbation in an 8-year-old girl</article-title>
          <source>Child Fam Behav Ther</source>
          <year>2013</year>
          <month>07</month>
          <volume>35</volume>
          <issue>3</issue>
          <fpage>256</fpage>
          <lpage>63</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1080/07317107.2013.818907"/>
          </comment>
          <pub-id pub-id-type="doi">10.1080/07317107.2013.818907</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref44">
        <label>44</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Casteels</surname>
              <given-names>K</given-names>
            </name>
            <name name-style="western">
              <surname>Wouters</surname>
              <given-names>C</given-names>
            </name>
            <name name-style="western">
              <surname>Van Geet</surname>
              <given-names>C</given-names>
            </name>
            <name name-style="western">
              <surname>Devlieger</surname>
              <given-names>H</given-names>
            </name>
          </person-group>
          <article-title>Video reveals self-stimulation in infancy</article-title>
          <source>Acta Paediatrica</source>
          <year>2004</year>
          <volume>93</volume>
          <issue>6</issue>
          <fpage>844</fpage>
          <lpage>6</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1111/j.1651-2227.2004.tb03029.x"/>
          </comment>
          <pub-id pub-id-type="doi">10.1111/j.1651-2227.2004.tb03029.x</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref45">
        <label>45</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Kennedy</surname>
              <given-names>C</given-names>
            </name>
          </person-group>
          <article-title>Legal and psychological implications in the assessment of sexual consent in the cognitively impaired population</article-title>
          <source>Assessment</source>
          <year>2003</year>
          <month>12</month>
          <volume>10</volume>
          <issue>4</issue>
          <fpage>352</fpage>
          <lpage>8</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1177/1073191103258592"/>
          </comment>
          <pub-id pub-id-type="doi">10.1177/1073191103258592</pub-id>
          <pub-id pub-id-type="medline">14682481</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref46">
        <label>46</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Tissot</surname>
              <given-names>C</given-names>
            </name>
          </person-group>
          <article-title>Establishing a sexual identity. Case studies of learners with autism and learning difficulties</article-title>
          <source>Autism</source>
          <year>2009</year>
          <month>11</month>
          <volume>13</volume>
          <issue>6</issue>
          <fpage>551</fpage>
          <lpage>66</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1177/1362361309338183"/>
          </comment>
          <pub-id pub-id-type="doi">10.1177/1362361309338183</pub-id>
          <pub-id pub-id-type="medline">19933763</pub-id>
          <pub-id pub-id-type="pii">13/6/551</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref47">
        <label>47</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Morano</surname>
              <given-names>JP</given-names>
            </name>
          </person-group>
          <article-title>Sexual abuse of the mentally retarded patient: medical and legal analysis for the primary care physician</article-title>
          <source>Prim Care Companion J Clin Psychiatry</source>
          <year>2001</year>
          <month>06</month>
          <volume>3</volume>
          <issue>3</issue>
          <fpage>126</fpage>
          <lpage>35</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="http://www.psychiatrist.com/pcc/sexual-abuse-mentally-retarded-patient-medical-legal"/>
          </comment>
          <pub-id pub-id-type="doi">10.4088/pcc.v03n0304</pub-id>
          <pub-id pub-id-type="medline">15014610</pub-id>
          <pub-id pub-id-type="pmcid">PMC181173</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref48">
        <label>48</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Onstot</surname>
              <given-names>A</given-names>
            </name>
          </person-group>
          <article-title>Capacity to consent: policies and practices that limit sexual consent for people with intellectual/developmental disabilities</article-title>
          <source>Sex Disabil</source>
          <year>2019</year>
          <month>7</month>
          <day>1</day>
          <volume>37</volume>
          <issue>4</issue>
          <fpage>633</fpage>
          <lpage>44</lpage>
          <pub-id pub-id-type="doi">10.1007/s11195-019-09580-9</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref49">
        <label>49</label>
        <nlm-citation citation-type="book">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Davis</surname>
              <given-names>LJ</given-names>
            </name>
          </person-group>
          <article-title>At the same time, out of time: Ashley X</article-title>
          <source>The Disability Studies Reader</source>
          <year>2016</year>
          <publisher-loc>New York</publisher-loc>
          <publisher-name>Routledge</publisher-name>
        </nlm-citation>
      </ref>
      <ref id="ref50">
        <label>50</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>McKay</surname>
              <given-names>T</given-names>
            </name>
            <name name-style="western">
              <surname>Lindquist</surname>
              <given-names>CH</given-names>
            </name>
            <name name-style="western">
              <surname>Misra</surname>
              <given-names>S</given-names>
            </name>
          </person-group>
          <article-title>Understanding (and acting on) 20 years of research on violence and LGBTQ + communities</article-title>
          <source>Trauma Viol Abuse</source>
          <year>2019</year>
          <month>12</month>
          <volume>20</volume>
          <issue>5</issue>
          <fpage>665</fpage>
          <lpage>78</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1177/1524838017728708"/>
          </comment>
          <pub-id pub-id-type="doi">10.1177/1524838017728708</pub-id>
          <pub-id pub-id-type="medline">29334007</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref51">
        <label>51</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Toomey</surname>
              <given-names>R</given-names>
            </name>
            <name name-style="western">
              <surname>Russell</surname>
              <given-names>St</given-names>
            </name>
          </person-group>
          <article-title>The role of sexual orientation in school-based victimization</article-title>
          <source>Youth Society</source>
          <year>2013</year>
          <month>04</month>
          <day>08</day>
          <volume>48</volume>
          <issue>2</issue>
          <fpage>176</fpage>
          <lpage>201</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1177/0044118X13483778"/>
          </comment>
          <pub-id pub-id-type="doi">10.1177/0044118x13483778</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref52">
        <label>52</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Katz-Wise</surname>
              <given-names>S</given-names>
            </name>
            <name name-style="western">
              <surname>Hyde</surname>
              <given-names>JS</given-names>
            </name>
          </person-group>
          <article-title>Victimization experiences of lesbian, gay, and bisexual individuals: a meta-analysis</article-title>
          <source>J Sex Res</source>
          <year>2012</year>
          <volume>49</volume>
          <issue>2-3</issue>
          <fpage>142</fpage>
          <lpage>67</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1080/00224499.2011.637247"/>
          </comment>
          <pub-id pub-id-type="doi">10.1080/00224499.2011.637247</pub-id>
          <pub-id pub-id-type="medline">22380586</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref53">
        <label>53</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Friedman</surname>
              <given-names>M</given-names>
            </name>
            <name name-style="western">
              <surname>Marshal</surname>
              <given-names>MP</given-names>
            </name>
            <name name-style="western">
              <surname>Guadamuz</surname>
              <given-names>TE</given-names>
            </name>
            <name name-style="western">
              <surname>Wei</surname>
              <given-names>C</given-names>
            </name>
            <name name-style="western">
              <surname>Wong</surname>
              <given-names>CF</given-names>
            </name>
            <name name-style="western">
              <surname>Saewyc</surname>
              <given-names>EM</given-names>
            </name>
            <name name-style="western">
              <surname>Stall</surname>
              <given-names>R</given-names>
            </name>
          </person-group>
          <article-title>A meta-analysis of disparities in childhood sexual abuse, parental physical abuse, and peer victimization among sexual minority and sexual nonminority individuals</article-title>
          <source>Am J Public Health</source>
          <year>2011</year>
          <month>08</month>
          <volume>101</volume>
          <issue>8</issue>
          <fpage>1481</fpage>
          <lpage>94</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.2105/AJPH.2009.190009"/>
          </comment>
          <pub-id pub-id-type="doi">10.2105/ajph.2009.190009</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref54">
        <label>54</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Archibald</surname>
              <given-names>C</given-names>
            </name>
          </person-group>
          <article-title>Sexuality and dementia in residential care--whose responsibility?</article-title>
          <source>Sex Rel Ther</source>
          <year>2002</year>
          <month>08</month>
          <volume>17</volume>
          <issue>3</issue>
          <fpage>301</fpage>
          <lpage>9</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1080/14681990220149103"/>
          </comment>
          <pub-id pub-id-type="doi">10.1080/14681990220149103</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref55">
        <label>55</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Doll</surname>
              <given-names>GM</given-names>
            </name>
          </person-group>
          <article-title>Sexuality in nursing homes: practice and policy</article-title>
          <source>J Gerontol Nurs</source>
          <year>2013</year>
          <month>07</month>
          <day>26</day>
          <volume>39</volume>
          <issue>7</issue>
          <fpage>30</fpage>
          <lpage>8</lpage>
          <pub-id pub-id-type="doi">10.3928/00989134-20130418-01</pub-id>
          <pub-id pub-id-type="medline">23614386</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref56">
        <label>56</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Winges-Yanez</surname>
              <given-names>N</given-names>
            </name>
          </person-group>
          <article-title>Why all the talk about sex? An authoethnography identifying the troubling discourse of sexuality and intellectual disability</article-title>
          <source>Sex Disabil</source>
          <year>2013</year>
          <month>11</month>
          <day>17</day>
          <volume>32</volume>
          <issue>1</issue>
          <fpage>107</fpage>
          <lpage>16</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://link.springer.com/content/pdf/10.1007/s11195-013-9331-7.pdf"/>
          </comment>
          <pub-id pub-id-type="doi">10.1007/s11195-013-9331-7</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref57">
        <label>57</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Feely</surname>
              <given-names>M</given-names>
            </name>
          </person-group>
          <article-title>Sexual surveillance and control in a community-based intellectual disability service</article-title>
          <source>Sexualities</source>
          <year>2016</year>
          <month>06</month>
          <day>02</day>
          <volume>19</volume>
          <issue>5-6</issue>
          <fpage>725</fpage>
          <lpage>50</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1177/1363460715620575"/>
          </comment>
          <pub-id pub-id-type="doi">10.1177/1363460715620575</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref58">
        <label>58</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>English</surname>
              <given-names>B</given-names>
            </name>
            <name name-style="western">
              <surname>Tickle</surname>
              <given-names>A</given-names>
            </name>
            <name name-style="western">
              <surname>dasNair</surname>
              <given-names>R</given-names>
            </name>
          </person-group>
          <article-title>Views and experiences of people with intellectual disabilities regarding intimate relationships: a qualitative metasynthesis</article-title>
          <source>Sex Disabil</source>
          <year>2017</year>
          <month>8</month>
          <day>17</day>
          <volume>36</volume>
          <issue>2</issue>
          <fpage>149</fpage>
          <lpage>73</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://link.springer.com/article/10.1007/s11195-017-9502-z"/>
          </comment>
          <pub-id pub-id-type="doi">10.1007/s11195-017-9502-z</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref59">
        <label>59</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Miles</surname>
              <given-names>SH</given-names>
            </name>
            <name name-style="western">
              <surname>Parker</surname>
              <given-names>K</given-names>
            </name>
          </person-group>
          <article-title>Sexuality in the nursing home: iatrogenic loneliness</article-title>
          <source>Gen J Am Society Aging</source>
          <year>1999</year>
          <volume>23</volume>
          <issue>1</issue>
          <fpage>36</fpage>
          <lpage>43</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://www.jstor.org/stable/44873333"/>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref60">
        <label>60</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Hamilton</surname>
              <given-names>C</given-names>
            </name>
          </person-group>
          <article-title>‘Now I’d like to sleep with Rachael’ – researching sexuality support in a service agency group home</article-title>
          <source>Disab Society</source>
          <year>2009</year>
          <month>04</month>
          <day>14</day>
          <volume>24</volume>
          <issue>3</issue>
          <fpage>303</fpage>
          <lpage>15</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1080/09687590902789461"/>
          </comment>
          <pub-id pub-id-type="doi">10.1080/09687590902789461</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref61">
        <label>61</label>
        <nlm-citation citation-type="book">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Stone</surname>
              <given-names>D</given-names>
            </name>
          </person-group>
          <source>Policy Paradox: The Art of Political Decision Making. 3rd Ed</source>
          <year>2012</year>
          <publisher-loc>New York</publisher-loc>
          <publisher-name>WW Norton &#38; Company</publisher-name>
          <fpage>271</fpage>
          <lpage>88</lpage>
        </nlm-citation>
      </ref>
      <ref id="ref62">
        <label>62</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Campbell</surname>
              <given-names>M</given-names>
            </name>
          </person-group>
          <article-title>Disabilities and sexual expression: a review of the literature</article-title>
          <source>Sociol Compass</source>
          <year>2017</year>
          <month>08</month>
          <day>08</day>
          <volume>11</volume>
          <issue>9</issue>
          <fpage>e12508</fpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1111/soc4.12508"/>
          </comment>
          <pub-id pub-id-type="doi">10.1111/soc4.12508</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref63">
        <label>63</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Perlin</surname>
              <given-names>ML</given-names>
            </name>
            <name name-style="western">
              <surname>Lynch</surname>
              <given-names>AJ</given-names>
            </name>
          </person-group>
          <article-title>All his sexless patients: persons with mental disabilities and the competence to have sex</article-title>
          <source>Washington Law Review</source>
          <year>2014</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://digitalcommons.law.uw.edu/wlr/vol89/iss2/13/">https://digitalcommons.law.uw.edu/wlr/vol89/iss2/13/</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref64">
        <label>64</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Braun</surname>
              <given-names>K</given-names>
            </name>
            <name name-style="western">
              <surname>Herrmann</surname>
              <given-names>SL</given-names>
            </name>
            <name name-style="western">
              <surname>Brekke</surname>
              <given-names>OA</given-names>
            </name>
          </person-group>
          <article-title>Sterilization policies, moral rehabilitation and the politics of amends</article-title>
          <source>Crit Policy Stud</source>
          <year>2014</year>
          <month>06</month>
          <day>19</day>
          <volume>8</volume>
          <issue>2</issue>
          <fpage>203</fpage>
          <lpage>26</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1080/19460171.2013.869179"/>
          </comment>
          <pub-id pub-id-type="doi">10.1080/19460171.2013.869179</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref65">
        <label>65</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Ward</surname>
              <given-names>L</given-names>
            </name>
          </person-group>
          <article-title>Eugenics, euthenics, and eudemics</article-title>
          <source>Am J Sociol</source>
          <year>1913</year>
          <month>05</month>
          <volume>18</volume>
          <issue>6</issue>
          <fpage>737</fpage>
          <lpage>54</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://www.journals.uchicago.edu/doi/pdf/10.1086/212155"/>
          </comment>
          <pub-id pub-id-type="doi">10.1086/212155</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref66">
        <label>66</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Arstein-Kerslake</surname>
              <given-names>A</given-names>
            </name>
          </person-group>
          <article-title>Understanding sex: the right to legal capacity to consent to sex</article-title>
          <source>Disab Society</source>
          <year>2015</year>
          <month>12</month>
          <day>14</day>
          <volume>30</volume>
          <issue>10</issue>
          <fpage>1459</fpage>
          <lpage>73</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1080/09687599.2015.1116059"/>
          </comment>
          <pub-id pub-id-type="doi">10.1080/09687599.2015.1116059</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref67">
        <label>67</label>
        <nlm-citation citation-type="book">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Trent Jr</surname>
              <given-names>JW</given-names>
            </name>
          </person-group>
          <source>Inventing the Feeble Mind: A History of Mental Retardation in the United States</source>
          <year>1994</year>
          <publisher-loc>Berkeley, California</publisher-loc>
          <publisher-name>University of California Press</publisher-name>
        </nlm-citation>
      </ref>
      <ref id="ref68">
        <label>68</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Wilson</surname>
              <given-names>R</given-names>
            </name>
          </person-group>
          <article-title>Eugenics undefended</article-title>
          <source>Monash Bioeth Rev</source>
          <year>2019</year>
          <month>10</month>
          <volume>37</volume>
          <issue>1-2</issue>
          <fpage>68</fpage>
          <lpage>75</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://link.springer.com/article/10.1007/s40592-019-00094-w"/>
          </comment>
          <pub-id pub-id-type="doi">10.1007/s40592-019-00094-w</pub-id>
          <pub-id pub-id-type="medline">31325149</pub-id>
          <pub-id pub-id-type="pii">10.1007/s40592-019-00094-w</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref69">
        <label>69</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>de Oliveira</surname>
              <given-names>IT</given-names>
            </name>
            <name name-style="western">
              <surname>Dias</surname>
              <given-names>JG</given-names>
            </name>
            <name name-style="western">
              <surname>Padmadas</surname>
              <given-names>SS</given-names>
            </name>
          </person-group>
          <article-title>Dominance of sterilization and alternative choices of contraception in India: an appraisal of the socioeconomic impact</article-title>
          <source>PLoS One</source>
          <year>2014</year>
          <volume>9</volume>
          <issue>1</issue>
          <fpage>e86654</fpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://dx.plos.org/10.1371/journal.pone.0086654"/>
          </comment>
          <pub-id pub-id-type="doi">10.1371/journal.pone.0086654</pub-id>
          <pub-id pub-id-type="medline">24489759</pub-id>
          <pub-id pub-id-type="pii">PONE-D-13-35473</pub-id>
          <pub-id pub-id-type="pmcid">PMC3904921</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref70">
        <label>70</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Tilley</surname>
              <given-names>E</given-names>
            </name>
            <name name-style="western">
              <surname>Walmsley</surname>
              <given-names>J</given-names>
            </name>
            <name name-style="western">
              <surname>Earle</surname>
              <given-names>S</given-names>
            </name>
            <name name-style="western">
              <surname>Atkinson</surname>
              <given-names>D</given-names>
            </name>
          </person-group>
          <article-title>‘The silence is roaring’: sterilization, reproductive rights and women with intellectual disabilities</article-title>
          <source>Disab Society</source>
          <year>2012</year>
          <month>05</month>
          <volume>27</volume>
          <issue>3</issue>
          <fpage>413</fpage>
          <lpage>26</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1080/09687599.2012.654991"/>
          </comment>
          <pub-id pub-id-type="doi">10.1080/09687599.2012.654991</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref71">
        <label>71</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Goldman</surname>
              <given-names>EB</given-names>
            </name>
            <name name-style="western">
              <surname>Quint</surname>
              <given-names>EH</given-names>
            </name>
          </person-group>
          <article-title>Arguments against sterilization of developmentally disabled minors</article-title>
          <source>J Child Neurol</source>
          <year>2011</year>
          <month>05</month>
          <day>29</day>
          <volume>26</volume>
          <issue>5</issue>
          <fpage>654</fpage>
          <lpage>6</lpage>
          <pub-id pub-id-type="doi">10.1177/0883073811402077</pub-id>
          <pub-id pub-id-type="medline">21531911</pub-id>
          <pub-id pub-id-type="pii">26/5/654</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref72">
        <label>72</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Di Giulio</surname>
              <given-names>G</given-names>
            </name>
          </person-group>
          <article-title>Sexuality and people living with physical or developmental disabilities: a review of key issues</article-title>
          <source>Can J Hum Sexual</source>
          <year>2003</year>
          <volume>12</volume>
          <issue>1</issue>
          <fpage>53</fpage>
          <lpage>68</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://www.researchgate.net/publication/279569171_Sexuality_and_people_living_with_physical_or_developmental_disabilities_A_review_of_key_issues"/>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref73">
        <label>73</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>McCarthy</surname>
              <given-names>M</given-names>
            </name>
          </person-group>
          <article-title>‘I have the jab so I can't be blamed for getting pregnant’: contraception and women with learning disabilities</article-title>
          <source>Women's Stud Int Forum</source>
          <year>2009</year>
          <month>5</month>
          <volume>32</volume>
          <issue>3</issue>
          <fpage>198</fpage>
          <lpage>208</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1016/j.wsif.2009.05.003"/>
          </comment>
          <pub-id pub-id-type="doi">10.1016/j.wsif.2009.05.003</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref74">
        <label>74</label>
        <nlm-citation citation-type="web">
          <article-title>E. (Mrs.) v. Eve</article-title>
          <source>Supreme Court of Canada Judgments</source>
          <year>1986</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://scc-csc.lexum.com/scc-csc/scc-csc/en/item/170/index.do">https://scc-csc.lexum.com/scc-csc/scc-csc/en/item/170/index.do</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref75">
        <label>75</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Shea</surname>
              <given-names>CM</given-names>
            </name>
            <name name-style="western">
              <surname>Kevles</surname>
              <given-names>DJ</given-names>
            </name>
          </person-group>
          <article-title>In the name of eugenics: genetics and the uses of human heredity</article-title>
          <source>History Edu Q</source>
          <year>1986</year>
          <volume>26</volume>
          <issue>4</issue>
          <fpage>621</fpage>
          <pub-id pub-id-type="doi">10.2307/369028</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref76">
        <label>76</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Park</surname>
              <given-names>D</given-names>
            </name>
            <name name-style="western">
              <surname>Radford</surname>
              <given-names>JP</given-names>
            </name>
          </person-group>
          <article-title>From the case files: reconstructing a history of involuntary sterilisation</article-title>
          <source>Disabil Soc</source>
          <year>1998</year>
          <month>06</month>
          <volume>13</volume>
          <issue>3</issue>
          <fpage>317</fpage>
          <lpage>42</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1080/09687599826669"/>
          </comment>
          <pub-id pub-id-type="doi">10.1080/09687599826669</pub-id>
          <pub-id pub-id-type="medline">11660707</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref77">
        <label>77</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Tenenbaum</surname>
              <given-names>EM</given-names>
            </name>
          </person-group>
          <article-title>To be or to exist: standards for deciding whether dementia patients in nursing homes should engage in intimacy, sex, and adultery</article-title>
          <source>Indiana Law Review</source>
          <year>2009</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://journals.iupui.edu/index.php/inlawrev/article/view/4005">https://journals.iupui.edu/index.php/inlawrev/article/view/4005</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref78">
        <label>78</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Hajjar</surname>
              <given-names>R</given-names>
            </name>
            <name name-style="western">
              <surname>Kamel</surname>
              <given-names>Hk</given-names>
            </name>
          </person-group>
          <article-title>Sexuality in the nursing home, part 1: attitudes and barriers to sexual expression</article-title>
          <source>J Am Med Directors Assoc</source>
          <year>2003</year>
          <month>5</month>
          <volume>4</volume>
          <issue>3</issue>
          <fpage>152</fpage>
          <lpage>6</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1016/S1525-8610(04)70325-4"/>
          </comment>
          <pub-id pub-id-type="doi">10.1016/s1525-8610(04)70325-4</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref79">
        <label>79</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Lindau</surname>
              <given-names>S</given-names>
            </name>
            <name name-style="western">
              <surname>Gavrilova</surname>
              <given-names>N</given-names>
            </name>
          </person-group>
          <article-title>Sex, health, and years of sexually active life gained due to good health: evidence from two US population based cross sectional surveys of ageing</article-title>
          <source>Br Med J</source>
          <year>2010</year>
          <month>03</month>
          <day>09</day>
          <volume>340</volume>
          <fpage>c810</fpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="http://europepmc.org/abstract/MED/20215365"/>
          </comment>
          <pub-id pub-id-type="doi">10.1136/bmj.c810</pub-id>
          <pub-id pub-id-type="medline">20215365</pub-id>
          <pub-id pub-id-type="pmcid">PMC2835854</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref80">
        <label>80</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Syme</surname>
              <given-names>M</given-names>
            </name>
          </person-group>
          <article-title>The evolving concept of older adult sexual behavior and its benefits</article-title>
          <source>Generations</source>
          <year>2014</year>
          <volume>38</volume>
          <issue>1</issue>
          <fpage>35</fpage>
          <lpage>41</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://www.ingentaconnect.com/content/asag/gen/2014/00000038/00000001/art00007"/>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref81">
        <label>81</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Boni-Saenz</surname>
              <given-names>AA</given-names>
            </name>
          </person-group>
          <article-title>Sexuality and incapacity</article-title>
          <source>Ohio State Law</source>
          <year>2015</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://scholarship.kentlaw.iit.edu/fac_schol/846/">https://scholarship.kentlaw.iit.edu/fac_schol/846/</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref82">
        <label>82</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Moher</surname>
              <given-names>D</given-names>
            </name>
            <name name-style="western">
              <surname>Liberati</surname>
              <given-names>A</given-names>
            </name>
            <name name-style="western">
              <surname>Tetzlaff</surname>
              <given-names>J</given-names>
            </name>
            <name name-style="western">
              <surname>Altman</surname>
              <given-names>DG</given-names>
            </name>
            <collab>PRISMA Group</collab>
          </person-group>
          <article-title>Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement</article-title>
          <source>PLoS Med</source>
          <year>2009</year>
          <month>07</month>
          <day>21</day>
          <volume>6</volume>
          <issue>7</issue>
          <fpage>e1000097</fpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://dx.plos.org/10.1371/journal.pmed.1000097"/>
          </comment>
          <pub-id pub-id-type="doi">10.1371/journal.pmed.1000097</pub-id>
          <pub-id pub-id-type="medline">19621072</pub-id>
          <pub-id pub-id-type="pmcid">PMC2707599</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref83">
        <label>83</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Brassolotto</surname>
              <given-names>J</given-names>
            </name>
            <name name-style="western">
              <surname>Howard</surname>
              <given-names>L</given-names>
            </name>
            <name name-style="western">
              <surname>Manduca-Barone</surname>
              <given-names>A</given-names>
            </name>
          </person-group>
          <article-title>Sexual expression in Alberta’s continuing care homes: capacity, consent, and co-decision-making</article-title>
          <source>Can J Aging</source>
          <year>2020</year>
          <month>01</month>
          <day>24</day>
          <volume>40</volume>
          <issue>1</issue>
          <fpage>156</fpage>
          <lpage>65</lpage>
          <pub-id pub-id-type="doi">10.1017/s0714980819000813</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref84">
        <label>84</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Thomas</surname>
              <given-names>JG</given-names>
            </name>
          </person-group>
          <article-title>Capacity to consent to sexual activity among residents of long-term mental health treatment programs: perspectives of clients, staff, and administrators</article-title>
          <source>Dissertation, The Florida State University</source>
          <year>2015</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://www.proquest.com/docview/1694580445?pq-origsite=gscholar&#38;fromopenview=true">https://www.proquest.com/docview/1694580445?pq-origsite=gscholar&#38;fromopenview=true</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref85">
        <label>85</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Syme</surname>
              <given-names>ML</given-names>
            </name>
            <name name-style="western">
              <surname>Lichtenberg</surname>
              <given-names>P</given-names>
            </name>
            <name name-style="western">
              <surname>Moye</surname>
              <given-names>J</given-names>
            </name>
          </person-group>
          <article-title>Recommendations for sexual expression management in long-term care: a qualitative needs assessment</article-title>
          <source>J Adv Nurs</source>
          <year>2016</year>
          <month>10</month>
          <day>18</day>
          <volume>72</volume>
          <issue>10</issue>
          <fpage>2457</fpage>
          <lpage>67</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="http://europepmc.org/abstract/MED/27188413"/>
          </comment>
          <pub-id pub-id-type="doi">10.1111/jan.13005</pub-id>
          <pub-id pub-id-type="medline">27188413</pub-id>
          <pub-id pub-id-type="pmcid">PMC5753401</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref86">
        <label>86</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Dukes</surname>
              <given-names>E</given-names>
            </name>
            <name name-style="western">
              <surname>McGuire</surname>
              <given-names>BE</given-names>
            </name>
          </person-group>
          <article-title>Enhancing capacity to make sexuality-related decisions in people with an intellectual disability</article-title>
          <source>J Intellect Disabil Res</source>
          <year>2009</year>
          <month>08</month>
          <volume>53</volume>
          <issue>8</issue>
          <fpage>727</fpage>
          <lpage>34</lpage>
          <pub-id pub-id-type="doi">10.1111/j.1365-2788.2009.01186.x</pub-id>
          <pub-id pub-id-type="medline">19527433</pub-id>
          <pub-id pub-id-type="pii">JIR1186</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref87">
        <label>87</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Lichtenberg</surname>
              <given-names>P</given-names>
            </name>
            <name name-style="western">
              <surname>Strzepek</surname>
              <given-names>DM</given-names>
            </name>
          </person-group>
          <article-title>Assessments of institutionalized dementia patients' competencies to participate in intimate relationships</article-title>
          <source>Gerontologist</source>
          <year>1990</year>
          <month>02</month>
          <volume>30</volume>
          <issue>1</issue>
          <fpage>117</fpage>
          <lpage>20</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1093/geront/30.1.117"/>
          </comment>
          <pub-id pub-id-type="doi">10.1093/geront/30.1.117</pub-id>
          <pub-id pub-id-type="medline">2311954</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref88">
        <label>88</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Syme</surname>
              <given-names>ML</given-names>
            </name>
            <name name-style="western">
              <surname>Steele</surname>
              <given-names>D</given-names>
            </name>
          </person-group>
          <article-title>Sexual consent capacity assessment with older adults</article-title>
          <source>Arch Clin Neuropsychol</source>
          <year>2016</year>
          <month>09</month>
          <day>01</day>
          <volume>31</volume>
          <issue>6</issue>
          <fpage>495</fpage>
          <lpage>505</lpage>
          <pub-id pub-id-type="doi">10.1093/arclin/acw046</pub-id>
          <pub-id pub-id-type="medline">27480989</pub-id>
          <pub-id pub-id-type="pii">acw046</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref89">
        <label>89</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Metzger</surname>
              <given-names>E</given-names>
            </name>
          </person-group>
          <article-title>Ethics and intimate sexual activity in long-term care</article-title>
          <source>AMA J Ethics</source>
          <year>2017</year>
          <month>07</month>
          <day>01</day>
          <volume>19</volume>
          <issue>7</issue>
          <fpage>640</fpage>
          <lpage>8</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://journalofethics.ama-assn.org/article/ethics-and-intimate-sexual-activity-long-term-care/2017-07"/>
          </comment>
          <pub-id pub-id-type="doi">10.1001/journalofethics.2017.19.7.ecas1-1707</pub-id>
          <pub-id pub-id-type="medline">28813236</pub-id>
          <pub-id pub-id-type="pii">journalofethics.2017.19.7.ecas1-1707</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref90">
        <label>90</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Bogacki</surname>
              <given-names>DF</given-names>
            </name>
            <name name-style="western">
              <surname>Armstrong</surname>
              <given-names>DJ</given-names>
            </name>
            <name name-style="western">
              <surname>Stuempfle</surname>
              <given-names>P</given-names>
            </name>
          </person-group>
          <article-title>he social sexual awareness scale (SSAS): development and validation of an instrument to measure capacity to consent to high risk sexual behavior</article-title>
          <source>Am J Forens Psychol</source>
          <year>2004</year>
          <volume>22</volume>
          <issue>2</issue>
          <fpage>5</fpage>
          <lpage>38</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://www.scopus.com/inward/record.uri?eid=2-s2.0-2442429436&#38;partnerID=40&#38;md5=b51acf76ef2e815baa4026bf56233645"/>
          </comment>
          <pub-id pub-id-type="doi">10.1037/t68816-000</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref91">
        <label>91</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Gill</surname>
              <given-names>M</given-names>
            </name>
          </person-group>
          <article-title>Rethinking sexual abuse, questions of consent, and intellectual disability</article-title>
          <source>Sex Res Soc Policy</source>
          <year>2010</year>
          <month>4</month>
          <day>16</day>
          <volume>7</volume>
          <issue>3</issue>
          <fpage>201</fpage>
          <lpage>13</lpage>
          <pub-id pub-id-type="doi">10.1007/s13178-010-0019-9</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref92">
        <label>92</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Kramers-Olen</surname>
              <given-names>A</given-names>
            </name>
          </person-group>
          <article-title>Quantitative assessment of sexual knowledge and consent capacity in people with mild to moderate intellectual disability</article-title>
          <source>S Afr J Psychol</source>
          <year>2017</year>
          <month>09</month>
          <day>22</day>
          <volume>47</volume>
          <issue>3</issue>
          <fpage>367</fpage>
          <lpage>78</lpage>
          <pub-id pub-id-type="doi">10.1177/0081246317726457</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref93">
        <label>93</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Srinivasan</surname>
              <given-names>S</given-names>
            </name>
            <name name-style="western">
              <surname>Glover</surname>
              <given-names>J</given-names>
            </name>
            <name name-style="western">
              <surname>Tampi</surname>
              <given-names>RR</given-names>
            </name>
            <name name-style="western">
              <surname>Tampi</surname>
              <given-names>DJ</given-names>
            </name>
            <name name-style="western">
              <surname>Sewell</surname>
              <given-names>DD</given-names>
            </name>
          </person-group>
          <article-title>Sexuality and the older adult</article-title>
          <source>Curr Psychiatry Rep</source>
          <year>2019</year>
          <month>09</month>
          <day>14</day>
          <volume>21</volume>
          <issue>10</issue>
          <fpage>97</fpage>
          <pub-id pub-id-type="doi">10.1007/s11920-019-1090-4</pub-id>
          <pub-id pub-id-type="medline">31522296</pub-id>
          <pub-id pub-id-type="pii">10.1007/s11920-019-1090-4</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref94">
        <label>94</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Spring</surname>
              <given-names>L</given-names>
            </name>
          </person-group>
          <article-title>Older women and sexuality – are we still just talking lube?</article-title>
          <source>Sex Rel Ther</source>
          <year>2014</year>
          <month>05</month>
          <day>29</day>
          <volume>30</volume>
          <issue>1</issue>
          <fpage>4</fpage>
          <lpage>9</lpage>
          <pub-id pub-id-type="doi">10.1080/14681994.2014.920617</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref95">
        <label>95</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Eastgate</surname>
              <given-names>G</given-names>
            </name>
          </person-group>
          <article-title>Sex, consent and intellectual disability</article-title>
          <source>Aust Fam Physician</source>
          <year>2005</year>
          <month>03</month>
          <volume>34</volume>
          <issue>3</issue>
          <fpage>163</fpage>
          <lpage>6</lpage>
          <pub-id pub-id-type="medline">15799666</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref96">
        <label>96</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Griffith</surname>
              <given-names>R</given-names>
            </name>
            <name name-style="western">
              <surname>Tengnah</surname>
              <given-names>C</given-names>
            </name>
          </person-group>
          <article-title>Assessing capacity to consent to sexual relations: a guide for nurses</article-title>
          <source>Br J Community Nurs</source>
          <year>2013</year>
          <month>04</month>
          <volume>18</volume>
          <issue>4</issue>
          <fpage>198</fpage>
          <lpage>201</lpage>
          <pub-id pub-id-type="doi">10.12968/bjcn.2013.18.4.198</pub-id>
          <pub-id pub-id-type="medline">23574912</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref97">
        <label>97</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Kramers-Olen</surname>
              <given-names>A</given-names>
            </name>
          </person-group>
          <article-title>Sexuality, intellectual disability, and human rights legislation</article-title>
          <source>S Afr J Psychol</source>
          <year>2016</year>
          <month>11</month>
          <day>04</day>
          <volume>46</volume>
          <issue>4</issue>
          <fpage>504</fpage>
          <lpage>16</lpage>
          <pub-id pub-id-type="doi">10.1177/0081246316678154</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref98">
        <label>98</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Breen</surname>
              <given-names>S</given-names>
            </name>
            <name name-style="western">
              <surname>Carlson</surname>
              <given-names>M</given-names>
            </name>
            <name name-style="western">
              <surname>Clements</surname>
              <given-names>G</given-names>
            </name>
            <name name-style="western">
              <surname>Everett</surname>
              <given-names>B</given-names>
            </name>
            <name name-style="western">
              <surname>Young</surname>
              <given-names>J</given-names>
            </name>
          </person-group>
          <article-title>Supporting sexual health and intimacy in care facilities: guidelines for supporting adults living in long-term care facilities and group homes in British Columbia, Canada</article-title>
          <source>Vancouver Coastal Health Authority</source>
          <year>2009</year>
          <access-date>2022-01-26</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="http://www.vch.ca/Documents/Facilities-licensing-supporting-sexual-health-and-intimacy-in-care-facilities.pdf">http://www.vch.ca/Documents/Facilities-licensing-supporting-sexual-health-and-intimacy-in-care-facilities.pdf</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref99">
        <label>99</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Joy</surname>
              <given-names>M</given-names>
            </name>
            <name name-style="western">
              <surname>Weiss</surname>
              <given-names>KJ</given-names>
            </name>
          </person-group>
          <article-title>Consent for intimacy among persons with neurocognitive impairment</article-title>
          <source>J Am Acad Psychiatry Law</source>
          <year>2018</year>
          <month>09</month>
          <volume>46</volume>
          <issue>3</issue>
          <fpage>286</fpage>
          <lpage>94</lpage>
          <pub-id pub-id-type="doi">10.29158/JAAPL.003763-18</pub-id>
          <pub-id pub-id-type="medline">30368460</pub-id>
          <pub-id pub-id-type="pii">46/3/286</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref100">
        <label>100</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Director</surname>
              <given-names>S</given-names>
            </name>
          </person-group>
          <article-title>Consent's dominion: dementia and prior consent to sexual relations</article-title>
          <source>Bioethics</source>
          <year>2019</year>
          <month>11</month>
          <day>28</day>
          <volume>33</volume>
          <issue>9</issue>
          <fpage>1065</fpage>
          <lpage>71</lpage>
          <pub-id pub-id-type="doi">10.1111/bioe.12652</pub-id>
          <pub-id pub-id-type="medline">31463966</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref101">
        <label>101</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Doyle</surname>
              <given-names>D</given-names>
            </name>
            <name name-style="western">
              <surname>Bisson</surname>
              <given-names>D</given-names>
            </name>
            <name name-style="western">
              <surname>Janes</surname>
              <given-names>N</given-names>
            </name>
            <name name-style="western">
              <surname>Lynch</surname>
              <given-names>H</given-names>
            </name>
            <name name-style="western">
              <surname>Martin</surname>
              <given-names>C</given-names>
            </name>
          </person-group>
          <article-title>Human sexuality in long-term care</article-title>
          <source>Can Nurse</source>
          <year>1999</year>
          <month>01</month>
          <volume>95</volume>
          <issue>1</issue>
          <fpage>26</fpage>
          <lpage>9</lpage>
          <pub-id pub-id-type="medline">10401271</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref102">
        <label>102</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Arstein-Kerslake</surname>
              <given-names>A</given-names>
            </name>
            <name name-style="western">
              <surname>Flynn</surname>
              <given-names>E</given-names>
            </name>
          </person-group>
          <article-title>Legislating consent</article-title>
          <source>Soc Legal Stud</source>
          <year>2015</year>
          <month>08</month>
          <day>17</day>
          <volume>25</volume>
          <issue>2</issue>
          <fpage>225</fpage>
          <lpage>48</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1177/0964663915599051"/>
          </comment>
          <pub-id pub-id-type="doi">10.1177/0964663915599051</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref103">
        <label>103</label>
        <nlm-citation citation-type="book">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Marson</surname>
              <given-names>DC</given-names>
            </name>
            <name name-style="western">
              <surname>Huthwaite</surname>
              <given-names>JS</given-names>
            </name>
          </person-group>
          <article-title>An unexpected excursion: sexual consent capacity in a nursing home patient with alzheimer's disease</article-title>
          <source>Forensic Neuropsychology Casebook</source>
          <year>2005</year>
          <publisher-loc>New York</publisher-loc>
          <publisher-name>Guilford Press</publisher-name>
          <fpage>146</fpage>
          <lpage>64</lpage>
        </nlm-citation>
      </ref>
      <ref id="ref104">
        <label>104</label>
        <nlm-citation citation-type="book">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Edgerton</surname>
              <given-names>RB</given-names>
            </name>
          </person-group>
          <source>The Cloak of Competence</source>
          <year>1993</year>
          <publisher-loc>California</publisher-loc>
          <publisher-name>University of California Press</publisher-name>
        </nlm-citation>
      </ref>
      <ref id="ref105">
        <label>105</label>
        <nlm-citation citation-type="book">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Wertheimer</surname>
              <given-names>A</given-names>
            </name>
          </person-group>
          <source>Consent to Sexual Relations</source>
          <year>2003</year>
          <publisher-loc>Cambridge, MA</publisher-loc>
          <publisher-name>Cambridge University Press</publisher-name>
        </nlm-citation>
      </ref>
      <ref id="ref106">
        <label>106</label>
        <nlm-citation citation-type="web">
          <article-title>The code: professional standards of practice and behaviour for nurses, midwives and nursing associates</article-title>
          <source>Nursing and Midwifery Council, London</source>
          <year>2015</year>
          <access-date>2022-01-26</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://www.nmc.org.uk/standards/code/">https://www.nmc.org.uk/standards/code/</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref107">
        <label>107</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Wilkins</surname>
              <given-names>J</given-names>
            </name>
          </person-group>
          <article-title>Ethical considerations regarding capacity assessments for consent to sexual activity in older adults with dementia living in residential care settings</article-title>
          <source>Am J Geriatr Psychiatry</source>
          <year>2015</year>
          <month>03</month>
          <volume>23</volume>
          <issue>3</issue>
          <fpage>S113</fpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1016/j.jagp.2014.12.112"/>
          </comment>
          <pub-id pub-id-type="doi">10.1016/j.jagp.2014.12.112</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref108">
        <label>108</label>
        <nlm-citation citation-type="book">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Craft</surname>
              <given-names>A</given-names>
            </name>
            <name name-style="western">
              <surname>Bustard</surname>
              <given-names>S</given-names>
            </name>
          </person-group>
          <source>Living Your Life: The Sex Education and Personal Development Resource for Special Needs Eduation (Revised Ed)</source>
          <year>2003</year>
          <publisher-loc>London, UK</publisher-loc>
          <publisher-name>The Ann Craft Trust UK Brook Publications</publisher-name>
        </nlm-citation>
      </ref>
      <ref id="ref109">
        <label>109</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Marshall</surname>
              <given-names>JE</given-names>
            </name>
            <name name-style="western">
              <surname>Helen</surname>
              <given-names>B</given-names>
            </name>
          </person-group>
          <article-title>Understanding sexual and gender-based violence against refugees with a communication disability and challenges to accessing appropriate support: a literature review</article-title>
          <source>Manchester Metropolitan University</source>
          <year>2017</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://e-space.mmu.ac.uk/620167/">https://e-space.mmu.ac.uk/620167/</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref110">
        <label>110</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Keilty</surname>
              <given-names>J</given-names>
            </name>
            <name name-style="western">
              <surname>Connelly</surname>
              <given-names>G</given-names>
            </name>
          </person-group>
          <article-title>Making a statement: an exploratory study of barriers facing women with an intellectual disability when making a statement about sexual assault to police</article-title>
          <source>Disab Society</source>
          <year>2010</year>
          <month>07</month>
          <volume>16</volume>
          <issue>2</issue>
          <fpage>273</fpage>
          <lpage>91</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1080/09687590120035843"/>
          </comment>
          <pub-id pub-id-type="doi">10.1080/09687590120035843</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref111">
        <label>111</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Faller</surname>
              <given-names>KC</given-names>
            </name>
            <name name-style="western">
              <surname>Henry</surname>
              <given-names>J</given-names>
            </name>
          </person-group>
          <article-title>Child sexual abuse: a case study in community collaboration</article-title>
          <source>Child Abuse Neglect</source>
          <year>2000</year>
          <month>9</month>
          <volume>24</volume>
          <issue>9</issue>
          <fpage>1215</fpage>
          <lpage>25</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1016/S0145-2134(00)00171-X"/>
          </comment>
          <pub-id pub-id-type="doi">10.1016/s0145-2134(00)00171-x</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref112">
        <label>112</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Weis</surname>
              <given-names>K</given-names>
            </name>
            <name name-style="western">
              <surname>Borges</surname>
              <given-names>SS</given-names>
            </name>
          </person-group>
          <article-title>Victimology and rape: the case of the legitimate victim</article-title>
          <source>Issues Criminol</source>
          <year>1973</year>
          <volume>8</volume>
          <issue>2</issue>
          <fpage>71</fpage>
          <lpage>115</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://www.jstor.org/stable/42909686"/>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref113">
        <label>113</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>McCarthy</surname>
              <given-names>M</given-names>
            </name>
            <name name-style="western">
              <surname>Thompson</surname>
              <given-names>D</given-names>
            </name>
          </person-group>
          <article-title>A prevalence study of sexual abuse of adults with intellectual disabilities referred for sex education</article-title>
          <source>J Appl Res Intellect Disabil</source>
          <year>1997</year>
          <volume>10</volume>
          <issue>2</issue>
          <fpage>105</fpage>
          <lpage>24</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1111/j.1468-3148.1997.tb00012.x"/>
          </comment>
          <pub-id pub-id-type="doi">10.1111/j.1468-3148.1997.tb00012.x</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref114">
        <label>114</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Kuhn</surname>
              <given-names>D</given-names>
            </name>
          </person-group>
          <article-title>Intimacy, sexuality, and residents with dementia</article-title>
          <source>Alzheimer's Care Today</source>
          <year>2002</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://www.researchgate.net/profile/Daniel-Kuhn-2/publication/232173050_Intimacy_Sexuality_and_Residents_with_Dementia/links/5658b3a408aefe619b213997/Intimacy-Sexuality-and-Residents-with-Dementia.pdf">https://tinyurl.com/yckrscyd</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref115">
        <label>115</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Boni-Saenz</surname>
              <given-names>A</given-names>
            </name>
          </person-group>
          <article-title>Sexual advance directives</article-title>
          <source>Alabama Law Review</source>
          <year>2016</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://scholarship.kentlaw.iit.edu/fac_schol/878/">https://scholarship.kentlaw.iit.edu/fac_schol/878/</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref116">
        <label>116</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Schaafsma</surname>
              <given-names>D</given-names>
            </name>
            <name name-style="western">
              <surname>Kok</surname>
              <given-names>G</given-names>
            </name>
            <name name-style="western">
              <surname>Stoffelen</surname>
              <given-names>JM</given-names>
            </name>
            <name name-style="western">
              <surname>Curfs</surname>
              <given-names>LM</given-names>
            </name>
          </person-group>
          <article-title>People with intellectual disabilities talk about sexuality: implications for the development of sex education</article-title>
          <source>Sex Disabil</source>
          <year>2017</year>
          <volume>35</volume>
          <issue>1</issue>
          <fpage>21</fpage>
          <lpage>38</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="http://europepmc.org/abstract/MED/28250541"/>
          </comment>
          <pub-id pub-id-type="doi">10.1007/s11195-016-9466-4</pub-id>
          <pub-id pub-id-type="medline">28250541</pub-id>
          <pub-id pub-id-type="pii">9466</pub-id>
          <pub-id pub-id-type="pmcid">PMC5306299</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref117">
        <label>117</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Cahn</surname>
              <given-names>N</given-names>
            </name>
            <name name-style="western">
              <surname>Ziettlow</surname>
              <given-names>A</given-names>
            </name>
          </person-group>
          <article-title>Makings things fair: an empirical study of how people approach the wealth transmission system</article-title>
          <source>George Washington University Law School</source>
          <year>2015</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://scholarship.law.gwu.edu/cgi/viewcontent.cgi?article=2357&#38;context=faculty_publications">https://scholarship.law.gwu.edu/cgi/viewcontent.cgi?article=2357&#38;context=faculty_publications</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref118">
        <label>118</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Kohn</surname>
              <given-names>N</given-names>
            </name>
          </person-group>
          <article-title>Matched preferences and values: a new approach to selecting legal surrogates</article-title>
          <source>San Diego Law Review</source>
          <year>2015</year>
          <access-date>2022-01-25</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://digital.sandiego.edu/cgi/viewcontent.cgi?article=1120&#38;context=sdlr">https://digital.sandiego.edu/cgi/viewcontent.cgi?article=1120&#38;context=sdlr</ext-link>
          </comment>
        </nlm-citation>
      </ref>
      <ref id="ref119">
        <label>119</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Bartlett</surname>
              <given-names>P</given-names>
            </name>
          </person-group>
          <article-title>The United Nations convention on the rights of persons with disabilities and mental health law</article-title>
          <source>Mod Law Rev</source>
          <year>2012</year>
          <month>09</month>
          <day>03</day>
          <volume>75</volume>
          <issue>5</issue>
          <fpage>752</fpage>
          <lpage>78</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1111/j.1468-2230.2012.00923.x"/>
          </comment>
          <pub-id pub-id-type="doi">10.1111/j.1468-2230.2012.00923.x</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref120">
        <label>120</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Dawson</surname>
              <given-names>J</given-names>
            </name>
          </person-group>
          <article-title>A realistic approach to assessing mental health laws' compliance with the UNCRPD</article-title>
          <source>Int J Law Psychiatry</source>
          <year>2015</year>
          <volume>40</volume>
          <fpage>70</fpage>
          <lpage>9</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.1016/j.ijlp.2015.04.003"/>
          </comment>
          <pub-id pub-id-type="doi">10.1016/j.ijlp.2015.04.003</pub-id>
          <pub-id pub-id-type="medline">25982965</pub-id>
          <pub-id pub-id-type="pii">S0160-2527(15)00067-9</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref121">
        <label>121</label>
        <nlm-citation citation-type="journal">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Del Villar</surname>
              <given-names>K</given-names>
            </name>
          </person-group>
          <article-title>Should supported decision-making replace substituted decision-making? The convention on the rights of persons with disabilities and coercive treatment under Queensland’s Mental Health Act 2000</article-title>
          <source>Laws</source>
          <year>2015</year>
          <month>05</month>
          <day>25</day>
          <volume>4</volume>
          <issue>2</issue>
          <fpage>173</fpage>
          <lpage>200</lpage>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://doi.org/10.3390/laws4020173"/>
          </comment>
          <pub-id pub-id-type="doi">10.3390/laws4020173</pub-id>
        </nlm-citation>
      </ref>
      <ref id="ref122">
        <label>122</label>
        <nlm-citation citation-type="web">
          <person-group person-group-type="author">
            <name name-style="western">
              <surname>Leonhard</surname>
              <given-names>C</given-names>
            </name>
          </person-group>
          <article-title>The unbearable lightness of consent in contract law</article-title>
          <source>Case Western Reserve Law Review</source>
          <year>2012</year>
          <access-date>2022-01-26</access-date>
          <comment>
            <ext-link ext-link-type="uri" xlink:type="simple" xlink:href="https://scholarlycommons.law.case.edu/caselrev/vol63/iss1/9/">https://scholarlycommons.law.case.edu/caselrev/vol63/iss1/9/</ext-link>
          </comment>
        </nlm-citation>
      </ref>
    </ref-list>
  </back>
</article>
